Selection of a quality of life instrument for polio survivors in Northwest Nigeria

Abstract

Background To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether these instruments are appropriate for the measurement of quality of life among polio survivors in northwest Nigeria. The purpose of this review is to identify and select a pre-existing instrument that is best suited for the measurement of quality of life among polio survivors in northwest Nigeria. Methods Using the findings of a previous scoping review of the literature and qualitative descriptive study, we screened 11 quality of life instruments that are used in polio literature. We identified and selected the most appropriate instrument, which reflected the perspectives of polio survivors in northwest Nigeria and at the same time exhibited good measurement properties. Results The Quality of Life Index, World Health Organization Quality of Life Brief, and Comprehensive Quality of Life Scale are consistent with the perspectives of polio survivors in northwest Nigeria and have satisfactory measurement properties. Among these instruments, the Quality of Life Index satisfied most of the screening criteria we employed and is suitable for cross-cultural adaptation in northwest Nigeria. Conclusion Most instruments that are employed to evaluate the quality of life of polio survivors were not primarily designed as a measure of quality of life. To select the appropriate instrument, there is a need to consider and reflect the perspectives of the individuals, to improve the validity of the measurement.

Effectiveness of assistive devices on activity of daily living (ADL) and quality of life (QoL) in children with post-polio paralysis

“…Social support and patients' ability to manage stressors and adjust to a disability may minimize the importance of physical ability and therefore play an important role in maintaining mental health. 37 AT greatly enhances the quality of life of children and their families. Unfortunately, this potential remains unfulfilled for most children with disabilities, as inadequate access to AT excludes them from education, health, and social services.…”