Quality of life and employment in persons with multiple sclerosis

Pack, Tresvil G.; Szirony, Gary M.; Kushner, Jason; Bellaw, Jason R.

doi:10.3233/wor-131711

Cited by 39 publications

(23 citation statements)

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“…The current investigation demonstrated that high levels of HRQoL and high job positions were associated with employment. The link between high levels of HRQoL and employment was not surprising and supports previous studies showing this association among PwMS [7,55]. This finding corroborates the notion that being at work might be regarded as an indicator of overall functioning.…”

Section: Discussionsupporting

confidence: 89%

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

et al. 2020

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Background Multiple sclerosis (MS) notably affects adults of working age. For persons with MS (PwMS), being employed enhances their quality of life and it may be regarded as an indicator of overall functioning. Thus, ensuring work participation in PwMS is of general public health interest. Objective To examine relevant socio-demographic, MS-, health- and work-related factors, including psychosocial working conditions, associated with currently working PwMS in Switzerland and their expected work retention. Methods Using cross-sectional data of PwMS in the Swiss MS Registry (n = 541, median age = 48 [IQR 40;55]), multivariable logistic regression models were computed. First, currently working PwMS were characterised in comparison with those not currently working. Second, expected work retention, operationalized as subjective judgement “likely to work in the same job in 2 years”, was examined within the group of currently working PwMS. Results The factors age (OR 0.96, 95% CI 0.92–0.99), sex (OR 0.28, 95% CI 0.13–0.60), highest achieved job position (OR 1.21, 95% CI 1.01–1.46), health-related quality of life (HRQoL) (OR 1.02, 95% CI 1.01–1.04) and the number of MS symptoms (OR 0.90, 95% CI 0.82–0.98) were associated with currently working PwMS. Moreover, HRQoL (OR 1.07, 95% CI 1.04–1.10) and psychosocial working conditions, such as job resources (e.g. autonomy, control or social support) (OR 2.83, 95% CI 1.50–5.33) and job demands (e.g. workload, time pressure) (OR 0.41, 95% CI 0.18–0.90) were important factors for expected work retention among this group. Conclusions Resourceful psychosocial working conditions are crucial for PwMS to maintain employment. Employers could contribute to work retention among PwMS by creating a work environment with resourceful psychosocial working conditions and providing, for instance, social support.

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Section: Discussionsupporting

confidence: 89%

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

et al. 2020

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“…Returning to work could lead to more positive health outcomes and quality of life, 36 and most probably it does not depend on the work load (part-time or full-time employment). 37 The ability to return to work after experiencing a disabling condition is in the interests of politicians and decision-makers for its contribution to the economy. Moreover, work is considered to be among the most important meaningful activities of the lives of many people.…”

Section: Discussionmentioning

confidence: 99%

Living in Latvia after stroke: the association between functional, social and personal factors and the level of self-perceived disability—a cross-sectional study

Bērziņa

Smilškalne²,

Vētra

et al. 2016

BMJ Open

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ObjectiveTo investigate how functional, social and personal factors are associated with self-perceived level of disability in the chronic phase of stroke in a Latvian stroke population. The consequences of stroke can vary greatly and often leads to long-term disability that, according to the WHO definitions, depends on the interaction between the person and his/her context.DesignCross-sectional study with retrospective data gathering.SettingCommunity-dwelling persons who received specialised in-patient rehabilitation after stroke in Latvia.ParticipantsOf 600 persons after stroke who were identified through hospital register and selected for the study, 255 were included in the analysis.Primary and secondary outcome measuresThe medical information and discharge data of the Functional Independence Measure (FIM) was extracted from medical records. Participants filled out a questionnaire on sociodemographic information and the WHO Disability Assessment Schedule 2.0 (WHODAS 2.0), either in Latvian or Russian, depending on their wish when contacted for their oral agreement to participate. Stepwise multiple regression analysis was conducted to find a model that best explains the variance in WHODAS 2.0 scores.ResultsThe models explained 23–43.5% of variance in outcomes. The best explained WHODAS 2.0 domains were ‘mobility’ and ‘self-care’. The significant factors were level of independence in ‘self-care’, ‘locomotion’ and ‘communication’ according to FIM, as well as working status, time since rehabilitation, age, gender, living alone or in family and preferred language.ConclusionsFunctional, social and personal factors are of similar importance when explaining self-perceived disability in the chronic phase of stroke. Some, but not all, of the factors are modifiable by the healthcare system. Therefore, a complex approach and involvement of medical, social and political systems is needed.

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“…[41][42][43][44][45] Furthermore, not unexpectedly, we found that poor HRQOL was strongly associated with unemployment in people with MS, and this has previously been reported. 46 Although self-reported general health was not included in the present parsimonious model because it was collinear with HRQOL, we noted that poorer self-reported general health was strongly associated with not working due to MS when kept in the model and HRQOL was removed. This is consistent with previous research; for example, Krokavcova and colleagues 45 found that patients with MS who were still in the workforce were less likely to report poor general health compared with those who were unemployed.…”

Section: Discussionmentioning

confidence: 95%

Association of Unemployment and Informal Care with Stigma in Multiple Sclerosis

Hategeka¹,

Traboulsee²,

McMullen³

et al. 2019

International Journal of MS Care

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Background: Multiple sclerosis (MS) typically affects young adults during their primary productive years. We assessed the magnitude of, and factors associated with, employment status and informal care in people with MS in Canada. Methods: Data were compiled from the nationally representative cross-sectional Survey on Living with Neurological Conditions in Canada (SLNCC), which included adolescents and adults (age ≥15 years). Employment status was categorized as currently working or not working. The frequency of informal care that people with MS received was categorized as none, less than daily, or daily. Logistic regression analyses were undertaken to identify factors associated with employment status and informal care requirements in people with MS. Results: Of 4409 SLNCC respondents, 631 had MS, of whom 530 were included in the analysis. Of 358 respondents aged 18 to 65 years, 47.8% were not working because of MS; 44.0% reported receiving informal care, with more than half requiring daily care. For caregivers' employment, 15.5% reduced work and 8.2% stopped working because of caregiving. Greater feelings of stigmatization were associated with not working (adjusted odds ratio, 7.42 [95% CI, 2.59–21.28]) and greater informal care (adjusted odds ratio, 3.83 [95% CI, 1.84–7.96]), adjusting for sex, age, education, health-related quality of life, time since MS diagnosis, and comorbidity. Conclusions: People who feel stigmatized because of their MS are more likely to be unemployed and to require more informal care. Further research is needed to understand the temporal nature of the association between stigma and employment, productivity loss, and informal care.

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Quality of life and employment in persons with multiple sclerosis

Cited by 39 publications

References 0 publications

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

Factors associated with employment and expected work retention among persons with multiple sclerosis: findings of a cross-sectional citizen science study

Living in Latvia after stroke: the association between functional, social and personal factors and the level of self-perceived disability—a cross-sectional study

Association of Unemployment and Informal Care with Stigma in Multiple Sclerosis

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