Quality of life among caregivers of patients with eating disorders

Martín, Josune; Padierna, Ángel; Aguirre, Urko; Quintana, José M.; Hayas, Carlota Las; Muñoz, Pedro

doi:10.1007/s11136-011-9873-z

Cited by 31 publications

(39 citation statements)

References 34 publications

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“…As well as direct negative health consequences, such chronic stress is associated with a severe deterioration in well‐being and quality of life (Lovell & Wetherell, ; Juster, McEwen, & Lupien, ). In relation to this, previous research has also found higher levels of burden and poorer quality of life and perceived health in ICs of people with EDs than in the general population (Anastasiadou et al, ; Martín et al, ; Martín et al, ; Zabala, Macdonald, & Treasure, ).…”

Section: Introductionmentioning

confidence: 80%

Blunted Cortisol Awakening Response and Poor Self‐Perceived Health in Informal Caregivers of People with Eating Disorders

Ruiz‐Robledillo

Romero‐Martínez

Moya-Albiol

2016

Euro Eating Disorders Rev

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Caring for offspring diagnosed with eating disorders (EDs) entails being under high chronic stress, with negative consequences for health. However, most previous research has only evaluated self-report measures of health, biological markers being poorly studied. In this regard, the evaluation of the cortisol awakening response (CAR) could add significant information about the biological basis of health disturbances in this population. The main aim of the present study was to compare CAR and self-reported health between informal caregivers (ICs) of people with EDs and non-caregivers. Furthermore, we explored the effect of the nature of the diagnosis, comparing ICs of people with anorexia and bulimia nervosa. ICs had a blunted CAR, and more anxiety and insomnia, and social dysfunction, together with poorer perceived general health than non-caregivers. ICs of people with anorexia nervosa had higher levels of morning cortisol and burden, and more social dysfunction and severe depression than those of people with bulimia nervosa. Our results demonstrate marked health problems in ICs of people with EDs, especially when the care recipient has anorexia nervosa. Copyright © 2016 John Wiley & Sons, Ltd and Eating Disorders Association.

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Section: Introductionmentioning

confidence: 80%

Blunted Cortisol Awakening Response and Poor Self‐Perceived Health in Informal Caregivers of People with Eating Disorders

Ruiz‐Robledillo

Romero‐Martínez

Moya-Albiol

2016

Euro Eating Disorders Rev

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“…The caregivers’ perceived burden improved significantly over the first year of follow-up, but no further improvement was observed with longer follow-up [51]. Many factors were associated with higher caregiver burden, such as higher anxiety and depression, purgative behaviors, lower patient HRQoL [52], and low-level education [53]. …”

Section: Resultsmentioning

confidence: 99%

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

Ágh¹,

Kovaćs²,

et al. 2016

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PurposeTo perform a systematic review of the health-related quality of life (HRQoL) and economic burdens of anorexia nervosa (AN), bulimia nervosa (BN), and binge eating disorder (BED).MethodsA systematic literature search of English-language studies was performed in Medline, Embase, PsycINFO, PsycARTICLES, Academic Search Complete, CINAHL Plus, Business Source Premier, and Cochrane Library. Cost data were converted to 2014 Euro.ResultsSixty-nine studies were included. Data on HRQoL were reported in 41 studies (18 for AN, 17 for BN, and 18 for BED), on healthcare utilization in 20 studies (14 for AN, 12 for BN, and 8 for BED), and on healthcare costs in 17 studies (9 for AN, 11 for BN, and only 2 for BED). Patients’ HRQoL was significantly worse with AN, BN, and BED compared with healthy populations. AN, BN, and BED were associated with a high rate of hospitalization, outpatient care, and emergency department visits. However, patients rarely received specific treatment for their eating disorder. The annual healthcare costs for AN, BN, and BED were €2993 to €55,270, €888 to €18,823, and €1762 to €2902, respectively.ConclusionsAN, BN, and BED have a serious impact on patient’s HRQoL and are also associated with increased healthcare utilization and healthcare costs. The burden of BED should be examined separately from that of BN. The limited evidence suggests that further research is warranted to better understand the differences in long-term HRQoL and economic burdens of AN, BN, and BED.Electronic supplementary materialThe online version of this article (doi:10.1007/s40519-016-0264-x) contains supplementary material, which is available to authorized users.

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“…In turn, a negative caregiving experience can be associated with health‐related quality of life, defined as a person's perception of how an illness and its treatment may affect his/her physical, psychological and social functioning. However, caregiver's quality of life does not seem to affect his/her perception of burden (Martin et al, ).…”

Section: Introductionmentioning

confidence: 99%

Family Functioning and Quality of Life among Families in Eating Disorders: A Comparison with Substance‐related Disorders and Healthy Controls

Anastasiadou

Sepúlveda

Sánchez³

et al. 2016

Euro Eating Disorders Rev

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Quality of life among caregivers of patients with eating disorders

Abstract: Low scores in the mental health domain of HRQoL among caregivers of patients with EDs indicate the need to pay particular attention to caregivers' emotional status, especially among mothers and partners.

Cited by 31 publications

References 34 publications

Blunted Cortisol Awakening Response and Poor Self‐Perceived Health in Informal Caregivers of People with Eating Disorders

Blunted Cortisol Awakening Response and Poor Self‐Perceived Health in Informal Caregivers of People with Eating Disorders

A systematic review of the health-related quality of life and economic burdens of anorexia nervosa, bulimia nervosa, and binge eating disorder

Family Functioning and Quality of Life among Families in Eating Disorders: A Comparison with Substance‐related Disorders and Healthy Controls

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