Quality of life after traumatic brain injury: Finnish experience of the QOLIBRI in residential rehabilitation

Clinical study of quality of life of traumatic brain injury patients after decompressive craniectomy and related influencing factors

“…The mean total QOLIBRI score was 62.5 (SD = 12.5), maximum score of 72.6 (SD = 15.7) was noted in the cognition domain and minimum score of 50.2 (SD = 17.3) was noted in the physical domain. We found that our "satisfied" scale scores were higher than the previously reported scores, whereas the "bothered" scale score were lower than that reported earlier [14,[18][19][20]32]. These scores may have been influenced by the fact that severely injured patients have a greater sense of "survivorship" along with greater levels of social support.…”

“…These scores may have been influenced by the fact that severely injured patients have a greater sense of "survivorship" along with greater levels of social support. Also, because of impaired self-awareness, patients self-report may create a false impression that they have better neurological recovery from TBI than is the actual case [18,32]. However, it has been earlier reported that patients may have adapted to new dimensions after TBI as when asked whether they would have consented to surgical intervention even if they had known their eventual outcome, answers were in the affirmative.…”

“…Our total QOLIBRI score was 62.5. Siponski et al studied 157 patients of which 59.2 % had GCS scale less than 8 (severe), and reported total QOLIBRI score less than ours [18]. However, other studies reported higher total score than ours [14,19].…”

“…Traditionally, outcomes from TBI have been assessed by objective functional indicators such as recovery from disability, or return to work and productivity, while subjective physical, social and psychological effects were neglected [6]. Patient-reported outcomes (PRO), where patients capture their own perspective, has become a central endpoint of rehabilitation and has led to increased interest in evaluation of quality of life post TBI [18]. As documented by von Steinbuechel, neurology and neurosurgery have adapted to HRQOL as patient reported outcome relatively late [16].…”

Qualitative Examination of Adolescent Health-Related Quality of Life at 1 Year Postconcussion

“…8 Despite the importance of HRQOL as a subjective health measure, ascertaining the full effect of a condition on HRQOL remains a challenge. Various quantitative measurement tools may not fully capture childrens' perceptions of their subjective health due to the complexity of HRQOL.…”