Clinical study of quality of life of traumatic brain injury patients after decompressive craniectomy and related influencing factors

Gopaul, Roodrajeetsing; Wei, Zong Dang; Yan, Jun; Gong, Fan; Xiao, Shao

doi:10.1186/s41016-016-0044-5

Cited by 4 publications

(4 citation statements)

References 30 publications

(45 reference statements)

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“…The QOLIBRI instrument is applied in various settings in the area of TBI, from international research studies to clinical use [ 28 , 29 , 30 ] and rehabilitation [ 31 ]. Until now the QOLIBRI has been translated and validated in more than 26 languages and is widely used internationally for individuals after TBI [ 31 , 32 , 33 , 34 ].…”

Section: Introductionmentioning

confidence: 99%

Reference Values of the Quality of Life after Brain Injury (QOLIBRI) from a General Population Sample in Italy

Krenz

Greving²,

Zeldovich³

et al. 2023

JCM

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Traumatic brain injury (TBI) may affect the lives of the individuals concerned and their relatives negatively in many dimensions. Health-related quality of life (HRQoL) is a comprehensive and complex concept that can assess one’s satisfaction with a broad range of areas of life and health. The Quality of Life after Traumatic Brain Injury (QOLIBRI) questionnaire is a TBI-specific measure for HRQoL which is used in research and health services worldwide. When evaluating self-reported HRQoL after TBI, reference values from a general population are helpful to perform clinically relevant evaluations and decisions about the condition of an affected person by comparing the patient scores with reference values. Despite the widespread use of the QOLIBRI, reference values have until now only been available for the Netherlands and the United Kingdom. The aim of this study was to validate the QOLIBRI for the general population in Italy and to provide reference values. An adapted form of the QOLIBRI was administered to 3298 Italians from a healthy general population using an online survey. Their scores were compared with those of 298 individuals post-TBI recruited within the international longitudinal observational cohort CENTER-TBI study in Italian hospitals, who completed the original questionnaire. The psychometric characteristics and the measurement invariance of the QOLIBRI were assessed. A regression analysis was performed to identify predictors relevant for HRQoL in the general population. Reference values were provided using percentiles. Measurement invariance analysis showed that the QOLIBRI captures the same HRQoL constructs in an Italian general population and Italian TBI sample from the observational Center-TBI study. Higher age, higher education and the absence of a chronic health condition were associated with higher QOLIBRI scores, suggesting better HRQoL. Reference values were provided for a general Italian population adjusted for age, sex, education and presence of chronic health conditions. We recommend using these for a better interpretation of the QOLIBRI score in clinical practice and research in Italy.

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Section: Introductionmentioning

confidence: 99%

Reference Values of the Quality of Life after Brain Injury (QOLIBRI) from a General Population Sample in Italy

Krenz

Greving²,

Zeldovich³

et al. 2023

JCM

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“…There is limited literature regarding a patient’s perception of the cranioplasty process, potential difficulties with rehabilitation before/after cranioplasty and how this may impact their reintegration into the community. A study by Gopaul et al 21 used the QOLIBRI questionnaire in 105 TBI patients who had undergone a DC and showed that anxiety and depression along with changes in cognition were the most significant challenges faced, but it was noted that further qualitative research was warranted here to understand these results better.…”

Section: Discussionmentioning

confidence: 99%

Exploring the experiences and challenges for patients undergoing cranioplasty: a mixed-methods study protocol

et al. 2022

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IntroductionCranioplasty is a widely practised neurosurgical procedure aimed at reconstructing a skull defect, but its impact on a patient’s rehabilitation following a traumatic brain injury (TBI) or stroke could be better understood. In addition, there are many issues that a TBI patient or the patient who had a stroke and their families may have to adapt to. Insight into some of the potential social barriers, including issues related to social engagement and cosmetic considerations, would be beneficial. Currently, little is known about how this procedure impacts a patient’s recovery, the patient’s perceptions of rehabilitation precranioplasty and postcranioplasty and the broader issues of cosmesis and social reintegration. This study hopes to understand some of these issues and therefore help inform clinicians of some of the difficulties and perceptions that patients and their relatives may have.Methods and analysisA mixed-methods study. Data will be collected through focus groups with healthcare professionals (HCPs) and semi-structured interviews with patients and their relatives, field notes, a researcher diary and a patient questionnaire. Different perspectives will be brought together through method triangulation. Patient and relative data will be analysed using interpretive phenomenological analysis, and HCPs data will be analysed thematically using deductive and inductive coding.Ethics and disseminationEthical approval has been obtained from the Wales REC 7 ethics committee (Rec ref: 19/WA/0315). There is limited literature regarding a patient’s perception of the cranioplasty process, the potential impact on rehabilitation and how this may impact their reintegration into the community. The results of this study will be presented at national brain injury conferences and published in peer-reviewed, national and international journals.

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“…El dilema ético consiste en determinar cuándo se debe de considerar un pronóstico funcional desfavorable después de un infarto maligno de la ACM [16][17][18] . Esto último debe de tomarse en cuenta, y más cuando las decisiones deben de tomarse con rapidez debido a la severidad de la patología 19 . Estudios realizados en pacientes que sobrevivieron a una craniectomía descompresiva evaluaron si estos pacientes se arrepentían de haber sido sometidos a la cirugía.…”

Section: Discussionunclassified

Craniectomía descompresiva vs Tratamiento conservador en infartos de la arteria cerebral media.Toma de decisión en profesionales de las neurociencias y sus familiares como pacientes

Incontri-Abraham,

Juárez-Vignon Whaley,

Rodriguez-Sanchez

et al. 2020

Arch Neurocien

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Introducción: La decisión sobre realizar un procedimiento que salve la vida o no, podría ser otra si de este se conoce el pronóstico con y sin este. El infarto maligno de la Arteria Cerebral Media (ACM) tiene una tasa de mortalidad de 80%. La craniectomía descompresiva en las primeras 48 horas puede reducir la mortalidad de 71% a 22%, sin embargo; varios sobrevivientes permanecerán con secuelas severas por quedar con cierto grado de discapacidad neurológica. Objetivo: Conocer si la toma de decisión informada de un procedimiento podría ser distinta al conocer el pronóstico posterior al mismo. Material y método: Se realizó un estudio prospectivo. Un total de 51 encuestas se realizaron al personal médico adscrito al INNNMVS, en un periodo de 2 meses. La encuesta determina si el mismo personal médico encuestado se sometería a una craniectomía descompresiva y/o a un familiar, así como su análisis. Resultados: El 72.5% de los médicos especialistas entrevistados aceptaría someter algún familiar al procedimiento si el hemisferio no dominante fuese el afectado, el 58.8% del personal médico se sometería a dicho procedimiento. Por otro lado, 35.3% aceptarían el procedimiento a un familiar si este fuese en el hemisferio dominante y 27.5% en ellos mismos. Los encuestados al ser conscientes del grado de discapacidad funcional. Conclusión: al conocer la discapacidad y calidad de vida asociados al tratamiento, una gran parte de los trabajadores de salud no consentiría el procedimiento tanto para ellos como para sus familiares al tratarse del hemisferio dominante.

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Clinical study of quality of life of traumatic brain injury patients after decompressive craniectomy and related influencing factors

Cited by 4 publications

References 30 publications

Reference Values of the Quality of Life after Brain Injury (QOLIBRI) from a General Population Sample in Italy

Reference Values of the Quality of Life after Brain Injury (QOLIBRI) from a General Population Sample in Italy

Exploring the experiences and challenges for patients undergoing cranioplasty: a mixed-methods study protocol

Craniectomía descompresiva vs Tratamiento conservador en infartos de la arteria cerebral media.Toma de decisión en profesionales de las neurociencias y sus familiares como pacientes

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