Quality‐enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical research literature

Maes, Beatrijs; Lambrechts, Greet; Hostyn, Ine; Petry, Katja

doi:10.1080/13668250701549427

Cited by 92 publications

(102 citation statements)

References 39 publications

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“…This curriculum was, however, developed for children with PIMD and its effects are limited to changes in the acquisition of motor skills (van der Putten et al, 2005). Another wellknown intervention for people with severe and profound intellectual disability is active support (Beadle-Brown, Hutchinson, & Whelton, 2012;Beadle-Brown et al, 2014;Jones et al, 1999), but its applicability and effectiveness in people with PIMD has not yet been studied (Maes, Lambrechts, Hostyn, & Petry, 2007). Further work on the role of professionals, fundamental knowledge about the course of motor development, and the development of movement-oriented interventions is required to reduce inactivity in the daily lives and care of people with PIMD.…”

Section: Discussionmentioning

confidence: 99%

Motor activation in people with profound intellectual and multiple disabilities in daily practice

Putten

Bossink

Frans

et al. 2016

Journal of Intellectual & Developmental Disability

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Background People with profound intellectual and multiple disabilities (PIMD) are at risk of being motorically inactive. This study investigated the degree and type of motor activation in daily practice and its relationship to personal and contextual factors. Method A total of 58 participants with PIMD participated in the study. Data concerning the motor activation were collected by means of a diary over a period of 14 days. Relationships to personal and contextual factors were analysed using multilevel analyses. Results The mean number of transfers was 3.1 times per day (range: 0-9, SD = 1.4), the mean number of relocations was 7.7 times per day (range: 2-13, SD = 2.5), and the mean number of motor activities offered was 1.5 per day (range: 0-10, SD = 1.9). Relationships to age, gender, location, and day of week were found. Conclusion Motor activation seems to be a minor part of the support provided to people with PIMD.

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Section: Discussionmentioning

confidence: 99%

Motor activation in people with profound intellectual and multiple disabilities in daily practice

Putten

Bossink

Frans

et al. 2016

Journal of Intellectual & Developmental Disability

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“…Nessa área de estudo, muitas são as questões centrais colocadas em evidência pela literatura científica e concentram-se, de modo particular, na delicada construção de projetos e soluções personalizadas relacionadas com a QV de pessoas adultas com deficiência (GIACONI; RODRIGUES, 2014;PENNE et al, 2012;MAES et al, 2007;ZIJLSTRA;WASKAMP, 2005;CAMBRIDGE;CORNABY, 2000;FELCE et al, 2000).…”

Section: Introdução: O Avançar Da Idade Entre Desafios E Emergênciasunclassified

Qualidade de Vida e Ambient Assisted Living: modelos de inclusão para adultos com deficiência

Giaconi

Carbonari

2016

Inform. educ.

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Resumo: O passar do tempo impõe vários desafios com relação aos cuidados necessários aos adultos com deficiência. Pensemos nas diversas fases de transição ao longo da vida, que podem marcar o futuro da pessoa com deficiência: a finalização do período escolar, a inserção em novos ambientes sociais e de trabalho, mudança de moradia, ou, a própria permanência no contexto familiar após a escola. Seja qual for a possibilidade, nem sempre é consonante com as necessidades das pessoas envolvidas. Para que essas mudanças possam ser melhor vivenciadas pela pessoa com deficiência e por sua família, podemos contar com pesquisas e experimentos com tecnologias assistivas. Essas experiências têm possibilitado autonomia e a convivência em diferentes ambientes sociais. Essas práticas não enfatizam somente a aplicação de tecnologia, mas, acima de tudo, a reflexão e busca contínuas de Qualidade de Vida (QV). Esse artigo traz reflexões sobre percursos e ações, em projetos italianos e europeus que buscam associar tecnologias com QV, onde as tecnologias e ambientes de vida assistivos têm papel central, como modelos de inclusão, independência, participação e bem estar. Palavras-chave: Qualidade de vida. Fases evolutivas. Pessoa com deficiência. Tecnologias Assistivas. Ambient Assisted LivingAbstract: Advancing age impose several challenges to the necessary care to adults with disabilities. There are various transition phases throughout life, they can mark the future of the disabled person: the completion of schooling, then try in to new social and work environments, change of residence, or the permanence within the family after school. Whatever the variable, it may notal ways bein line with the need soft he people involved. So that these changes can be best experienced by the disabled person and his/her family, as seen in some research and experiments with assisted technologies. These experiences have allowed autonomy and living in different social environments. These practices not only emphasize the application of technology but, above all, the continuous reflection and search of Quality of Life (QoL). This article reflects on path ways and actions, in Italian and European projects that seek to associate technology with QoL, where technologies and assisted living environments play a central role, as inclusion models, possibilities of independence, participation and well being.

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“…Brodin and Renblad also explain that some complicated ethical considerations arise for doing research with people with cognitive disabilities [40]. Many studies investigating PIMD include a limited number of participants, and tend to perform use case studies to compare an intervention to some baseline intervention [90,138,248]. Building on the findings of Chapter 7 and this related work, we used an A-B-A design with multiple measurements of the same individual in two conditions, and did this for 9 participants, see Figure 8.1.…”

Section: Methodsmentioning

confidence: 99%

“…Especially for people with Profound Intellectual and Multiple Disabilities (PIMD) there is a limited amount of suitable entertainment [43,267]. People with PIMD are a heterogeneous group that generally have multiple mutually reinforcing disabilities, are dependent on others for their every-day activities, and have very limited intellectual capabilities (immeasurable or what can be described as an intellectual developmental age of 24 months or less) [138,181,182].…”

Section: Towards New Leisure Activities For People With Pimdmentioning

confidence: 99%

“…Furthermore, the process to obtain ethical approval for evaluating new interventions in a more medical setting is an extensive procedure, and as Brodin and Renblad explain some complicated ethical considerations arise for people with cognitive disabilities [40]. This user group is especially vulnerable with regard to living a meaningful life [43,138]. At the same time it is recognized that entertainment might contribute to self-efficacy, self-esteem, autonomy, and creative explorations even for people with special needs [5,43,261].…”

Section: Towards New Leisure Activities For People With Pimdmentioning

confidence: 99%

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Quality‐enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical research literature

Cited by 92 publications

References 39 publications

Motor activation in people with profound intellectual and multiple disabilities in daily practice

Motor activation in people with profound intellectual and multiple disabilities in daily practice

Qualidade de Vida e Ambient Assisted Living: modelos de inclusão para adultos com deficiência

(Steering) Interactive Play Behavior

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