Putting responsive behaviours in place: Examining how formal and informal carers understand the actions of people with dementia

Herron, Rachel; Wrathall, Meghan

doi:10.1016/j.socscimed.2018.03.017

Cited by 28 publications

(27 citation statements)

References 25 publications

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“…In the ward, this diagnosis was not an identity marker and the caregivers’ work consisted of offering a form of “moral treatment,” which meant to help the persons diagnosed with dementia “doing being ordinary,” and through this, to temporarily emancipate residents from their pathological identity (Taylor 2001) and take them out of their role as sufferers (Bartlett et al . 2017, Heron and Wrathall 2018). Goffman (1959, 1974) made a distinction relevant for our analysis between an individual’s “character” and “social role.” This distinction refers to human beings as simultaneously physical and social beings.…”

Section: Discussionmentioning

confidence: 99%

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Maintaining ordinariness in dementia care

Gjernes

Måseide

2020

Sociology Health & Illness

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Drawing on data from fieldwork in a Norwegian care home for people diagnosed with dementia, the article focuses on how social ordinariness is produced by professional practices and co‐operation with residents. Through the lens of ethnomethodological and other pragmatist approaches to ordinariness, social agency and identity, the article uses interviews and observations to explore how residents in a care home were given the opportunity to act as ordinary persons and maintain ordinariness despite their illness. The analysis shows that a social and moral norm of ordinariness was central for how professional care work was performed in the care home. To help residents maintaining ordinariness was an essential part of caring work and to accomplish this, residents were regularly involved in activities they recognised from their everyday lives. This helped them holding on to their identities. The activities were regulated by situational rules that avoided stigmatising behaviour and maintained the residents’ dignity.

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Section: Discussionmentioning

confidence: 99%

“…2017). A focus on a metaphysical, cognitive or moral concept of “personhood” has been prominent in recent research (Heron and Wrathall 2018, Higgs and Gilleard 2016a). Other analysts have criticised the concept of “personhood” for being too ambiguous and abstract (Bartlett and O’Connor 2007, Davis 2004, Walsh et al .…”

Section: Introductionmentioning

confidence: 99%

Maintaining ordinariness in dementia care

Gjernes

Måseide

2020

Sociology Health & Illness

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“…There is sparse media coverage of aggression towards family caregivers, friends or acquaintances, or even paid care workers, in community settings. This gap reflects and reinforces the hidden nature of this phenomenon in these settings believed to be 'private' (family members may be reluctant to report aggression: Herron & Wrathall, 2018). One Winnipeg Free Press human interest story (Sanders, 2018) describes the experience of a local couple, one of whom (the husband) was living with dementia.…”

Section: Stories Of Human Tragedy: Familial Relations Of Care In Domementioning

confidence: 98%

Aggression and Older Adults: News Media Coverage across Care Settings and Relationships

et al. 2020

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Systematic, in-depth exploration of news media coverage of aggression and older adults remains sparse, with little attention to how and why particular frames manifest in coverage across differing settings and relationships. Frame analysis was used to analyze 141 English-language Canadian news media articles published between 2008 and 2019. Existing coverage tended towards stigmatizing, fear-inducing, and biomedical framings of aggression, yet also reflected and reinforced ambiguity, most notably around key differences between settings and relations of care. Mainstream news coverage reflects tensions in public understandings of aggression and older adults (e.g., as a medical or criminal issue), reinforced in particular ways because of the nature of news reporting. More nuanced coverage would advance understanding of differences among settings, relationships, and types of actions, and of the need for multifaceted prevention and policy responses based on these differences.

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“…We recognise there are limitations in using Fricker's theory to inform our analysis. By exploring the social and epistemic aspects of the carers’ accounts her work may not, for example, elicit or help to explain several, important issues: such as the spatial and environmental factors affecting carers’ coping strategies (Herron and Wrathall ), the processes by which some violent behaviours are pathologised and constructed as ‘challenging’ (Dupuis et al . ) and the inter‐relationship between carer harm and intimate partner violence in older age (Wydall and Zerk ).…”

Section: Limitationsmentioning

confidence: 99%

Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care: a case of epistemic injustice?

Isham

Bradbury‐Jones

Hewison

2019

Sociology Health & Illness

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Family carers affected by violent, abusive or harmful behaviour by the older person for whom they care face social and epistemic challenges in developing and sharing knowledge about their experiences. These difficulties have contributed to a situation in which there is a paucity of evidence and public discourse about how we understand violence and harm instigated by people who have care needs or are ‘vulnerable’. This paper reports the findings of a qualitative study that involved 12 in‐depth interviews with female carers affected by violence, abuse or harm. The study was informed theoretically by Miranda Fricker's concept of epistemic injustice which was used as a framework for analysis. There were two principal findings: (1) Carers were sensitive to anticipatory stigma and loss of moral autonomy. As a result, they self‐censured what they shared and, at times, were met with subtle but powerful processes of silencing. (2) Carers had limited linguistic and conceptual resources to explain the emotional and social aspects of the harm they experienced, exacerbated by implicit social norms about the ‘private’ and gendered nature of familial care. To conclude, we discuss the implications of these findings for sociological research and health and social care practice.

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Putting responsive behaviours in place: Examining how formal and informal carers understand the actions of people with dementia

Cited by 28 publications

References 25 publications

Maintaining ordinariness in dementia care

Maintaining ordinariness in dementia care

Aggression and Older Adults: News Media Coverage across Care Settings and Relationships

Female family carers’ experiences of violent, abusive or harmful behaviour by the older person for whom they care: a case of epistemic injustice?

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