Chronic disabling diseases introduce psychosocial challenges and adaptive demands, threatening quality of life. Clinicians and researchers have long recognized the deleterious psychosocial consequences of such conditions. Yet only recently were effective psychological interventions introduced to facilitate coping and adaptation. Whereas earlier approaches emphasized insight, understanding, and tolerance for the vicissitudes of chronic disease (Viederman & Perry, 19801, more recent approaches emphasize active patient involvement and collaborative partnerships with health care providers (Devins & Binik, 1996a; Devins, Cameron, & Edworthy, in press;Lorig et al., 1994). In the present chapter, we review these issues as they relate to multiple sclerosis (MS), a chronic disabling disease of the central nervous system that can compromise physical and intellectual integrity. After decades of research documenting the psychosocial burden imposed by MS, researchers have begun t o emphasize a more proactive orientation to living with and actively managing the symptoms associated with this chronic disabling disease. The goals of these new interventions include minimizing illness-induced lifestyle disruptions (illness intrusiveness), reducing emotional distress, and maximizing quality of life. In this chapter, we provide a brief description of MS and its treatment, review historical developments, describe current assessment and intervention practices, and conclude with a discussion of current issues.
Historical Perspective and Background
Disease ProcessMS is a chronic progressive degenerative neurological disease that produces demyelination (destruction of a neuron's myelin sheath) of central nervous system axons, resulting in delayed or blocked nervous impulses.This work was supported in part by the Medical Research Council of Canada through a Senior Scientist Award and a Fellowship. We would like to express our thanks to Andy Gotowiec for valuable comments and suggestions and t o Astrid Mitchell for extensive help in searching the literature, retrieving reference materials, and in preparing the manuscript.