Psychosocial services in the first 30 days after diagnosis: Results of a web‐based survey of children's oncology group (COG) member institutions

Selove, Rebecca; Kroll, Thilo; Coppes, Max J.; Cheng, Yao I.

doi:10.1002/pbc.23235

Cited by 55 publications

(53 citation statements)

References 34 publications

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“…Most psychosocial pain management interventions are delivered through in-person sessions at large tertiary medical centers. For patients with cancer and pain, there are several barriers to in-person sessions [7]. …”

Section: Introductionmentioning

confidence: 99%

A Small Randomized Controlled Pilot Trial Comparing Mobile and Traditional Pain Coping Skills Training Protocols for Cancer Patients with Pain

Somers

Kelleher

Westbrook

et al. 2016

Pain Research and Treatment

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Psychosocial pain management interventions are efficacious for cancer pain but are underutilized. Recent advances in mobile health (mHealth) technologies provide new opportunities to decrease barriers to access psychosocial pain management interventions. The objective of this study was to gain information about the accessibility and efficacy of mobile pain coping skills training (mPCST) intervention delivered to cancer patients with pain compared to traditional in-person pain coping skills training intervention. This study randomly assigned participants (N = 30) to receive either mobile health pain coping skills training intervention delivered via Skype or traditional pain coping skills training delivered face-to-face (PCST-trad). This pilot trial suggests that mPCST is feasible, presents low burden to patients, may lead to high patient engagement, and appears to be acceptable to patients. Cancer patients with pain in the mPCST group reported decreases in pain severity and physical symptoms as well as increases in self-efficacy for pain management that were comparable to changes in the PCST-trad group (p's < 0.05). These findings suggest that mPCST, which is a highly accessible intervention, may provide benefits similar to an in-person intervention and shows promise for being feasible, acceptable, and engaging to cancer patients with pain.

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Section: Introductionmentioning

confidence: 99%

A Small Randomized Controlled Pilot Trial Comparing Mobile and Traditional Pain Coping Skills Training Protocols for Cancer Patients with Pain

Somers

Kelleher

Westbrook

et al. 2016

Pain Research and Treatment

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“…[10] However, practical constraints (e.g., cost, time-consuming, labor intensive) make it difficult to integrate NPT into routine clinical care of cancer survivors. [11–13] To utilize NPT in a more efficient and effective manner, a user-friendly standardized tool that can facilitate timely referral by identifying children likely developing cognitive decrements is needed. Standardization allows for comparisons of scores over time in a psychometrically sound manner.…”

Section: Introductionmentioning

confidence: 99%

Parent-reported cognitive function is associated with leukoencephalopathy in children with brain tumors

et al. 2017

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Purpose Cognitive dysfunction is a major concern for children with brain tumors. A valid, user-friendly screening tool could facilitate prompt referral for comprehensive neuropsychological assessments and therefore early intervention. Applications of the pediatric perceived cognitive function item bank (pedsPCF) such as computerized adaptive testing can potentially serve as such a tool given its brevity and user-friendly nature. This study aimed to evaluate whether pedsPCF was a valid indicator of cerebral compromise using the criterion of structural brain changes indicated by leukoencephalopathy grades. Methods Data from 99 children (mean age =12.6 years) with brain tumors and their parents were analyzed. Average time since diagnosis was 5.8 years; time since last treatment was 4.3 years. Leukoencephalopathy grade (range: 0–4) was based on white matter damage and degree of deep white matter volume loss shown on MRI. Parents of patients completed the pedsPCF. Scores were based on the US general population-based T-score metric (mean=50; standard deviation=10). Higher scores reflect better function. Results Leukoencephalopathy grade distributions were as follows: 36 grade 0; 27 grade 1; 22 grade 2; 13 grade 3, and 1 grade 4. The mean pedsPCF T-score was 48.3 (SD=8.3; range: 30.5 to 63.7). The pedsPCF scores significantly discriminated patients with different leukoencephalopathy grades, F=4.14, p=0.0084. Effect sizes ranged from 0.09 (grade 0 versus 1) to 1.22 (grade 0 versus 3 / 4). Conclusions This study demonstrates that the pedsPCF is a valid indicator of leukoencephalopathy and provides support for its use as a screening tool for more comprehensive neurocognitive testing.

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“…However, a recent survey of 127 Children’s Oncology Group (COG) institutions indicates that evidence-based psychosocial assessments and interventions were used infrequently and/or inconsistently [42]. In 62.5% of these institutions, more than half of the families are offered these services.…”

Section: Introductionmentioning

confidence: 99%

Screening for psychosocial risk in pediatric cancer

Kazak

Brier

Alderfer

et al. 2012

Pediatric Blood & Cancer

113

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Major professional organizations have called for psychosocial risk screening to identify specific psychosocial needs of children with cancer and their families and facilitate the delivery of appropriate evidence-based care to address these concerns. However, systematic screening of risk factors at diagnosis is rare in pediatric oncology practice. Subsequent to a brief summary of psychosocial risks in pediatric cancer and the rationale for screening, this review identified three screening models and two screening approaches (Distress Thermometer [DT], Psychosocial Assessment Tool [PAT]), among many more papers calling for screening. Implications of broadly implemented screening for all patients across treatment settings are discussed.

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Psychosocial services in the first 30 days after diagnosis: Results of a web‐based survey of children's oncology group (COG) member institutions

Cited by 55 publications

References 34 publications

A Small Randomized Controlled Pilot Trial Comparing Mobile and Traditional Pain Coping Skills Training Protocols for Cancer Patients with Pain

A Small Randomized Controlled Pilot Trial Comparing Mobile and Traditional Pain Coping Skills Training Protocols for Cancer Patients with Pain

Parent-reported cognitive function is associated with leukoencephalopathy in children with brain tumors

Screening for psychosocial risk in pediatric cancer

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