Psychosocial outcomes in cancer‐bereaved children and adolescents: A systematic review

Hoffmann, Rahel; Kaiser, Jocelyn; Kersting, Anette

doi:10.1002/pon.4863

Cited by 20 publications

(19 citation statements)

References 72 publications

(382 reference statements)

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“…If the index of discriminating power, which is related to variance and score distribution gets higher than 90%, the scale will be good. The obtained coefficients in the CBCL form were at the highest level (17).…”

Section: Child Behavior Checklist (Cbcl)mentioning

confidence: 88%

Psychological Problems in Boys with Acute Myeloid Leukemia (AML) with Central Nervous System (CNS) Involvement; A Descriptive Study

Firoozi

Rouhi

2020

Int J Cancer Manag

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Background: Children with acute myeloid leukemia (AML) experience some limitations and complications because of their illness and treatment process from the onset of the diagnosis. They are also prone to some psychological problems. In previous studies, cognitive impairments were considered more than emotional and behavioral dysfunction. Objectives: This study aims at determining the impact of AML on the emotional/behavioral problems and executive functions of children compared to their healthy peers. Methods: This case-control research was performed on 58 children with AML and central nervous system involvement with 58 healthy cases as a control group, who were between 7 and 12 years old in Mahak Hospital of Tehran, Iran. The sample size was estimated based on Morgan's table. The child behavior checklist was used to identify emotional/behavioral problems. The Mann-Whitney test was applied for the data analysis. Results: The results showed that children with AML obtained lower scores in social function (P < 0.001), activities (P < 0.05), aggressive behavior (P < 0.001), and rule-breaking behavior (P < 0.001), but there was no significant difference in post-traumatic stress disorder, emotional problems, general competence, general problems, and anxious/depressed behaviors. Also, compared with the control group, they obtained higher scores in attention problems (P < 0.001), thought problems (P < 0.05), social problems (P < 0.001), somatic complaints (P < 0.001), and withdrawn/depressed behaviors (P < 0.001). Conclusions: The results indicate that some factors associated with illness (such as anemia, hormone dysregulation, and immune system deficit) and treatment (chemotherapy) caused some behavioral, emotional, and cognitive problems in these children.

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Section: Child Behavior Checklist (Cbcl)mentioning

confidence: 88%

Psychological Problems in Boys with Acute Myeloid Leukemia (AML) with Central Nervous System (CNS) Involvement; A Descriptive Study

Firoozi

Rouhi

2020

Int J Cancer Manag

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“…Most studies in the field of grief and bereavement have been conducted with children/adolescents or adults [39][40][41], and little is known of how university students have experienced grief and personal growth. This study aimed to address this gap and intended to explore the detrimental effects of loss amongst university students, as well as how students may have experienced personal growth after the loss during this time in life.…”

Section: Aimsmentioning

confidence: 99%

The Experiences of Grief and Personal Growth in University Students: A Qualitative Study

Tan

Andriessen

2021

IJERPH

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Background: Experiencing the death of a close person, especially in emerging adults and students, can have profound effects on the bereaved individual’s life. As most research in this field has focused on negative effects of a loss, little is known about potential positive effects experienced by bereaved university students. This study investigated the experience of grief and personal growth in a sample of students from The University of Melbourne, Australia. Methods: Semi-structured interviews via Zoom/telephone with bereaved students (n = 14), who were invited to reflect on their loss and any personal growth potentially experienced. Thematic analysis of the data was based on a deductive and inductive approach. Results: The analysis identified four themes: (i) sharing of grief as a coping mechanism, (ii) balance between grief reactions and moving forward in life, (iii) lessons learned and personal growth, and (iv) adopting values from the deceased person and continuing bonds. Conclusions: Participants emphasized personal growth regarding self-perception and philosophical views on life. Following the loss, they preferred peer support, and used formal services only when they had a specific need. The findings indicate the importance of social support for bereaved students, and the complimentary role of peer and professional support. Hence, academic institutions should offer supportive services tailored to both students and professionals to help bereaved students.

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“…Regarding cancer bereavement specifically, a systematic review of the child and AYA sibling and offspring literature in this area was recently conducted by Hoffmann, Kaiser, and Kersting [11]. They found that adolescents in particular tend to have a greater vulnerability to behavioural problems and depression/anxiety symptoms in comparison to children and young adults.…”

Section: Ayas and Cancer Bereavementmentioning

confidence: 99%

“…They found that adolescents in particular tend to have a greater vulnerability to behavioural problems and depression/anxiety symptoms in comparison to children and young adults. This is potentially due to adolescents having a greater depth of understanding of the consequences and complexities of death and loss than children [11], but having poorer social and emotional skills to cope with the loss than young adults [12]. Furthermore, Hoffmann et al [11] reported unresolved grief in approximately 50% of cancer bereaved AYAs two to nine years after the death, and heightened risk of self-injury in young adults who had a parent die of cancer during their teenage years compared with their nonbereaved peers.…”

Section: Ayas and Cancer Bereavementmentioning

confidence: 99%

Development and evaluation of the Good Grief program for young people bereaved by familial cancer

et al. 2021

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Background Adolescents and young adults (AYAs) bereaved by the death of a parent or sibling from cancer report unique psychosocial needs and can have difficulty adjusting to their loss. Unaddressed, this can result in poor long-term bereavement outcomes. This paper describes the development and evaluation of Good Grief – a 3-day camp-based program focused on meeting coping, social support, and respite needs of AYAs bereaved by familial cancer. Methods One hundred and nine Australian AYAs (68% female; age: 12–25 years, M = 16.63) participated in the evaluation. Grief intensity (Texas Revised Inventory of Grief), meaning-making (Grief and Meaning Reconstruction Inventory), trauma coping (Perceived Ability to Cope with Trauma Scale) and unmet needs (Bereaved Cancer Needs Instrument) measures were administered pre-program and 3-months post-program. Acceptability was measured after each session and at the program’s conclusion. Appropriateness was measured at 3-month follow-up. Thirteen participants were interviewed three months post-program on their perceptions of the program. Results Participants reported high program satisfaction, engagement with psychosocial sessions, and enjoyment of recreational activities. Significant improvements were observed in trauma coping abilities and reductions in unmet needs for managing emotions, social support, respite, future planning, and accessing information and support domains. No change was evident in grief intensity or meaning-making as measured quantitatively. Interviews supported these quantitative findings but also identified evidence of personal growth, a component of meaning-making. Conclusions Good Grief is a highly acceptable and beneficial intervention that addresses the unique needs of AYAs bereaved by familial cancer.

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Psychosocial outcomes in cancer‐bereaved children and adolescents: A systematic review

Cited by 20 publications

References 72 publications

Psychological Problems in Boys with Acute Myeloid Leukemia (AML) with Central Nervous System (CNS) Involvement; A Descriptive Study

Psychological Problems in Boys with Acute Myeloid Leukemia (AML) with Central Nervous System (CNS) Involvement; A Descriptive Study

The Experiences of Grief and Personal Growth in University Students: A Qualitative Study

Development and evaluation of the Good Grief program for young people bereaved by familial cancer

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