Psychosocial consequences of transitioning into informal caregiving in male and female caregivers: Findings from a population-based panel study

Zwar, Larissa; König, Hans‐Helmut; Hajek, André

doi:10.1016/j.socscimed.2020.113281

Cited by 50 publications

(58 citation statements)

References 63 publications

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“…The number of people aged between 40 to 85 providing informal care is estimated between 3.0 to 5.2 million people [9]. Although most informal caregivers are motivated by an emotional relationship [10], the task might be linked to physical and psychosocial strain, which may lead to depressive symptoms or reduced quality of life but might also link to potential positive health effects [11][12][13]. Although there is a small body of literature on the detrimental effects of the pandemic for informal caregivers in long-term care, for instance in the U.S. [14][15][16], in Italy [17], in the Netherlands [18], and in the UK [19] the literature is not yet comprehensive.…”

Section: Introductionmentioning

confidence: 99%

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Budnick

Hering

Eggert

et al. 2021

BMC Health Serv Res

109

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Background While the relation between care involvement of informal caregivers and caregiver burden is well-known, the additional psychosocial burden related to care involvement during the COVID-19 pandemic has not yet been investigated. Methods A total of 1000 informal caregivers, recruited offline, participated in a cross-sectional online survey from April 21 to May 2, 2020. Questionnaires were used to assess COVID-19-specific changes in the care situation, negative feelings in the care situation, problems with implementation of COVID-19 measures, concerns/excessive demands, loss of support, change in informal caregivers’ own involvement in care and problems with provision, comprehension & practicability of COVID-19 information, and to relate these issues to five indicators of care involvement (i.e., being the main caregiver, high expenditure of time, high level of care, dementia, no professional help). Binomial and multiple regression analyses were applied. Results Across indicators of care involvement, 25.5–39.7% reported that the care situation rather or greatly worsened during the COVID-19 pandemic, especially for those caring for someone with dementia or those usually relying on professional help. In a multiple regression model, the mean number of involvement indicators met was associated with age (β = .18; CI .10–.25), excessive demands (β = .10, CI .00–.19), problems with implementation of COVID-19 measures (β = .11, CI .04–.19), an increase in caregiving by the informal caregivers themselves (β = .14, CI .03–.24) as well as with no change in the amount of caregiving (β = .18, CI .07–.29) and loss of support (β = −.08, CI −.16–.00). No significant associations with the mean number of involvement indicators met were found for gender, educational level, change in the care situation, negative feelings, and provision, comprehension & practicability of COVID-19 information. Conclusion Those caregivers who perceived extensive care burden were those who suffered most during the pandemic, calling for structural support by the healthcare system now and in the future. Trial registration This article does not report the results of a health care intervention on human participants.

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Section: Introductionmentioning

confidence: 99%

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Budnick

Hering

Eggert

et al. 2021

BMC Health Serv Res

109

View full text Add to dashboard Cite

show abstract

“…The number of people aged between 40 to 85 providing informal care is estimated between 3.0 to 5.2 million people [9]. Although most informal caregivers are motivated by an emotional relationship [10], the task might be linked to physical and psychosocial strain, which may lead to depressive symptoms or reduced quality of life but might also link to potential positive health effects [11][12][13]. Although there is a small body of literature on the detrimental effects of the pandemic for informal caregivers in longterm care, for instance in the U.S. [14][15][16], in Italy [17], and in the Netherlands [18,19], the literature is not yet comprehensive.…”

Section: Introductionmentioning

confidence: 99%

Informal Caregivers During the COVID-19 Pandemic Perceive Additional Burden: Findings From an Ad-hoc Survey in Germany

Budnick

Hering

Eggert

et al. 2021

Preprint

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Background: While the relation between care involvement of informal caregivers and caregiver burden is well-known, the additional burden of informal caregivers during the COVID-19 pandemic has not yet been investigated.Methods: A total of 1,000 informal caregivers, recruited offline, participated in a cross-sectional online survey from April 21 to May 2, 2020. Questionnaires were used to assess COVID-19-specific changes in the care situation, negative feelings in the care situation, problems with implementation of COVID-19 measures, concerns/excessive demands, loss of support, change in informal caregivers’ own involvement in care and problems with provision, comprehension & practicability of COVID-19 information, and to relate these issues to five indicators of care involvement (i.e., being the main caregiver, high expenditure of time, high level of care, dementia, no professional help). Binomial and multiple regression analyses were applied.Results: Across indicators of care involvement, 25.5-39.7% reported that the care situation rather or greatly worsened during the COVID-19 pandemic, especially for those caring for someone with dementia or those usually relying on professional help. In a multiple regression model, the mean number of involvement indicators met was associated with age (β = .18; CI .10-.25), excessive demands (β = .10, CI .00-.19), problems with implementation of COVID-19 measures (β = .11, CI .04-.19), an increase in caregiving by the informal caregivers themselves (β = .14, CI .03-.24) as well as with no change in the amount of caregiving (β = .18, CI .07-.29) and loss of support (β = -.08, CI -.16-.00). No significant associations with the mean number of involvement indicators met were found for gender, educational level, change in the care situation, negative feelings, and provision, comprehension & practicability of COVID-19 information.Conclusion: Those caregivers who perceived extensive care burden were those who suffered most during the pandemic, calling for structural support by the healthcare system now and in the future.Trial registration: This article does not report the results of a health care intervention on human participants.

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“…Insgesamt ist die physische und insbesondere psychische Belastungssituation pflegender Angehöriger vor der aktuellen Coronavirus-Pandemie gut untersucht (Wetzstein et al 2015;Nowossadeck et al 2016;Zwar et al 2020). Erste Befunde weisen auch auf die 4 besondere Belastung von pflegenden Angehörigen gerade während der ersten Phase der Pandemie hin Budnick et al 2020).…”

Section: Herausforderungen Für Erwerbstätige Pflegende Angehörigeunclassified

Vereinbarkeit von Pflege und Beruf: generelle und aktuelle Herausforderungen Betroffener

et al. 2021

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ZusammenfassungDas Thema Vereinbarkeit von Beruf und Pflege ist in Deutschland gesellschaftlich relevant und nimmt zukünftig weiter an Bedeutung zu. Schon heute sind zwei von drei pflegenden Angehörigen unter 65 Jahren erwerbstätig. Arbeitnehmende, die privat Pflegeaufgaben übernehmen, stehen oft vor erheblichen Herausforderungen und drohen überdies dem Arbeitsmarkt teilweise oder vollständig entzogen zu werden. Gleichzeitig sind pflegende Angehörige die Basis der pflegerischen Versorgung im Sinne des SGB XI in Deutschland.Vereinbarkeitskonflikte werden in der Forschung als bedeutsame Stressoren für erwerbstätige pflegende Angehörige gesehen, positive Arbeitssituationen dagegen als mindestens etwas entlastend eingeschätzt. Erschwerend für die Vereinbarkeitsbemühungen wirkt sich u. a. aus, wenn die Pflegekonstellation mit einer Demenzerkrankung verbunden ist. Die Unterstützungsbemühungen von Unternehmen und Politik für erwerbstätige pflegende Angehörige haben sich in den vergangenen Jahren intensiviert, erscheinen aber nach wie vor verbesserungsbedürftig.In der aktuellen Coronavirus-Pandemie hat sich die Situation für viele pflegende Angehörige insgesamt verschärft. So zeigen die Ergebnisse der vorliegenden ZQP-Befragung, dass erwerbstätige Angehörige signifikant häufiger von einer Verschlechterung der Pflegesituation in der ersten Infektionswelle im Vergleich mit nicht-erwerbstätigen berichten. Ein Großteil der Befragten gibt an, dass die Vereinbarkeit von Pflege und Beruf nun noch schwieriger geworden sei.

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Psychosocial consequences of transitioning into informal caregiving in male and female caregivers: Findings from a population-based panel study

Cited by 50 publications

References 63 publications

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany

Informal Caregivers During the COVID-19 Pandemic Perceive Additional Burden: Findings From an Ad-hoc Survey in Germany

Vereinbarkeit von Pflege und Beruf: generelle und aktuelle Herausforderungen Betroffener

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