Psychosocial adjustment to multiple sclerosis diagnosis: A meta-review of systematic reviews

Topcu, Gogem; Griffiths, H P; C, Bale; Trigg, Emma; Clarke, Sara; Potter, Kristy-Jane; Mhizha-Murira, Jacqueline R; Drummond, Avril; Evangelou, Nikos; Fitzsimmons, Deborah; Nair, Roshan das

doi:10.1016/j.cpr.2020.101923

Cited by 35 publications

(41 citation statements)

References 47 publications

(143 reference statements)

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“…It is therefore important that people with MS receive the appropriate psychological support to deal with these psychological difficulties (Davis et al, 2021). Psychological support has been divided into different components: emotional support (such as comforting, listening and being available for them; Koopman et al, 2006), information provision (Topcu et al, 2020;While et al, 2009) and concrete support (making practical care arrangements; Harrison and Stuifbergen, 2002). With this in mind, it might be expected that different sources and types of support might be more or less appropriate for providing the different components of psychological support (Machin & Stevenson, 1997).…”

Section: Introductionmentioning

confidence: 99%

“…Although psychological interventions for pwMS are usually delivered by mental health professionals, there are inconsistencies between the patient and health care providers in understanding who should be the one to provide or refer for additional mental health care creating a barrier to accessing crucial services in pwMS (While et al, 2009;Methley et al, 2016). This has frequently been cited as a problem, particularly in the earlier stages of the MS diagnosis when such services are reportedly more in demand (Topcu et al, 2020). However, when accessed, services have provided some success, but with the heterogeneity between intervention design and participant characteristics, results remain somewhat inconclusive (Thomas et al, 2006).…”

Section: Introductionmentioning

confidence: 99%

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Uncovering patterns of real-world psychological support seeking and the patient experience in multiple sclerosis

Morris-Bankole

2022

Multiple Sclerosis and Related Disorders

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Uncovering patterns of real-world psychological support seeking and the patient experience in multiple sclerosis

Morris-Bankole

2022

Multiple Sclerosis and Related Disorders

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“…*Adjusted for variables and cross-level interactions included in Table 4 example, clinicians could screen for and address problems such as pain, depression, anxiety, and social support, as improvements in these may lead to improvements in QOL [11]. As highlighted in a recent review, however, there is a gap in empirically supported interventions specifically targeting these concerns in individuals newly diagnosed with MS [31].…”

Section: Discussionmentioning

confidence: 99%

Quality of life in individuals newly diagnosed with multiple sclerosis or clinically isolated syndrome

et al. 2021

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Background Little is known about quality of life (QOL) at the time of multiple sclerosis (MS) or clinically isolated syndrome (CIS) diagnosis and how it evolves in the critical adjustment period immediately following a new diagnosis. Objectives To (1) describe QOL trajectory in the first year post-MS/CIS diagnosis and (2) examine associations of demographic and biopsychosocial factors with QOL at baseline and as it evolves over the first year post-MS/CIS diagnosis. Methods Participants were N = 250 individuals newly diagnosed with MS or CIS. Participants completed self-report assessments of QOL, demographics, and biopsychosocial factors at 1, 2, 3, 6, 9, and 12 months post-diagnosis using validated measures.Results At 1-month post-diagnosis, QOL M = 75.2/100 with subsequent assessments revealing consistent ratings on average. Modelling revealed a small number of variables that were predictive of QOL at baseline and/or change in QOL over time. Conclusion QOL in the first year post-MS/CIS diagnosis was, on average, high and stable. A subset of modifiable factors across the biopsychosocial spectrum was associated with baseline level of QOL and change in QOL over time. The stability in QOL suggests that patients can be assessed early after diagnosis for key variables that are predictive of both current and future QOL.

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“…They also point to greater emotional stability as an agent responsible for the significant increase in QoL after the intervention. 28,31,32 The analysis of the general quality of life allows the identification of a pattern of the results found, considering that the improvement in quality of life is seen in all articles analyzed in this research. 6,9,10,14 The literature reaffirms this evidenced homogeneity.…”

Section: Discussionmentioning

confidence: 99%

Analysis of the Impact of Mindfulness on Quality of Life in Patients With Multiple Sclerosis: Systematic Review

Fedeger¹,

Pedri²,

Mello³

et al. 2021

int.jour.sci.res.mana.

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This study aimed to investigate the impact of the mindfulness-based interventions program on the quality of life of patients with Multiple Sclerosis. A systematic review was carried out based on the PRISMA guidelines (Preferred Reporting Items for Systematic Reviews and Meta-Analyzes). For an updated perspective on the topic, the selected articles were published from March 2014 to March 2019. Thus, 10 articles were included in the review and were thoroughly compared. A detailed assessment was carried out to measure the impact of the mindfulness protocol both on the general quality of life and on its specific domains. It can be observed that there is some homogeneity of the results regarding the benefits of the practice of mindfulness in the patients’ general quality of life. Moreover, there was greater evidence of the effects of meditative practice on the psychological domain when compared to the physical domain. Hence, the present study considers the mindfulness program a viable tool to address quality of life in patients with Multiple Sclerosis. The lack of Brazilian studies in the area is highlighted. Also, further studies to evaluate the practice of mindfulness continuously, such as cohort studies, are necessary to elucidate the long-term effects of the protocol.

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Psychosocial adjustment to multiple sclerosis diagnosis: A meta-review of systematic reviews

Cited by 35 publications

References 47 publications

Uncovering patterns of real-world psychological support seeking and the patient experience in multiple sclerosis

Uncovering patterns of real-world psychological support seeking and the patient experience in multiple sclerosis

Quality of life in individuals newly diagnosed with multiple sclerosis or clinically isolated syndrome

Analysis of the Impact of Mindfulness on Quality of Life in Patients With Multiple Sclerosis: Systematic Review

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