Psychosocial Adjustment of Children With Spina Bifida

Zurmohle, Uwe-Martin; Homann, Thomas; Schroeter, Christiane; Rothgerber, Hans; Hommel, Gerhard; Ermert, J. A.

doi:10.1177/088307389801300204

Cited by 37 publications

(21 citation statements)

References 11 publications

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“…In the United States, anencephaly and spina bífida are the most commonly described CNS malformations, affecting 1:1000 gestations, and more than 300,000 patients worldwide 10 . Both spina bífida and anencephaly are significant causes of infant and fetal deaths 16 . Children with anencephaly usually die at birth or with a few hours of life.…”

Section: Discussionmentioning

confidence: 99%

Neurological congenital malformations in a tertiary hospital in south Brazil

Guardiola¹,

Koltermann²,

Aguiar³

et al. 2009

Arq. Neuro-Psiquiatr.

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-Background: Congenital anomalies are one of the main causes of morbidity and mortality among infants. The involvement of the central nervous system (CNS) occurs in 21% of cases. Objective: To identify incidence of CNS malformations and associated factors in newborns at a Terciary Hospital of Porto Alegre. Method: Case-control study conducted between 2000 and 2005 based on the Latin American Collaborative Study of Congenital Malformations database. Results: Among 26,588 births registered in this period, 3.67% presented with malformations (IC=95%; 3.44-3.9), being 0.36% of the CNS (IC=95%,(0.29-0.43)). The most common CNS malformation was meningomielocele (10.4%). Young maternal age (p=0.005); low birth weight (p=0.015); large cephalic perimeter (p=0.003); post term birth (p=0.000) and low APGAR indexes at the 1 st and 5 th minutes were associated with CNS malformations. Conclusion: We found an incidence of CNS malformations similar as compared to literature.KeY WoRdS: neurological malformations, neural tube defects, risk factors, congenital malformations. Malformações neurológicas congênitas observadas em hopsital terciário no sul do Brasilresumo -Anomalias congênitas são umas das principais causas de morbimortalidade infantil. o sistema nervoso central (SNC) é acometido em 21% dos casos. Objetivo: Identificar a incidência e fatores associados a malformações do SNC em recém nascidos na maternidade de um hospital terciário de Porto Alegre. Método: estudo controle realizado de janeiro de 2000 a dezembro de 2005, baseado no banco de dados do estudo Colaborativo Latino Americano de Malformações Congênitas. Resultados: dos 26.588 nascimentos, 3,67% apresentaram malformação (IC=95%; 3,44-3,9), com 0,36% do SNC (IC=95%, (0,29-0,43)). A malformação do SNC mais comum foi hidrocefalia (10,9%). Menor idade materna (p=0,005); menor peso ao nascimento (p=0,015), maior perímetro cefálico (p=0,003); nascimentos pré-termo (p=0,000) e menores índice APGAR no 1 o e 5 o minutos (p<0,000) apresentaram associação com malformações do SNC. Conclusão: Foi encontrada incidência similar de malformações do SNC comparada à literatura.PALAvRAS-CHAve: malformações neurológicas, defeitos tubo neural, pé torto, fatores de risco.

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Section: Discussionmentioning

confidence: 99%

Neurological congenital malformations in a tertiary hospital in south Brazil

Guardiola¹,

Koltermann²,

Aguiar³

et al. 2009

Arq. Neuro-Psiquiatr.

View full text Add to dashboard Cite

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“…Yude and Goodman (1999) reported that children with physical disabilities were more likely to be rejected, isolated, and victimised by other children without disabilities, even when the physical disabilities were mild. Zurmohle et al (1998) also found children with physical disabilities (spina bifida) were at increased risk of poor social adjustment. Coster and Haltiwanger (2004) found that a substantial proportion of children with physical disabilities who were educated in general classrooms had below-expected levels of social skills.…”

Section: Introductionmentioning

confidence: 93%

The Role of Family in the Development of Social Skills in Children with Physical Disabilities

Bennett

Hay

2007

International Journal of Disability, Development and Education

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This study aims to identify the family characteristics that promote the development of social skills in children with physical disabilities. Parents and teachers completed a range of questionnaires in an Australia-wide study of 212 parents of children (5-12 years of age) with physical disabilities who attend mainstream schools. The relationships between parental attitudes, parental involvement, family relationships, teachers' opinions, disability severity, and children's social skills were tested using structural equation modelling. The results of this study show the importance of family characteristics for the development of social skills in children with physical disabilities. A strong link was found between aspects of healthy family relationships, especially high levels of parental involvement with schooling, and greater social skills development in children. In short, families with highly cohesive, idealised, and democratic family styles strongly influence children's social skills by providing a safe and sound foundation for children to explore their social environment. Practical implications arising from this study are discussed.

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“…Neurological severity indices of SB, such as level of lesion, shunted hydrocephalus, shunt infections, shunt revisions, and presence of epilepsy are important predictors of adaptation outcomes (Barf et al, 2003;Bergsten & Lagergren, 1990;Duquette, 1997;Fletcher et al, 2005;Iddon et al, 2004;Kim, 1991;Larsson, 1995;Matson et al, 2005;Pless, 1984;Shurtleff, 2000;Wallander & Thompson, 1995;Wallander & Varni, 1995;Wolman et al, 1994;Zurmohle et al, 1998). Level of lesion affects the quality and severity of motor and sensory impairment (Galli et al, 2002).…”

Section: Risk Factors For Poor Adaptationmentioning

confidence: 99%

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

Heffelfinger

Koop

Fastenau

et al. 2008

J Int Neuropsychol Soc

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Adolescents with spina bifida (SB) vary in their ability to adapt to the disease, and it is likely that numerous risk and protective factors affect adaptation outcomes. The primary aim was to test neuropsychological impairment, exemplified herein by executive dysfunction, as a risk factor in the Ecological Model of Adaptation for Adolescents with SB. Specific hypotheses were that: (1) executive functioning predicts the adaptation outcome of functional independence in adolescents with SB; (2) executive functioning mediates the impact of neurological severity on functional independence; and (3) family and adolescent protective factors are related to functional independence and moderate the relationship between executive functioning and functional independence. Forty-three adolescents aged 12-21 years completed neuropsychological measures and an interview that assessed risk, adolescent and family protective factors, and functional independence. Age, level of lesion, executive functioning, and the protective factor adolescent activities were significantly correlated with the functional independence outcome. In hierarchical regression analysis, the model accounted for 61% of the variance in functional independence outcomes. Executive functioning mediated the impact of neurological severity on functional independence. (JINS, 2008, 14, 793-804.)

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Psychosocial Adjustment of Children With Spina Bifida

Cited by 37 publications

References 11 publications

Neurological congenital malformations in a tertiary hospital in south Brazil

Neurological congenital malformations in a tertiary hospital in south Brazil

The Role of Family in the Development of Social Skills in Children with Physical Disabilities

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

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