Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

Abstract

Egeler, R. M. (2010). Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psycho-oncology, 19(4), 368-375. DOI: 10.1002/pon.1571 Copyright Other than for strictly personal use, it is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license (like Creative Commons).Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. AbstractObjectives: Diagnosis and treatment of childhood cancer are continuous stressors in the lives of the entire family involved. Disease-related tools for the assessment of parental stress and adaptation are scarce. For that reason, the Pediatric Inventory for Parents (PIP), a diseaserelated measure, was translated into Dutch and its psychometric qualities were determined to prove its value. Methods: The PIP and three other measures (State-Trait Anxiety Inventory, General Health Questionnaire and Parenting Stress Index, Short Form) were administered to 174 parents of 107 children diagnosed with cancer in three university medical centers in the Netherlands.Results: Internal consistency (Crohnbach's a 5 0.94 and 0.95) and test-retest reliability (Pearson's r between 0.67 and 0.87) of the Dutch PIP total scales are satisfactory. Validity was illustrated by a high correlation between PIP-scores and anxiety and general stress. Confirmatory factor analysis showed acceptable fit to the data for the original four-factor and the one-factor models; the four-factor model showed slightly better fit.Conclusion: The PIP can be used in clinical practice to assess disease-related parental stress. Further psychometric testing is highly recommended.

Stress related to care: the impact of childhood cancer on the lives of parents

“…The results of this study show that the profile of respondents was similar to studies involving caregivers and children with cancer, regarding the caregivers' mean age (36 years) (11) and the mean age of the children (9.5 years) (5,18) . The most frequent diagnosis among children was acute lymphoblastic leukemia, in agreement with the Brazilian statistics, followed by retinoblastoma, which contradicts national data in which the second most common neoplasm in children are lymphomas (1,23) .…”

Parental stress and perceived vulnerability at 5 and 10 years after pediatric SCT

“…Parental stress and perceived vulnerability compared with reference groups Disease-related stress in mothers and fathers, 5 years after SCT, was comparable with stress reported by parents of children just off treatment for cancer 17 (fathers, t ¼ 1.73, P40.05; mothers, t ¼ 0.90, P40.05). Parents 10 years after SCT reported significantly lower disease-related stress levels than parents in the reference group (fathers, t ¼ 3.62, Po0.01; mothers, t ¼ 3.20, Po0.01).…”

“…Independent t-tests were used to compare disease-related stress with available data from the subgroup of parents of children who were off cancer treatment (N ¼ 35). 17 To determine whether the percentage of fathers and mothers scoring above a cutoff score differed significantly from the percentage of people in the reference group, we used a one-sample chi-square test with the Yates correction for continuity. Independent t-tests were performed to compare the two study groups with regard to general and disease-related stress and perceived vulnerability and chi-square tests were used to compare the groups with regard to percentages above the cutoff point.…”

“…Adequate internal consistency (a ¼ 0.80-96) and construct validity of the original and translated version of the PIP have been reported and PIP total scores have been found to correlate significantly with a general measure of state anxiety and parenting stress. 16,17 The original reference group of the PIP consisted of 139 parents whose child was still on treatment for cancer and 35 parents (20 mothers, 15 fathers) of children who had recently completed cancer treatment. We decided to use this latter subgroup of parents for comparison with our sample.…”

Effect and Process Evaluation of e-Powered Parents, a Web-Based Support Program for Parents of Children With a Chronic Kidney Disease: Feasibility Randomized Controlled Trial (Preprint)

“…2) Pediatric related parental stress, was measured using the validated Dutch version [20] a) Recruitment consists of the procedures used to approach, attract and maintain parents, the number of parents who agreed to participate in the study, and of the experienced barriers and reasons for nonparticipation [14,16,26]. In Excel, parents who wanted to participate were registered.…”