Psychological responses to prenatal NTS counseling and the uptake of invasive testing in women of advanced maternal age

Kaiser, Amy; Ferris, Lorraine E.; Katz, Randy; Pastuszak, Anne; Llewellyn‐Thomas, Hilary A.; Johnson, Jo‐Ann; Shaw, Brian F.

doi:10.1016/s0738-3991(03)00190-3

Cited by 24 publications

(33 citation statements)

References 27 publications

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“…Indeed, the results seem to suggest that the provision of such information is positively related to risk perception accuracy. While this implication may seem redundant as it repeats the earlier recommendations by the NSGC Task Force, we nonetheless repeat it here since several studies in this review did not mention communicating this information to the counselee (Codori et al 2005;Kaiser et al 2004;Kent et al 2000;Rothemund et al 2001).…”

Section: Discussionmentioning

confidence: 68%

“…In contrast, the studies that did not mention giving counselees this information observed no significant improvement of risk perception accuracy as a result of genetic counseling (Codori et al 2005;Kent et al 2000;Rothemund et al 2001), with the exception of one study (Kaiser et al 2004).…”

Section: Risk Perception Accuracymentioning

confidence: 74%

“…Although judging whether counselors "facilitated decision making an adaptation to personal risk" is difficult, we did observe six studies claiming to advise counselees on surveillance (Bjorvatn et al 2007;Kaiser et al 2004;Rimes et al 2006;Rothemund et al 2001;Tercyak et al 2001), which may be regarded as facilitating informed decisions.…”

Section: Content Of the Counseling Sessionmentioning

confidence: 86%

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A Systematic Review of the Impact of Genetic Counseling on Risk Perception Accuracy

Smerecnik

Mesters

Verweij

et al. 2009

Journal of Genetic Counseling

102

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This review presents an overview of the impact of genetic counseling on risk perception accuracy in papers published between January 2000 and February 2007. The results suggest that genetic counseling may have a positive impact on risk perception accuracy, though some studies observed no impact at all, or only for low-risk participants. Several implications for future research can be deduced. First, future researchers should link risk perception changes to objective risk estimates, define risk perception accuracy as the correct counseled risk estimate, and report both the proportion of individuals who correctly estimate their risk and the average overestimation of the risk. Second, as the descriptions of the counseling sessions were generally poor, future research should include more detailed description of these sessions and link their content to risk perception outcomes to allow interpretation of the results. Finally, the effect of genetic counseling should be examined for a wider variety of hereditary conditions. Genetic counselors should provide the necessary context in which counselees can understand risk information, use both verbal and numerical risk estimates to communicate personal risk information, and use visual aids when communicating numerical risk information.

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Section: Discussionmentioning

confidence: 68%

Section: Risk Perception Accuracymentioning

confidence: 74%

Section: Content Of the Counseling Sessionmentioning

confidence: 86%

See 1 more Smart Citation

A Systematic Review of the Impact of Genetic Counseling on Risk Perception Accuracy

Smerecnik

Mesters

Verweij

et al. 2009

Journal of Genetic Counseling

102

View full text Add to dashboard Cite

show abstract

“…Four papers included data collected in the United States (US) (Marini et al, 2002;Baker et al, 2004;Kuppermann et al, 2006;Nakata et al, 2010), one from South Africa (Urban et al, 2011), two from Canada (Humphreys et al, 2003;Kaiser et al, 2004), one from China (Lo et al, 2010), one from Portugal (Nazaré et al, 2011), one from Italy (Vergani et al, 2002) and one from Israel (Muhsen et al, 2010). In seven papers, the participants were solely women (Baker et al, 2004;Kaiser et al, 2004;Kuppermann et al, 2006;Lo et al, 2010;Nakata et al, 2010;Urban et al, 2011;Vergani et al, 2002), whereas Nazaré et al (2011) andHumphreys et al (2003) included women and their partners (in the remaining two papers counselling was not mentioned). The number of participants ranged from 123 (Kaiser et al, 2004) to 163,756 (Nakata et al, 2010).…”

Section: Study Characteristicsmentioning

confidence: 99%

“…In seven papers, the participants were solely women (Baker et al, 2004;Kaiser et al, 2004;Kuppermann et al, 2006;Lo et al, 2010;Nakata et al, 2010;Urban et al, 2011;Vergani et al, 2002), whereas Nazaré et al (2011) andHumphreys et al (2003) included women and their partners (in the remaining two papers counselling was not mentioned). The number of participants ranged from 123 (Kaiser et al, 2004) to 163,756 (Nakata et al, 2010).…”

Section: Study Characteristicsmentioning

confidence: 99%