Psychological Impact of Repair Surgery in Cleft Lip and Palate

Fletcher,

doi:10.4021/ijcp39w

Cited by 3 publications

(8 citation statements)

References 30 publications

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“…Surgery is a major factor influencing QoL in the early stages of CLP 33 34 . In an earlier study 34 , in which 175 sets of parents were interviewed, both mothers and fathers placed repair of the cleft as an important concern in OFC management. Surgery was seen as the solution to the cleft, as parents showed prospective feelings of ‘everything being well’ following surgery 34 .…”

Section: Discussionmentioning

confidence: 99%

“…In an earlier study 34 , in which 175 sets of parents were interviewed, both mothers and fathers placed repair of the cleft as an important concern in OFC management. Surgery was seen as the solution to the cleft, as parents showed prospective feelings of ‘everything being well’ following surgery 34 . Surgery is also a source of significant concern for parents, especially as the date of surgery approaches 35 .…”

Section: Discussionmentioning

confidence: 99%

“…Surgery is also a source of significant concern for parents, especially as the date of surgery approaches 35 . Worries related to the procedure have included timing of the procedure, duration and recovery, side effects, the care involved, whether additional tissue was required for the repair, techniques used, outcomes of surgery, and pain 34 36 .…”

Section: Discussionmentioning

confidence: 99%

“…This drastic change in QoL of parents following surgical intervention might be associated with relief of the enormous amount of physical, financial, psychological, and emotional stress associated with caring for children with OFC. An earlier study reported that both mothers and fathers placed repair of the cleft as an important concern after receiving the diagnosis 34 . Before surgery, the total impact was highest in families having children with bilateral cleft lip; after surgery, the families having children with isolated cleft palate reported the highest impact.…”

Section: Discussionmentioning

confidence: 99%

“…Change in appearance as a result of OFC can also affect the bonding relationship between parent and child. Early attachment is reported to be a reciprocal process, relying on the reactions between a primary care giver and the baby 34 . Before surgical intervention, 95.7% of the families in this study reported that caring for their cleft child negatively impacted their social life.…”

Section: Discussionmentioning

confidence: 99%

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A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment

Emeka

Adeyemo

Ladeinde

et al. 2017

J Korean Assoc Oral Maxillofac Surg

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ObjectivesThe aim of this study was to compare the quality of life (QoL) of parents/caregivers of children with cleft lip and/or palate before and after surgical repair of an orofacial cleft.Materials and MethodsFamilies of subjects who required either primary or secondary orofacial cleft repair who satisfied the inclusion criteria were recruited. A preoperative and postoperative health-related QoL questionnaire, the ‘Impact on Family Scale’ (IOFS), was applied in order to detect the subjectively perceived QoL in the affected family before and after surgical intervention. The mean pre- and postoperative total scores were compared using paired t-test. Pre- and postoperative mean scores were also compared across the 5 domains of the IOFS.ResultsThe proportion of families whose QoL was affected before surgery was 95.7%. The domains with the greatest impact preoperatively were the financial domain and social domains. Families having children with bilateral cleft lip showed QoL effects mostly in the social domain and 'impact on sibling' domain. Postoperatively, the mean total QoL score was significantly lower than the mean preoperative QoL score, indicating significant improvement in QoL (P<0.001). The mean postoperative QoL score was also significantly lower than the mean preoperative QoL score in all domains. Only 3.2% of the families reported affectation of their QoL after surgery. The domains of mastery (61.3%) with a mean of 7.4±1.8 and finance (45.1%) with a mean score of 7.2±1.6 were those showing the greatest postoperative impact. The proportion of families whose QoL was affected by orofacial cleft was markedly different after treatment (95.7% preoperative and 3.2% postoperative).ConclusionCaring for children with orofacial clefts significantly reduces the QoL of parents/caregivers in all domains. However, surgical intervention significantly improves the QoL of the parents/caregivers of these children.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 3 more Smart Citations

A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment

Emeka

Adeyemo

Ladeinde

et al. 2017

J Korean Assoc Oral Maxillofac Surg

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Changes in the Oral Health-Related Quality of Life in Infants With Cleft Lip and/or Palate Before and After Surgical Treatment

Ramos

Victorio

Ramos

et al. 2021

The Cleft Palate-Craniofacial Journal

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Objective: To assess oral health-related quality of life (OHRQoL) changes before and after the primary surgical treatment in infants with cleft lip and/or palate (CL/P). Design: Quasi-experimental study. Methods: A total of 106 infants with CL/P younger than 2 years undergoing primary surgical treatment in the Plastic Surgery Service of the Instituto Nacional de Salud del Niño in Peru. The parent/caregiver answered a questionnaire about OHRQoL named the Peruvian version of the Early Childhood Oral Health Impact Scale (P-ECOHIS) in the pretreatment (baseline) and follow-up post-treatment. The total score of P-ECOHIS and their 2 sections (child impact and family impact) in the baseline and each follow-up period post-treatment scores were assessed. As well as, the type of the CL/P on OHRQoL, standardized effect sizes (ES) based on mean total change scores (difference between baseline and 12th month) were analyzed. Results: Improvements in infant’s OHRQoL after treatment were reflected in each follow-up period P-ECOHIS score compared to the baseline score. The total P-ECOHIS scores decreased significantly from 28.07 (baseline) to 7.7 (12th month; P < .0001), as did the individual domain scores ( P < .0001). There were significant differences in the baseline and follow-up post-treatment scores of infants who reported improvement of the OHRQoL ( P < .0001). The ES was large (3.79). The cleft lip had an improvement in the OHRQoL at 12th month post-treatment ( P < .0001). Conclusions: Primary surgical post-treatment resulted in significant improvement of the infant’s OHRQoL with CL/P.

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La place des parents dans la résilience familiale. Une métasynthèse qualitative

Dujardin

Ferring

Lahaye

2014

Les Cahiers Internationaux De Psychologie Sociale

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En employant une méthode de métasynthèse qualitative, l’article identifie à travers la littérature francophone, germanophone et anglophone les différentes conceptions de résilience familiale. Le rôle attribué au parent dans ce processus est également examiné en fonction de cette revue de la littérature. En outre, le travail de synthèse tient compte des différents contextes d’investigation de la résilience familiale, mais aussi de la finalité poursuivie par les publications examinées. Les résultats débouchent sur une discussion relative à la qualité de l’éducation parentale et aux contextes d’intervention dans le cadre de l’éducation familiale.

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Psychological Impact of Repair Surgery in Cleft Lip and Palate

Cited by 3 publications

References 30 publications

A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment

A comparative study of quality of life of families with children born with cleft lip and/or palate before and after surgical treatment

Changes in the Oral Health-Related Quality of Life in Infants With Cleft Lip and/or Palate Before and After Surgical Treatment

La place des parents dans la résilience familiale. Une métasynthèse qualitative

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