Providing Person-Centered Care via Telemedicine in the Era of COVID-19 in Multiple Sclerosis

Abbatemarco, Justin R.; Hartman, J. Ted; McGinley, Marisa; Bermel, Robert; Boissy, Adrienne; Chizmadia, Desiree T; Sullivan, Amy B.; Rensel, Mary

doi:10.1177/2374373520981474

Cited by 6 publications

(12 citation statements)

References 8 publications

(9 reference statements)

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“…Further, our findings suggest that while virtual care is technically possible and acceptable for individuals of all ages, cancer patients may worry about whether the empathic care that they rely on in-person can be delivered virtually. Considering the expansive use of telemedicine during the pandemic, providers must adopt strategies for achieving virtual empathy and ensuring the continuity of this supportive patient-centered care (41)(42)(43). Some such approaches for "digital empathy" and preserving relationship-centered care have been disseminated in response to COVID-19, emphasizing the shift in verbal and body language needed to achieve online rapport and trust (44)(45)(46)(47).…”

Section: Discussionmentioning

confidence: 99%

Cancer Treatment During COVID-19: A Qualitative Analysis of Patient-Perceived Risks and Experiences with Virtual Care

Conn

Tahmasebi

Meti

et al. 2021

Journal of Patient Experience

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During the COVID-19 pandemic, most cancer centers shifted from in-person to virtual cancer care to curb community spread and ensure care continuity. This qualitative descriptive study aimed to understand cancer patient-perceived risks related to COVID-19 and cancer treatment, as well as the patient-perceived and experienced value of virtual care. From June to August 2020, focus groups were conducted with patients under active management or observation for a diagnosed malignancy in Toronto, Canada. A thematic analysis of six focus groups found that most participants worried more about treatment delays than they did about COVID-19 infection. Despite some concern about COVID-19 exposure in the hospital, care delays contributed to increased anxiety among participants who already subscribed to strict safety measures in their everyday lives. Most participants accepted virtual care for some appointment types; however, preference for in-person care was found to sustain the humanistic and therapeutic aspects of cancer care that many participants valued. Nuances in the appropriateness and adequacy of virtual cancer care still need exploration. Preserving the humanistic aspects of care is of paramount importance.

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Section: Discussionmentioning

confidence: 99%

Cancer Treatment During COVID-19: A Qualitative Analysis of Patient-Perceived Risks and Experiences with Virtual Care

Conn

Tahmasebi

Meti

et al. 2021

Journal of Patient Experience

View full text Add to dashboard Cite

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“…(incl. qualitative and/or quantitative questions) [19,20,[22][23][24][25]28,29,34,40,43,46,[52][53][54][56][57][58]60] Interview [30,32,35,37,42,45,59] Focus group [36,41] Service analysis [31,51] Design methods [44] Reviews [26,39,49] Implementation study [18,21,50,61] Cross-sectional study [27,33] eHealth pilot or trial [38,43,47,48,55] The most frequently used method (i.e., surveys) was applied in 18 papers (see Figure 2). As patient satisfaction was one of the most mentioned aspects affecting PX, patient satisfaction surveys were the most broadly applied.…”

Section: Case Studies Qualitative Research Surveysmentioning

confidence: 99%

“…COVID-19 has forced healthcare providers to shift to remote service and virtual visits and to take advantage of eHealth. Eleven articles [19,21,24,31,33,36,40,52,[56][57][58] report the use of telehealth and eHealth services during the COVID-19 pandemic, and as Bomher et al [57] note, these services have been well received by patients.…”

Section: What Are the Recent Trends In Px Research From An Ehealth Pe...mentioning

confidence: 99%

“…In the reviewed articles, precise definitions or descriptions for the concept of PX are not presented. Instead, PX is often used as a synonym for other related concepts, such as satisfaction [18][19][20][21][22][23][24][25][26][27][28], patient engagement [29][30][31], and patient perceptions [21,22,32]. Satisfaction studies report the use of patient satisfaction questionnaires resulting in patient satisfaction scores [18,21,22,25] whereas "patient engagement" refers to the amount of engagement with eHealth solutions [30] or online patient engagement practices [31].…”

Section: How Has Px Been Defined?mentioning

confidence: 99%

“…Instead, PX is often used as a synonym for other related concepts, such as satisfaction [18][19][20][21][22][23][24][25][26][27][28], patient engagement [29][30][31], and patient perceptions [21,22,32]. Satisfaction studies report the use of patient satisfaction questionnaires resulting in patient satisfaction scores [18,21,22,25] whereas "patient engagement" refers to the amount of engagement with eHealth solutions [30] or online patient engagement practices [31]. PX is also equated with the experiences of patients [20,[32][33][34][35][36], which is described as related to technology (e.g., "virtual experience for patients with COVID-19 symptoms" [33] and "telemedicine experiences of individuals" [34]).…”

Section: How Has Px Been Defined?mentioning

confidence: 99%

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Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends

et al. 2022

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Objectives: Patients’ experiences are increasingly gaining interest in multiple research fields. Researchers have applied various approaches to studying patient experience (PX); however, there is no commonly agreed-upon definition of PX. This scoping review focuses on PX from an eHealth perspective. Our aim was to: 1) describe how PX has been defined, 2) investigate which factors influencing PX and components of PX have been identified and researched, 3) explore the methods used in studying PX, and 4) find out the recent trends in PX research from an eHealth perspective. Methods: We selected six major journals covering the fields of health informatics, PX, and nursing informatics. Using the search terms “patient experience” and technology-related terms (e.g., digital, eHealth), we searched for articles published between 2019 and 2021. From 426 articles, 44 were included in the analysis. Results: Multiple concepts and meanings are used to refer to PX. Few articles include vague descriptions of the concept. Numerous eHealth factors are influencing PX, as well as components considering PX. The influencing factors were related to eHealth solutions’ type and quality, and care process, when the components of PX were related to communication, remote interaction, risks and concerns, and patients’ attitudes towards telehealth. Surveys were the main method used to study PX, followed by interviews. Conclusions: PX is a complex and multifaceted phenomenon, and it is described as a synonym for patient satisfaction and telehealth experiences. Further multidisciplinary research is needed to understand PX as a phenomenon and to outline a framework for the research.

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The Viewpoint of Informal Carers of People with Multiple Sclerosis in Digital Health Research: A Scoping Review

Yrttiaho,

Mylonopoulou,

Giunti

et al. 2024

Communications in Computer and Information Science

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Multiple sclerosis (MS) is a common neurological disease that can impact not only individuals diagnosed with the condition but also their informal carers, i.e. family members and friends. This scoping review aimed to map the role that family members and friends of people with multiple sclerosis have had in digital health research. The scoping review was reported according to PRISMA-ScR. The search was done in Scopus, CINAHL, Pubmed, and Web of Science. A total of 14 studies met the inclusion criteria. These studies were about telemedicine, rehabilitative video games, online education, user research, and development. Usually, family members and friends had a side part in the research. One study focused exclusively on them, and in total, in eight studies family and friends were participants in the study. Otherwise, they were accompanying the person with multiple sclerosis, were seen as possible users of the digital solution or they appeared in results by someone else. In this scoping review, it was seen that informal carers can get support and information from digital sources, they are able to act as informal carers in digital environments, healthcare professionals can receive information from them and family and friends can help in remote assessments, and digital solutions can help informal carers and people with MS to connect in a new or better way. Our results highlight that digital health can bring benefits to family members, people with multiple sclerosis, and healthcare.

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Providing Person-Centered Care via Telemedicine in the Era of COVID-19 in Multiple Sclerosis

Cited by 6 publications

References 8 publications

Cancer Treatment During COVID-19: A Qualitative Analysis of Patient-Perceived Risks and Experiences with Virtual Care

Cancer Treatment During COVID-19: A Qualitative Analysis of Patient-Perceived Risks and Experiences with Virtual Care

Patient Experience from an eHealth Perspective: A Scoping Review of Approaches and Recent Trends

The Viewpoint of Informal Carers of People with Multiple Sclerosis in Digital Health Research: A Scoping Review

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