Protecting patient privacy by quantifiable control of disclosures in disseminated databases

Ohno-Machado, Lucila; Silveira, Paulo Sérgio Panse; Vinterbo, Staal A.

doi:10.1016/j.ijmedinf.2004.05.002

Cited by 49 publications

(30 citation statements)

References 18 publications

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“…Results of the study by Keshtkaran demonstrate that only 22% of nursing staff have pointed to giving patients’ permission to use their belongings and only 8% pointed to observance of respect and human dignity while calling the patients (16). On the other hand, various studies have shown lack of full observance of patients’ rights in terms of respect and observing their privacy, according to patients (21, 27, 28). …”

Section: Discussionmentioning

confidence: 99%

Evaluation of Patients' Rights Observance According to Patients' Rights Charter in Educational Hospitals Affiliated to Mashhad University of Medical Sciences: Medical Staffs' Views

et al. 2016

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IntroductionTo supply quality services and healthcare, it is evident that medical ethics and patients’ rights, while providing medical and healthcare services need to be observed. This study was conducted to evaluate observance of the Patients’ Rights Charter among medical staff of educational hospitals affiliated to Mashhad University of Medical Sciences.MethodsThis cross-sectional study was conducted in four educational hospitals in Mashhad on eighty physicians, nurses, nurse aids and medical students. Data were collected using a two-part inventory of patients’ rights, including demographic data and inventory of patients’ rights observance. Data analysis was conducted using SPSS-16 as well as descriptive statistics, independent t-test, chi-square, Spearman correlation coefficient and Pearson correlation.ResultsMean age of subjects was 36.3±8.3. Observance of human rights was perfect by 84.4 percent of subjects. The highest amount of observance of patients’ rights was related to the area of respecting patients’ privacy and observing the principle of confidentiality, which was evaluated to be perfect by all subjects (100%). The lowest value of patients’ rights observance was related to presenting appropriate and adequate information for patients, which was perfect among 48.1% of subjects. There was no significant relation between personal details (age, gender, education and career) and observance of patients’ rights (p>0.05).ConclusionAlthough in this study, the observance of patients’ rights by medical staff is optimal in most areas, the area of providing appropriate and adequate information needs to be promoted. Therefore, it is suggested that more stringent regulatory policies be compiled and implemented to the items of Patients’ Rights Charter along with training courses, to strengthen medical staff’s awareness in this regard.

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Section: Discussionmentioning

confidence: 99%

Evaluation of Patients' Rights Observance According to Patients' Rights Charter in Educational Hospitals Affiliated to Mashhad University of Medical Sciences: Medical Staffs' Views

et al. 2016

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“…De-identifying information is an option; however, it can severely limit the utility of the data. Alternatives, such as the use of special 'ambiguation algorithms' to help protect patient information and alternative de-identification strategies, are being studied [31,32]. Many other industries utilize highly sensitive information, such as the banking industry, so we believe these hurdles can and will be overcome with time and experience.…”

Section: Informatics N Backgroundmentioning

confidence: 99%

Leveraging informatics, mobile health technologies and biobanks to treat each patient right

Hirsch

Abernethy

2012

Personalized Medicine

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Personalized medicine is the future of clinical care. Many interpret this to mean that advances in genomic medicine will revolutionize care. However, the reality is much more complex, relying on a combination of health technology, patient engagement, genomics, basic sciences and decision-support tools to move the field forward. There are a number of instances in which providers and researchers have already made significant progress toward the goal, yet the advances often occur in isolation and are not widely acknowledged. With appropriate investment, coordination and vision, the present state can be leveraged to change our approach to a given patient within the next few years. Here we demonstrate how currently available informatics, mobile health technology and biobanking solutions can support personalization of care in the near term, and lead to the development of a learning health system.

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“…The collection, storage and use of administrative and clinical patient information for scientific research is subject to ethical and privacy regulations (8,9). The establishment and utilisation of UPOD is in accordance with guidance of the Institutional Review Board (IRB) and privacy board of UMC Utrecht, which allows Table 2 Examples of current research projects within UPOD.…”

Section: Ethical and Privacy Considerationsmentioning

confidence: 99%

Linking laboratory and medication data: new opportunities for pharmacoepidemiological research

Berg¹,

Huisman²,

Bemt³

et al. 2007

Clinical Chemical Laboratory Medicine

106

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Transfer of automated laboratory data collected during routine clinical care from the laboratory information system into a database format that enables linkage to other administrative (e.g., patient characteristics) or clinical (e.g., medication, diagnoses, procedures) data provides a valuable tool for clinical epidemiological research. It allows the investigation of biochemical characteristics of diseases, therapeutic effects and diagnostic and/or prognostic markers for disease with easy access and at relatively low cost. To this end, the Utrecht Patient Oriented Database (UPOD), an infrastructure of relational databases comprising data on patient characteristics, laboratory test results, medication orders, hospital discharge diagnoses and medical procedures for all patients treated at the University Medical Centre Utrecht since January 2004, was established. Current research within UPOD is focused on the innovative linkage of laboratory and medication data, which, for example, makes it possible to assess the quality of pharmacotherapy in clinical practice, to investigate interference between laboratory tests and drugs, to study the risk of adverse drug reactions, and to develop diagnostic and prognostic markers or algorithms for adverse drug reactions. Although recently established, we believe that UPOD broadens the opportunities for clinical pharmacoepidemiological research and can

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Protecting patient privacy by quantifiable control of disclosures in disseminated databases

Cited by 49 publications

References 18 publications

Evaluation of Patients' Rights Observance According to Patients' Rights Charter in Educational Hospitals Affiliated to Mashhad University of Medical Sciences: Medical Staffs' Views

Evaluation of Patients' Rights Observance According to Patients' Rights Charter in Educational Hospitals Affiliated to Mashhad University of Medical Sciences: Medical Staffs' Views

Leveraging informatics, mobile health technologies and biobanks to treat each patient right

Linking laboratory and medication data: new opportunities for pharmacoepidemiological research

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