Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma

Rooney, Laura; Bhopal, Raj; Halani, Laila; Levy, Mark L; Partridge, Martyn R; Netuveli, Gopal; Car, Josip; Griffiths, Chris; Atkinson, John P.; Lindsay, Grace; Sheikh, Aziz

doi:10.1093/pubmed/fdq100

Cited by 70 publications

(71 citation statements)

References 43 publications

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“…8,12 Of particular interest is the range of (as yet) untried approaches in the UK being employed in the US, perhaps most important of all in the short-term being the issue of reimbursing participants for their time. However, concerns have been raised about this method since potentially it could lead to the exploitation of those on lower incomes; 25 so such an approach, if considered appropriate to use in the UK, would need to be implemented with considerable care.…”

Section: Discussionmentioning

confidence: 99%

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Recruitment of South Asians into asthma research: qualitative study of UK and US researchers

Stirland

Halani

et al. 2011

Primary Care Respiratory Journal

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Section: Discussionmentioning

confidence: 99%

“…11 This paper builds on earlier reports from our study focusing on the policy level differences between the US and UK, 8 and the perspectives of UK South Asian patient/carer perspectives on barriers and facilitators to asthma research. 12 …”

Section: Introductionmentioning

confidence: 99%

Recruitment of South Asians into asthma research: qualitative study of UK and US researchers

Stirland

Halani

et al. 2011

Primary Care Respiratory Journal

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“…People from minority ethnic backgrounds are frequently underrepresented in research (45) and, whilst substantial effort was made to recruit people from a variety of ethnic backgrounds, this was not especially successful. A key strength of this study is the novelty of perspective because it accesses the experiences of informal supporters of survivors directly, which is vital if we are to understand the wider context and implications of domestic violence and abuse.…”

Section: Strengths and Limitationsmentioning

confidence: 99%

‘The edge to him was really, really nasty’: abusive tactics used against informal supporters of domestic violence survivors

Gregory

2017

Journal of Gender-Based Violence

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms With a thirty percent life-time prevalence of domestic violence and abuse (DVA) for women across the globe, (2) it is reasonable to assume that most people, at some point in their lives, will be in the position of friend, relative, colleague or neighbour to a DVA survivor. Research suggests that in the majority of cases, friends and family members did know about the abuse their loved one was experiencing or perpetrating,(3, 4) and that most women in an abusive relationship choose to access support from members of their social network.(5-9) Data from the 2015 Crime Survey for England and Wales indicates that of the 88% of intimate partner abuse survivors who had disclosed the abuse they had experienced; 80% had told someone known to them personally (relative, friend, neighbour or colleague), compared with 43% who had told someone in an official position (e.g. police or health professional), and 32% who had contacted a specialist organisation.(9) Because of the primacy given by survivors to the people around them, in terms of disclosure and help-seeking, the responses, judgements and behaviours of these people have the potential to significantly help or harm the situation. (4,8,9) Much of the existing research regarding DVA survivors' social networks, has focussed on people who are 'bystanders' to the survivor's situation, in other words, people who are witnesses to particular events or incidents, but are not involved (including people who know the survivor and/or perpetrator and those who are strangers). This research has sought to explore the roles people play and their willingness, or not, to be involved in the situation, (4,6,10,11) and has tended to concentrate on understanding, and developing interventions to reduce apathy, and increase a sense of responsibility

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“…17 We know that engagement with communities and more personalised approaches are necessary to increase the recruitment and participation of patients from all communities, including minority ethnic communities. 8,18 However, these will be more resource intensive and will require funding bodies to cover associated costs. Yet to increase the evidence base for managing the patients we see in general practice, policy makers, research funders, professionals, and the public need to work together to include everyone in research.…”

Section: To Mandate or Not To Mandate?mentioning

confidence: 99%

Under-representation of minority ethnic groups in research — call for action

Redwood¹,

Gill²

2013

Br J Gen Pract

106

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Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma

Cited by 70 publications

References 43 publications

Recruitment of South Asians into asthma research: qualitative study of UK and US researchers

Recruitment of South Asians into asthma research: qualitative study of UK and US researchers

‘The edge to him was really, really nasty’: abusive tactics used against informal supporters of domestic violence survivors

Under-representation of minority ethnic groups in research — call for action

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