Under-representation of minority ethnic groups in research — call for action

Redwood, Sabi; Gill, Paramjit

doi:10.3399/bjgp13x668456

Cited by 112 publications

(100 citation statements)

References 11 publications

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“…Although study publicity was circulated widely, it is possible that people from ethnic minority groups did not see the advertisement, were unable to understand it due to language difficulties, or had less interest in participating in the study. Previous research suggests that members of minority ethnic groups are less likely to participate in research studies if they lack confidence in language or understanding of the topic being researched . They are more likely to participate if they are approached with sensitivity and they perceive the study to be beneficial …”

Section: Discussionmentioning

confidence: 99%

“…Previous research suggests that members of minority ethnic groups are less likely to participate in research studies if they lack confidence in language or understanding of the topic being researched. [46][47][48] They are more likely to participate if they are approached with sensitivity and they perceive the study to be beneficial. 46,49…”

Section: Strengths and Limitationsmentioning

confidence: 99%

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Communicating cancer risk in the primary care consultation when using a cancer risk assessment tool: Qualitative study with service users and practitioners

Akanuwe

Black

Owen

et al. 2020

Health Expectations

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Background Cancer risk assessment tools are designed to help detect cancer risk in symptomatic individuals presenting to primary care. An early detection of cancer risk could mean early referral for investigations, diagnosis and treatment, helping to address late diagnosis of cancer. It is not clear how best cancer risk may be communicated to patients when using a cancer risk assessment tool to assess their risk of developing cancer. Objective We aimed to explore the perspectives of service users and primary care practitioners on communicating cancer risk information to patients, when using QCancer, a cancer risk assessment tool. Design A qualitative study involving the use of individual interviews and focus groups. Setting and participants Conducted in primary care settings in Lincolnshire with a convenience sample of 36 participants (19 service users who were members of the public) and 17 primary care practitioners (general practitioners and practice nurses). Results Participants suggested ways to improve communication of cancer risk information: personalizing risk information; involving patients in use of the tool; sharing risk information openly; and providing sufficient time when using the tool during consultations. Conclusion Communication of cancer risk information is complex and difficult. We identified strategies for improving communication with patients involving cancer risk estimations in primary care consultations.

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Section: Discussionmentioning

confidence: 99%

Section: Strengths and Limitationsmentioning

confidence: 99%

Communicating cancer risk in the primary care consultation when using a cancer risk assessment tool: Qualitative study with service users and practitioners

Akanuwe

Black

Owen

et al. 2020

Health Expectations

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“…Achieving equitable minority representation of participants in genomic research is one of the most difficult challenges faced by researchers today (Redwood and Gill 2013). Investigators set targets for representation by gender, race, ethnicity and socioeconomic status, but actual minority enrollment often fails to meet these projections (Frieden et al 2011).…”

Section: Introductionmentioning

confidence: 99%

Increasing Participation in Genomic Research and Biobanking Through Community‐Based Capacity Building

Cohn

Husamudeen

Larson

et al. 2014

Journal of Genetic Counseling

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Achieving equitable minority representation in genomic biobanking is one of the most difficult challenges faced by researchers today. Capacity building—a framework for research that includes collaborations and on-going engagement—can be used to help researchers, clinicians and communities better understand the process, utility, and clinical application of genomic science. The purpose of this exploratory descriptive study was to examine factors that influence the decision to participate in genomic research, and identify essential components of capacity building with a community at risk of being under-represented in biobanks. Results of focus groups conducted in Central Harlem with 46 participants were analyzed by a collaborative team of community and academic investigators using content analysis and AtlisTi. Key themes identified were: (1) the potential contribution of biobanking to individual and community health, for example the effect of the environment on health, (2) the societal context of the science, such as DNA criminal databases and paternity testing, that may affect the decision to participate, and (3) the researchers’ commitment to community health as an outcome of capacity building. These key factors can contribute to achieving equity in biobank participation, and guide genetic specialists in biobank planning and implementation.

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“…Beyond the interpersonal encounter between patient and professional are the longer term issues of the work of primary research (Redwood and Gill, 2013), in which diverse groups are underrepresented, as well as the commissioning and evaluating of services. Despite this underrepresentation being well documented, it remains routine to exclude participants from research and consultation if they do not speak good English, on grounds of expense.…”

Section: Beyond the Healthcare Consultationmentioning

confidence: 99%

Is Superdiversity a Useful Concept in European Medical Sociology?

Bradby

Green²,

Davison³

et al. 2017

Front. Sociol.

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Medical sociology has a poor track record of researching diversity in theoretically innovative ways. This paper notes usage of the term superdiversity in migration and urban studies, to ask about its utility in general and more specifically for researching the social production of health and illness. Referring to a multi-country interview study about healthcare seeking strategies, the need to understand the diversification of diversity and the challenges for multi-method health research are described. Six interviews each were conducted in Germany, Spain, Sweden, and the UK, to give a diversity sample of 24 adults who described their strategies and practice when seeking healthcare. In discussing how far superdiversity can help to model socioeconomic and cultural changes already identified as challenging health policy and service provision, the paper draws on case study material. The complex intersecting dimensions of population diversity to which superdiversity draws attention are undoubtedly relevant for commissioning and improving healthcare and research as well as policy. Whether models that reflect the complexity indicated by qualitative research can be envisaged in a timely fashion for quantitative research and questions of policy, commissioning, and research are key questions for superdiversity's ongoing usefulness as a concept.

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Under-representation of minority ethnic groups in research — call for action

Cited by 112 publications

References 11 publications

Communicating cancer risk in the primary care consultation when using a cancer risk assessment tool: Qualitative study with service users and practitioners

Communicating cancer risk in the primary care consultation when using a cancer risk assessment tool: Qualitative study with service users and practitioners

Increasing Participation in Genomic Research and Biobanking Through Community‐Based Capacity Building

Is Superdiversity a Useful Concept in European Medical Sociology?

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