Promoting mutuality in a family-centred service

O’Halloran, Maeve; Doody, Owen

doi:10.7748/ldp2013.05.16.4.16.e1428

Cited by 7 publications

(4 citation statements)

References 11 publications

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“…This relationship is lifelong as one is a parent to a child with a disability all their life ‘I worry about his future, I even worry about when he is an old man and does not have me to look out for his welfare’. A partnership approach provides an opportunity for all parties to exchange views and learn from each other and extend beyond the parent/family to include effective partnerships with other professionals (O’Halloran and Doody, 2013; Maxwell and Barr, 2003). This partnership relationship has to recognise the unique understanding between the parent and or family members and the person with a disability, which is based on knowing the person and/or intuition ‘he does not have the ability to communicate with people in the same way that he can with me’.…”

Section: Resultsmentioning

confidence: 99%

Raising a child with disability and dealing with life events

O’Connell¹,

O’Halloran²,

Doody

2013

J Intellect Disabil

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Intellectual disability services recognise people with intellectual disability as a family member and aim to provide effective support that facilitates family cohesion. However, the needs of families and individuals within the family should be addressed in a holistic manner to ensure a seamless service. This article outlines a mother's reflections on her experience of raising a child with autism spectrum disorder and its impact on her life. The article focuses on one mother's feelings, coping or lack of coping and growth during a time of sadness. This article written by a mother, nurse and academic through their shared interest in supporting families of children with a disability all came together to tell this story. It is hoped that this article will assist professionals understand a mother's perspective when raising a child with intellectual disability and support professionals to recognise the importance of listening, coordinated support and working in partnership.

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Section: Resultsmentioning

confidence: 99%

Raising a child with disability and dealing with life events

O’Connell¹,

O’Halloran²,

Doody

2013

J Intellect Disabil

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“…Continuity of relationships is important and equates to increased confidence about quality of care delivered (Heller & Solomon, ; Kirk & Glendinning, ). Continuity facilitated relationships characterised by mutual recognition of individual knowledge and expertise, encouraging sharing of expertise and information (O Halloran & Doody, ). Often parents of children with intellectual disability define their relationships to include professionals who work with them and their child, subsequently professionals need to recognise the importance of interacting with families beyond the provision of direct services (Smith Stepanek, ).…”

Section: Discussionmentioning

confidence: 99%

Families’ perceptions of the contribution of intellectual disability clinical nurse specialists in Ireland

Doody

Slevin

Taggart

2017

Journal of Clinical Nursing

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“…Sex and sexuality 253 Parents with intellectual disability 254 255 Pregnancy 256 Growing older 257 Service delivery inclusion 258 Nurse experience and perspectives of caring Experience of caring [259][260][261][262][263][264][265][266][267][268][269] Managerial support 270 Grieving 271 272 Family support 273 Transcultural care 274 275 Health promotion 276 Cocreated nursing process, 277 Supporting safe eating and drinking 278 Person-centred planning [279][280][281] Childbirth 282 Care burden 283 Palliative care/end of life [284][285][286][287][288] on October 30, 2022 by guest. Protected by copyright.…”

Section: Service User Experiencementioning

confidence: 99%

Nature and extent of intellectual disability nursing research in Ireland: a scoping review to inform health and health service research

2021

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ObjectivesTo capture the extent and nature of intellectual disability nursing publications in Ireland.DesignScoping review using Arksey and O’Malley approach.Data sourcesSix databases (PsycINFO, CINAHL, Medline, Academic Search Complete, Scopus, Embase) were searched along with a web-based search of the eight academic institutions delivering intellectual disability nurse education in Ireland for publications indexed from the earliest available date to the 31 December 2020.Eligibility criteriaPublications by an academic, practitioner or student working in intellectual disability practice or education in Ireland relating to intellectual disability nursing, care or education.Data extraction and synthesisData pertaining to type of paper/design, authors (academic/professional/student), year, collaboration (national/international), topic/content area and title were extracted from each paper. Data were analysed by two authors using Colorafi and Evans content analysis steps where data was tabulated, and a narrative synthesis undertaken.ResultsThe reporting of the review is in line with the Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) and PRISMA extension for Scoping Reviews Checklist. Database and web-based searching resulting 245 articles meeting the criteria for this review. Through content analysis the 245 articles were mapped onto six themes: supporting inclusion, future planning, aspects of health, interventions, education, professional development and research, and personal and professional accounts of caring.ConclusionsThis review highlights the extent and nature of intellectual disability publications by academic, practitioner or student working in intellectual disability nursing in Ireland together with opportunities for future growth and development. From the findings it is apparent that there is an ongoing need for intellectual disability nurses to define their role across the full trajectory of health provision and to make visible their role in person-family centred support, inclusion, and contributions in health education, health promotion and health management.

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Promoting mutuality in a family-centred service

Cited by 7 publications

References 11 publications

Raising a child with disability and dealing with life events

Raising a child with disability and dealing with life events

Families’ perceptions of the contribution of intellectual disability clinical nurse specialists in Ireland

Nature and extent of intellectual disability nursing research in Ireland: a scoping review to inform health and health service research

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