Raising a child with disability and dealing with life events

O’Connell, Tina; O’Halloran, Maeve; Doody, Owen

doi:10.1177/1744629513509794

Cited by 16 publications

(19 citation statements)

References 39 publications

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“…Many families want to have and raise a normal child, and such families hold expectations and hopes when it comes to the future of their children. On the contrary, families with disabled children might experience dramatic changes in their social lives, family plans, lives, economic conditions, emotional states, and expectations for the future (O'Connell, O'Halloran, & Doody, 2013). Schild (1971), Fortier and Wanlass (1984), Eripek (1996), and Akkök (1997) put forth that starting from the moment when a family learns they have a disabled child, emotional and adaptive processes generally go through the following phases.…”

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confidence: 99%

“…As mentioned above, mothers are the ones generally responsible for the care and education of disabled children, and they do not receive adequate support from their partners. In a study examining mothers with disabled children, they were found to often feel abandoned, lonely, and isolated from social life; they expressed a sense of disappointment, feeling that their pain went unnoticed throughout this period (O'Connell et al, 2013).…”

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confidence: 99%

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The Ticket to Heaven: A Spiritual Resource for Coping with Disability

Hatun¹,

Yavuz-Birben²,

İnce³

et al. 2016

SPC

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This study was conducted to investigate how parents of disabled people deal with the phenomenon of disability, their hardships in accepting the process, and support mechanisms used to deal with the situation. The phenomenological research design was used and 17 in-depth interviews were conducted with parents. Of the interviewed parents' children, five of them have mental retardation, five have a physical disability, five have both a mental and physical disability, and two have autism spectrum disorder. The obtained data were phenomenologically analyzed with the support of MAXQDA 11. Data were examined in three general categories: difficulty of the process, coping resources, and spiritual coping. Of these categories, difficulty of the process and coping resources are thought to allow for better understanding of spiritual coping, the focus of the study. The sub-themes of shock/collapse, not attributing, fear of losing the child, disappointment, self-blame, loneliness, lack of paternal support, negative environmental effects, concern for the future, and despair is evaluated under the theme of difficulty of the process. The sub-themes of expert support, family support, environmental care, rationalizing, hope, following daily routines, blaming, and unable to be apart from the child is evaluated under the theme of coping resources. The core category of the research, spiritual coping resources, is examined under the categories of acceptance (accepting what comes from God and destiny), giving spiritual meaning (being tested, repentance, fear of God, and being an entrustment from God), and trust in God (resignation, gratitude, and prayer). Recommendations have been presented based on the results of the research.

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confidence: 99%

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confidence: 99%

The Ticket to Heaven: A Spiritual Resource for Coping with Disability

Hatun¹,

Yavuz-Birben²,

İnce³

et al. 2016

SPC

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“…Overall, this has been a positive journey that has resulted in four articles being submitted and accepted for publication Doody, 2013a, 2013b;O'Halloran et al, 2013;O'Connell et al, 2013). It has also been emotional at times, but for me this could not have been achieved without the support and guidance of my mentor.…”

Section: Resultsmentioning

confidence: 99%

To write or not to write: a nurse's account of writing for publication

O’Halloran

Doody

2014

Br J Nurs

Self Cite

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Writing for publication is often seen as an arduous, daunting task reserved mainly for those in academia. This paper represents the first author's experience over the past 2 years of working on writing papers for publication in the context of personal and academic development. The aim is to reflect on the first author's journey towards publication with the intention of encouraging nursing staff to make their work visible and validate their practice through publication. This personal journey was made easier by the encouragement, help and support of the second author, a university lecturer acting as a mentor, advisor and critical friend. This paper is also intended to assure and give courage to those who have considered writing about their practice but are reluctant to do so.

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“…To this end, Zara's mum has written her own experience (O'Connell et al . ) and the readers can balance the overall experience through both publications.…”

Section: Discussionmentioning

confidence: 99%

Living with a brother who has an Autism Spectrum Disorder: a sister's perspective

Connell¹,

Halloran²,

Doody

2014

Brit J Learn Disabil

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Accessible summary• The relationship between brothers and sisters starts from infancy and is possibly the longest lasting relationship.• Many people with Autism Spectrum Disorder (ASD) remain within the family home and are cared for by their family.• This article describes a sister's experience of growing up with her brother who has ASD SummaryPeople with Autism Spectrum Disorder (ASD) are born into families and influence family functioning both positively and negatively. One of the most enduring relationships a person with ASD will have is their relationship with a brother or sister. Services for people with ASD should provide effective support to families, which include brothers, sisters, parents and broader family members and address the needs of the family as a whole in a holistic manner. This article outlines one sister's experience and reflections of growing up with her brother who has ASD. The article gives a voice to a sibling's experience and highlights the importance of brothers and sisters as part of the family unit in assisting parents.

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Raising a child with disability and dealing with life events

Cited by 16 publications

References 39 publications

The Ticket to Heaven: A Spiritual Resource for Coping with Disability

The Ticket to Heaven: A Spiritual Resource for Coping with Disability

To write or not to write: a nurse's account of writing for publication

Living with a brother who has an Autism Spectrum Disorder: a sister's perspective

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