Profiles of <scp>A</scp>lzheimer's caregivers in <scp>S</scp>pain: social, educational and laboral characteristics

Reina, Manuel Ruiz-Adame; González-Camacho, María Carmen; Romero-García, José Enrique; Fernández, Luís María Sánchez-Reyes

doi:10.1111/scs.12408

Cited by 13 publications

(10 citation statements)

References 41 publications

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“…On the other hand, a high percentage of the sample is not responsible for care tasks (instrumental exchange). The results of our study related to the profile of the main caregiver are similar to those previously reported in other studies; the main caregiver is characterized as female, a firstdegree relative, married, with primary schooling and in the middle class (Del Pino-Casado et al 2014;Fern andez-Mayoralas et al 2015;Ruiz-Adame et al 2017;Villar-Taibo et al 2016).…”

Section: Discussionsupporting

confidence: 89%

Social support for elderly people over 65 years in Spain

López-Cerdá¹,

Carmona‐Torres

Rodríguez-Borrego

2018

International Nursing Review

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Section: Discussionsupporting

confidence: 89%

Social support for elderly people over 65 years in Spain

López-Cerdá¹,

Carmona‐Torres

Rodríguez-Borrego

2018

International Nursing Review

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“…At least part of the difference in Nordic countries is made up by a greater emphasis on formal caregiving. In one Spanish study, 77% of caregivers were women, 61% cared for a parent, and men became caregivers only for their spouse, in old age . In one Polish study, 63% of caregivers were women, and 43% were caring for a parent .…”

Section: Literature Reviewmentioning

confidence: 99%

“…In one Spanish study, 77% of caregivers were women, 61% cared for a parent, and men became caregivers only for their spouse, in old age. (28) In one Polish study, 63% of caregivers were women, and 43% were caring for a parent. (20) In Sweden, 21% of caregivers lived with the care recipient, (25) compared to 80% in Poland.…”

Section: Demographicsmentioning

confidence: 99%

The caregiving phenomenon and caregiver participation in dementia

García-Ptacek

Dahlrup

Edlund

et al. 2018

Scandinavian Caring Sciences

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Background Dementia presents barriers to the collaboration between individuals and the healthcare system. Caregivers perform multiple functions helping patients with basic and instrumental activities but also communicating and mediating the dyads’ needs within the broader social group. Interventions focusing on caregivers show that caregiver burden can be reduced, improving patient outcomes in a cost‐effective way, but the generalisation of these findings is limited by several factors such as low participation rates of caregivers in studies. There is a global push to increase patient participation in health care, but this can be difficult for patients with dementia. Caregiver participation has arisen as a substitute, but there is a lack of standardised definitions, goals and outcome measurement tools for this participation. Methods In 2015, the Swedish Association of Local Authorities and Regions commissioned a study on possibilities of increasing caregiver participation within the Swedish Dementia Registry (SveDem). This discussion paper updates and adapts that report, aiming to broadly summarise the caregiving phenomenon in order to provide a backdrop for clinicians seeking to understand the legal, ethical and practical considerations of caregiver participation in dementia. Relevant literature on caregiver participation is presented, and its definition, extent and practical implementation are discussed. Discussion The Swedish legal framework compels care providers to facilitate patient and caregiver participation in dementia and provides support to caregivers through the local level of government, but further work is needed to clarify and define the extension and form that this participation must take in clinical practice. Advanced directives are one step in extending patient participation to the period of advanced dementia. Conclusion Little research exists on caregiver participation. There is a need to develop a framework for caregiver and patient participation to determine the extent, type and form that such participation should take in health care, research and quality initiatives pertaining to persons with dementia.

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“…The relationship between the listed influencing factors of quantitative evidence (Table 3) and their effect on care-givers’ employment was unambiguous and conclusive in many instances. For example, younger care-givers of PwD were more gainfully employed and worked more hours than older care-givers (Moore et al , 2001; Bakker et al , 2013; Gibson et al , 2014; Ducharme et al , 2016; Schäufele et al , 2016; Hojman et al , 2017; Ruiz-Adame Reina et al , 2017). Other aspects require further analysis.…”

Section: Resultsmentioning

confidence: 99%

Dementia care-giving and employment: a mixed-studies review on a presumed conflict

et al. 2019

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Many persons with dementia live at home and are cared for by their relatives. If the relatives are still employed, this can lead to higher burden and losses in their work-life. The interplay between informal care-giving and working is complex. Different studies have explored this issue, but the results have not been yet synthesised. In this mixed-studies review, we elucidate the underlying complexity. Our objective is to identify the factors related to care-giving that influence employment, and to describe their impact on dementia care-givers’ employment. We performed a literature search of primary studies using four databases and one meta-database, and retrieved English- and German-language articles. We used the Mixed Methods Appraisal Tool to assess their methodological quality. Evidence identified was synthesised by a parallel-results convergent synthesis design. We included 55 qualitative, quantitative and mixed-method studies published up to January 2018. The emerging model identified factors linked to the care recipient with dementia, the informal care-giver and the care-giving context. The impacts of these factors on care-givers’ employment are mostly negative (e.g. stopped/reduced work, decreased job performance). Nevertheless, the results provide encouraging insights as working can counterbalance care-giving strain, and managing both roles can enhance care-givers’ wellbeing. Practical efforts should focus on enabling informal care-givers to better manage the balance between care-giving and work responsibilities.

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Profiles of Alzheimer's caregivers in Spain: social, educational and laboral characteristics

Abstract: Being a caregiver implies limitations to entering the job market and for job promotion. There is a generational gap in the caregiver profile, and more and new support services will be needed. Policymakers should take those into account.

Cited by 13 publications

References 41 publications

Social support for elderly people over 65 years in Spain

Social support for elderly people over 65 years in Spain

The caregiving phenomenon and caregiver participation in dementia

Dementia care-giving and employment: a mixed-studies review on a presumed conflict

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