Primary care providers’ attitudes towards individuals with intellectual disability: Associations with experience and demographics

Breau, Geneviève; Baumbusch, Jennifer; Thorne, Sally; Hislop, T. Greg; Kazanjian, Arminée

doi:10.1177/1744629519860029

Cited by 15 publications

(12 citation statements)

References 33 publications

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“…43 53 It is evident within the literature that healthcare professionals often lack specific knowledge and understanding of intellectual disability and have limited experience of working with this population. 54 55 This lack of knowledge and inexperience can give rise to negative attitudes 56 57 and misconceptions 58 59 that often lead to fear of caring for people with intellectual disability. 60 61 …”

Section: Discussionmentioning

confidence: 99%

Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence

2021

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ObjectivesPeople with intellectual disability are vulnerable in terms of health service provision due to increased comorbidity, higher dependency and cognitive impairment. This review explored the literature to ascertain what reasonable adjustments are evident in acute care to support people with intellectual disability, ensuring they have fair access and utilisation of health services.DesignScoping review.SettingAcute care settings.MethodsFive databases were systematically searched to identify studies that reported on the implementation of reasonable adjustments. Authors worked in pairs to screen studies for inclusion, data were extracted and charted and findings were synthesised according to content and themes.ResultsOf the 7770 records identified, six studies were included in the review. The volume of evidence was influenced by specific inclusion criteria, and only papers that reported on the actual implementation of a reasonable adjustment within an acute care setting were included. Many papers reported on the concept of reasonable adjustment; however, few identified its applications in practice.ConclusionsThe scoping review highlights a lack of research on the practice and implementation of reasonable adjustments within acute care settings. There is a need for increased support, education and the provision of intellectual disability specialists across acute care settings.

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Section: Discussionmentioning

confidence: 99%

Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence

2021

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“…Fundamental to supporting reasonable adjustments in an acute hospital setting is addressing the attitudinal and educational needs among healthcare professionals to address pre‐existing bias/attitudes/awareness regarding care provision (Breau et al, 2021; Wilson et al, 2022). Attitudes and stigma are one of the greatest obstacles for individuals with ID in accessing services (Desroches et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Parents' perspectives on reasonable adjustments in acute healthcare for people with intellectual disability: A qualitative descriptive study

Moloney

Hennessy

Doody

2023

Journal of Advanced Nursing

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AimTo describe parents' perspectives on reasonable adjustments in acute healthcare for people with intellectual disability (ID).BackgroundPeople with ID are vulnerable in terms of their health needs and marginalized when accessing and utilizing acute healthcare services. Reasonable adjustments are positive measures that can help alleviate health disparities. However, despite significant research advocating their use, evidence of implementation of reasonable adjustments in acute healthcare practice is limited.DesignA qualitative descriptive study.MethodsQualitative semi‐structured interviews were conducted with six parents of children with ID, who had accessed and used acute healthcare services. The interviews were conducted between January and May 2022, audio‐recordings were transcribed and thematically analysed.ResultsParents described limited or no experiences of reasonable adjustments when accessing or utilizing acute healthcare services for their children. The findings are captured in three themes; describing the reality, understanding the impact and signposting the future. The findings highlight a lack of implementation of reasonable adjustments in acute healthcare which negatively impacts the experience of all stakeholders.ConclusionThere is a pressing need for reasonable adjustments to be implemented at a strategic level across acute healthcare services, so that people with ID and their families can access person‐centred acute healthcare when needed.ImpactThe research findings will inform researchers interested in reasonable adjustments and implementation research, and those interested in advocating for the rights of people with ID.Reporting MethodThis study adhered to the Equator research reporting checklist: Consolidated criteria for reporting qualitative research: a 32‐item checklist for interviews and focus groups.Patient or Public ContributionA parent of a child with an ID was part of the research team informing the design, data collection, data analysis and write‐up of this article.

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“…Strategies to improve access to primary care for people with intellectual disability are likely to be most effective if factors that affect access and create barriers can be identified [11]. Internationally, known barriers to primary care access for people with intellectual disability include communication difficulties [12][13][14][15][16][17][18][19][20][21][22], inexperienced or inappropriately trained staff [12][13][14][15][16][17][18][19][21][22][23][24][25], inadequate health service integration and continuity of care [12-17, 22, 26-28], the associated costs of health care [15-17, 22, 29], and a perceived lack of time during appointments [13,14,17,21,[24][25][26][27]30]. However, these studies have often used narrow definitions of access, which may not encompass the multiple dimensions that influence access to primary care.…”

Section: Introductionmentioning

confidence: 99%

Access to general practice for people with intellectual disability in Australia: a systematic scoping review

et al. 2022

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Background People with intellectual disability experience inadequate access to general practice and poorer health outcomes than the general population. While some access barriers have been identified for this population, these studies have often used narrow definitions of access, which may not encompass the multiple dimensions that influence access to general practice. To address this gap, we conducted a scoping review to identify factors impacting access to general practice for people with intellectual disability in Australia, using a holistic framework of access conceptualised by Levesque and colleagues. Methods This scoping review followed Joanna Briggs Institute methodology and was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews. Medline (Ovid), Scopus, CINAHL, Informit and PsycINFO databases were searched. Screening, full-text review and data extraction were completed by two independent reviewers, with consensus reached at each stage of the study. Data were extracted, coded and synthesised through deductive qualitative analysis – using the five corresponding conceptual dimensions within Levesque and colleagues’ theoretical framework of access, which incorporate both supply-side features of health systems and services, and demand-side characteristics of consumers and populations. Results The search identified 1364 publications. After duplicate removal, title and abstract screening and full-text review, 44 publications were included. Supply-side factors were more commonly reported than demand-side factors, with the following issues frequently identified as impacting access to general practice: limited general practitioner education about, and/or experience of, people with intellectual disability; communication difficulties; and inadequate continuity of care. Less frequently included were factors such as the health literacy levels, promotion of general practice services and availability of complete medical records. Conclusions This is the first scoping review to assess access barriers for people with intellectual disability using a comprehensive conceptualisation of access. The findings highlight the need for increased efforts to address demand-side dimensions of access to general practice and offer a basis for a balanced portfolio of strategies that can support recent policy initiatives to enhance access to care for people with intellectual disability.

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Primary care providers’ attitudes towards individuals with intellectual disability: Associations with experience and demographics

Cited by 15 publications

References 33 publications

Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence

Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence

Parents' perspectives on reasonable adjustments in acute healthcare for people with intellectual disability: A qualitative descriptive study

Access to general practice for people with intellectual disability in Australia: a systematic scoping review

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