Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries

Quittner, Alexandra L.; Goldbeck, Lutz; Abbott, Janice; Duff, Alistair; Lambrecht, Patrick; Solé, Amparó; Tibosch, Marijke; Brucefors, Agneta Bergsten; Yüksel, Hasan; Catastini, P.; Blackwell, Laura S.; Barker, Dave

doi:10.1136/thoraxjnl-2014-205983

Cited by 397 publications

(437 citation statements)

References 37 publications

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“…We found elevated depression and anxiety scores in 17% and 22% of parents respectively, and in 10% of patients, commensurate with US data using the same measures [5] and UK/International rates from alternative ones in The International Depression/Anxiety Epidemiology Study (TIDES) [1,2]. With 40% of participants not known to, or engaged with the teams' clinical psychologists, our results provide further evidence for implementing the ICMH-CF screening measures even when there are good psychosocial resources.…”

Section: Concerns About Application To Cfsupporting

confidence: 79%

“…Elevated depression and anxiety symptom-scores in people with cystic fibrosis (CF) are associated with worse adherence, higher frequency of missed appointments, reduced quality of life, increased uptake of healthcare, and higher healthcare costs [1][2][3]. In response, the CF Foundation (CFF) and ECFS commissioned an International Committee on Mental Health (ICMH-CF), whose guidelines on preventing, assessing and treating depression and anxiety, have recently been published [4].…”

Section: Sirmentioning

confidence: 99%

“…We focused on screening parents (almost all mothers, 88%) and adult-patients, who are identified as being particularly at risk [1,2], but there are no obstacles to extending this work to paediatric populations, particularly adolescents. Our data support the feasibility of routinely screening for psychological symptoms as recommended [4] and we are encouraged to find ways of more rapid administration and scoring and facilitating secure on-line completion outside the clinic environment.…”

Section: Concerns About Application To Cfmentioning

confidence: 99%

See 2 more Smart Citations

Implementing ICMH-CF (International Committee on Mental Health in CF) guidance on screening for depression and anxiety symptoms: A feasibility and pilot study

Duff¹,

Bowmer²,

Waldron³

et al. 2016

Journal of Cystic Fibrosis

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Section: Concerns About Application To Cfsupporting

confidence: 79%

Section: Sirmentioning

confidence: 99%

Section: Concerns About Application To Cfmentioning

confidence: 99%

See 1 more Smart Citation

Implementing ICMH-CF (International Committee on Mental Health in CF) guidance on screening for depression and anxiety symptoms: A feasibility and pilot study

Duff¹,

Bowmer²,

Waldron³

et al. 2016

Journal of Cystic Fibrosis

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“…Os sintomas de depressão e ansiedade foram encontrados em 10% e 22% dos adolescentes com FC, respectivamente. O sintoma de ansiedade foi associado à presença de depressão (OR= 14,97) (Quittner et al, 2014). Uma pesquisa no Brasil investigou os efeitos da FC na adolescência para compreender a percepção sobre a puberdade e planos e adesão ao tratamento.…”

Section: Introductionunclassified

Viver Com Fibrose Cística: A Visão Pessoal Do Adolescente Brasileiro

et al. 2016

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RESUMO.O presente estudo examinou os desafios psicológicos de adolescentes com fibrose cística (FC) no Brasil, por meio de uma entrevista semiestruturada com perguntas abertas : [(i) Como é ter FC para você?; (ii) Você tem necessidades especiais por ter FC?; (iii) Como você vê o seu futuro?] Foi realizada a entrevista com 42 adolescentes com FC. Foi investigado como os adolescentes lidam com a FC, identificado suas necessidades, e como eles vislumbram o futuro. Os resultados mostram que as emoções dos adolescentes incluíam medo da morte, vergonha e raiva. Outras preocupações incluíam a perda da liberdade, ficando com atraso na escola, perda de amigos, da igualdade e aceitação, e as perspectivas futuras. Esses sentimentos e preocupações foram influenciados pela doença. Há poucos estudos que examinaram ajuste dos adolescentes ao convívio com a FC na América do Sul. Assim, buscamos compreender como é viver com uma doença crônica na adolescência; como isso pode contribuir para novas intervenções psicológicas para pacientes e familiares; estimular novas pesquisas, e auxiliar os profissionais de saúde nos cuidados específicos aos adolescentes com FC. Palavras-chave: Doenças crônicas; fibrose cística; emoções. LIVING WITH CYSTIC FIBROSIS: THE PERSONAL BRAZILIAN ADOLESCENT VIEWABSTRACT. The present study examined the psychological challenges of adolescents with cystic fibrosis (CF) in Brazil. A semi-structured interview with open-ended questions [(i) What is it like for you to have CF?; (ii) Do you have any special needs because you have CF? (iii) How do you envision your future?] was conducted with 42 CF adolescents' patients. We investigated how adolescents faces CF, identif ied their needs, and how they envision the future. The results show that the adolescents' emotions included fear of death, embarrassment, and anger. Other concerns included the loss of freedom, falling behind at school, a loss of friends, equality and acceptance, and the future perspectives. These feelings and concerns were influenced by the disease and may affect coping with CF. Few studies have examined adolescents' adjustment to living with CF in South America; understanding how to live with CF in adoles cence contributes to new psychological interventions for patients and families, stimulate new research, and assist healthcare professionals and others who work and care specific to CF adolescents.

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“…Se han reportado síntomas elevados de depresión asociados a la presencia de enfermedades crónicas en personas de distintos grupos etarios y procedencia (comunidad [5][6] , atención primaria o ambulatoria 7 , y centros de especialidades) 8 . El hecho que en pacientes con múltiples comorbilidades la enfermedad más común sea la depresión 9 y que en los depresivos crónicos sea usual la presencia de enfermedades crónicas 10 , retrata la compleja interacción entre estas patologías 4 .…”

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Comorbilidad en personas con depresión que consultan en centros de la atención primaria de salud en Santiago, Chile

et al. 2017

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Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries

Cited by 397 publications

References 37 publications

Implementing ICMH-CF (International Committee on Mental Health in CF) guidance on screening for depression and anxiety symptoms: A feasibility and pilot study

Implementing ICMH-CF (International Committee on Mental Health in CF) guidance on screening for depression and anxiety symptoms: A feasibility and pilot study

Viver Com Fibrose Cística: A Visão Pessoal Do Adolescente Brasileiro

Comorbilidad en personas con depresión que consultan en centros de la atención primaria de salud en Santiago, Chile

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