Prevalence and characteristics of children with mild intellectual disability in a<scp>F</scp>rench county

David, M.; Dieterich, Klaus; Villemeur, Agathe Billette De; Jouk, Pierre‐Simon; Counillon, J.; Larroque, Béatrice; Bloch, Joan Rosen; Cans, Christine

doi:10.1111/jir.12057

Cited by 26 publications

(12 citation statements)

References 25 publications

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“…This may be because their diagnosis of intellectual disability was already known and so parents were less motivated to participate in the study. While this may have resulted in a somewhat biased sample of children who were not necessarily representative of all children with intellectual disability who accessed neurodevelopmental paediatric services, children with a mild intellectual disability are more likely to have their intellectual disability overlooked, and it is this group of children that the CAIDS‐Q was primarily designed to help identify.…”

Section: Discussionmentioning

confidence: 99%

Child and Adolescent Intellectual Disability Screening Questionnaire to identify children with intellectual disability

McKenzie

Murray

et al. 2018

Develop Med Child Neuro

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Section: Discussionmentioning

confidence: 99%

Child and Adolescent Intellectual Disability Screening Questionnaire to identify children with intellectual disability

McKenzie

Murray

et al. 2018

Develop Med Child Neuro

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“…In addition, families with a child having an MID are more frequently of a lower socioeconomic status (Strømme and Magnus 2000;Emerson, Einfeld, and Stancliffe 2010;Olsson et al 2015). In addition, some of these parents may have an ID themselves (David et al 2013). When combined, these difficulties increase the probability that families with a child with an MID must handle daily situations that differ from those of other families with regard to daily routines, social activities, and coping skills, as well as contact with support services (Granlund and Roll-Pettersson 2001;Webster et al 2008).…”

Section: Introductionmentioning

confidence: 99%

Perceived needs among parents of children with a mild intellectual disability in Sweden

Huus

Olsson

Andersson

et al. 2016

Scandinavian Journal of Disability Research

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Perceived needs among parents of children with a mild intellectual disability in Sweden. Research, https://doi.org/10. 1080/15017419.2016.1167773 Access to the published version may require subscription. Parents of children with a mild intellectual disability experience more distress and require more support than other parents. The aim was to investigate the perceived family needs of parents of children with an MID and to investigate the relationship between parents' perceived selfefficacy in their parental role and in collaborating with professionals as well as with their perceived needs for support. Interviews were based on questionnaires to the parents of 38 children. The results revealed that parents perceived need for information, respite, and venues in which to meet other parents in similar situations. The informational needs were related to parental self-efficacy and obtaining support. A lower need for information was related to higher perceived control over services. In conclusion, it appears that professionals need to work to strengthen parents' ability to ask for support and to express the needs. Wellinformed parents will develop stronger parental self-efficacy and perceived control over services. Scandinavian Journal of Disability ARTICLE HISTORY

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“…[1] Die Prävalenz in der Allgemeinbevölkerung schwankt in epidemiologischen Studien in Abhängigkeit vom Schweregrad der IM zwischen 0,6 und 1,8 %. Das männliche Geschlecht überwiegt leicht (male gender ratio = 1.2-1.4), was zum Teil an den zahlreichen X-chromosomalen Gendefekten liegt [2,3].…”

Section: Epidemiologie Kernsymptome Und Verlaufunclassified

Intelligenzminderung

Gaese¹,

Häßler

Menzel³

2019

Fortschr Neurol Psychiatr

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Zusammenfassung Einleitung Für junge Menschen mit Intelligenzminderung (IM) besteht ein spezifischer Unterstützungsbedarf für die Sicherstellung einer ausreichenden medizinischen Versorgung im Übergang in das Erwachsenenleben. Methode Beschrieben werden die Kernsymptomatik bei Intelligenzminderung, Verlauf und typische Komorbidität, die epidemiologische Relevanz, die spezifische Transitionslücke und sich hieraus ergebende Empfehlungen. Ergebnisse Strukturierungsbedarf besteht anlässlich kognitiver, sozialer und kommunikativer Einschränkungen. Atypische Verläufe und ein erhöhtes Risiko für Verhaltens-, psychische und somatische Störungen sowie Gewalt- und Missbrauchserfahrungen bedingen komplexe Vorgehensweisen. Schlussfolgerung Zur Sicherstellung einer ausreichenden gesundheitlichen Versorgung bedarf es der Wissensvermittlung und der Vorhaltung geeigneter und erreichbarer Strukturen einer multimodalen, interdisziplinären und vernetzten Versorgung zur Überleitung und Weiterversorgung, einschließlich deren Finanzierung.

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Prevalence and characteristics of children with mild intellectual disability in aFrench county

Abstract: MID is an important public health issue based on its prevalence. The associated clinical signs and comorbidities may be warning signs of MID in case of learning difficulties. This study may help decision-makers to develop and organise screening and care for MID.

Cited by 26 publications

References 25 publications

Child and Adolescent Intellectual Disability Screening Questionnaire to identify children with intellectual disability

Child and Adolescent Intellectual Disability Screening Questionnaire to identify children with intellectual disability

Perceived needs among parents of children with a mild intellectual disability in Sweden

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