Perceived needs among parents of children with a mild intellectual disability in Sweden

Abstract

Perceived needs among parents of children with a mild intellectual disability in Sweden. Research, https://doi.org/10. 1080/15017419.2016.1167773 Access to the published version may require subscription. Parents of children with a mild intellectual disability experience more distress and require more support than other parents. The aim was to investigate the perceived family needs of parents of children with an MID and to investigate the relationship between parents' perceived selfefficacy in their parental role and in collaborating with professionals as well as with their perceived needs for support. Interviews were based on questionnaires to the parents of 38 children. The results revealed that parents perceived need for information, respite, and venues in which to meet other parents in similar situations. The informational needs were related to parental self-efficacy and obtaining support. A lower need for information was related to higher perceived control over services. In conclusion, it appears that professionals need to work to strengthen parents' ability to ask for support and to express the needs. Wellinformed parents will develop stronger parental self-efficacy and perceived control over services. Scandinavian Journal of Disability ARTICLE HISTORY

Immigrant Youths with Disabilities and Caregivers from the Middle-East—Challenges and Needs During Transition to Adulthood

“…This is in line with the results of a Swedish survey showing a lack of knowledge about support on the part of parents of children with disabilities who were born abroad compared to parents born in Sweden (Broberg et al, 2014). It is also in line with a Swedish study in which the FNS was used to identify the needs of the parents of children 7-17 years of age with mild ID (Huus et al, 2016). Both youths and caregivers in the present study desired personalized information and support to handle transition and is consistent with the results of earlier studies involving non-immigrant Swedish youths with CP and their parents (Björquist, Nordmark, & Hallström, 2015, 2016 2014).…”

Social service utilisation in relation to class setting - a longitudinal study among children with mild intellectual disability in Sweden

“…Parents in families of children with mild ID in which the mother participate in paid work or have higher levels of education have reported lower levels of needs for certain kinds of disability-related services (e.g. counselling, contact with other parents of children with disabilities); however, not for community services (Huus et al 2017). According to other studies, children of parents with lower levels of education utilise services to a lesser extent than children of parents with higher levels of education (Thomas et al 2007;Weller, Minkovitz, and Anderson 2003).…”

“…Compared to their peers, they have a higher prevalence of several disorders (Allerton, Welch, and Emerson 2011), are more likely to face violence (Jones et al 2012) and maltreatment (Lightfoot, Hill, and LaLiberte 2011), and to live in families facing financial discrepancies (Emerson et al 2010). Among families of children with mild ID living in Sweden, financial distress (Huus et al 2017;Olsson et al 2015), a vulnerability to other social problems (Olsson et al 2015) and a high occurrence of co-existing disorders among the children has been observed (Huus et al 2017;Lindblad, Gillberg, and Fernell 2011). Altogether, this means that these children, together with their families, generally require various kinds of services to have their needs met (Douma, Dekker, and Koot 2006;Weiss and Lunsky 2010).…”

Familia y discapacidad intelectual: necesidades percibidas en el contexto familiar

“…En el aspecto emocional surge como una necesidad prioritaria el control del estrés (Bitencourt, 2018;Kleefman et al, 2015), en ocasiones las familias afirman sentirse aisladas (Galpin et al, 2018;Schofield, 2012). Acusan también la desinformación, así aparece frecuentemente la necesidad de información por parte de los profesionales (Balcells-Balcells et al, 2019;Derguy et al, 2015;Huus et al, 2017;Schofield 2012), información sobre servicios (Brown et al, 2012;Hodgetts et al, 2015) y sobre programas de educación especial (Cavkaytar et al, 2012).…”