Prenatal counselling for congenital anomalies: a systematic review

Marokakis, Sarah; Kasparian, Nadine A.; Kennedy, Seán

doi:10.1002/pd.4836

Cited by 71 publications

(76 citation statements)

References 38 publications

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“…Thus, we believe there is a sound basis for the suggestions and recommendations outlined below and listed in Table 4. These recommendations also align with findings of a recent systematic review of counselling for other congenital anomalies [8].…”

Section: Discussionsupporting

confidence: 75%

Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study

2016

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Section: Discussionsupporting

confidence: 75%

Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study

2016

Self Cite

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“…Internet resources then can help create virtual communities with the participation of family members living with similar phenomena, sharing their lived experiences, especially via messaging service and social media. However, access to additional sources of information or group support on the Internet can also increase anxiety when parents expose themselves to information about poor outcomes or inaccurate information (Arya, Glickstein, Levasseur, & Williams, 2013;Marokakis, Kasparian, & Kennedy, 2016).…”

Section: Discussionmentioning

confidence: 99%

Bad news: Families’ experiences and feelings surrounding the diagnosis of Zika‐related microcephaly

et al. 2018

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The rapidly increasing number of cases of Zika virus and limited understanding of its congenital sequelae (e.g., microcephaly) led to stories of fear and uncertainty across social media and other mass communication networks. In this study, we used techniques generic to netnography, a form of ethnography, using Internet‐based computer‐mediated communications as a source of data to understand the experience and perceptions of families with infants diagnosed with Zika‐related microcephaly. We screened 27 YouTube™ videos published online between October 2015 and July 2016, during which the Zika epidemic started, peaked, and declined. We identified three themes: (a) experiencing the news of a diagnosis of Zika‐associated microcephaly; (b) experiencing feelings and expectations of the ‘imperfect’ child; and (c) seeking to understand microcephaly to care for the child. We found that families experienced distressing feelings of shock, sadness, hopelessness, and pain, while dealing with emerging and sometimes conflicting information being transmitted by news outlets, uncertainty about the child's health, and healthcare providers’ lack of clarity to guide the family members. The ‘unknown’ factor of ZIKA was an additional stressful factor in the experience of the families.

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“…Families experiencing a pregnancy complicated by a fetal anomaly also face unique stresses . During the pregnancy, they experience higher levels of psychological distress than do families experiencing normal pregnancies .…”

Section: Introductionmentioning

confidence: 99%

A Model of Group Prenatal Care for Patients with Prenatally Diagnosed Fetal Anomalies

Schwarz

Froh

Farmer

et al. 2020

J Midwife Womens Health

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The model of group prenatal care was initially developed to include peer support and to improve education and health‐promoting behaviors during pregnancy. This model has since been adapted for populations with unique educational needs. Mama Care is an adaptation of the CenteringPregnancy Model of prenatal care. Mama Care is situated within a national and international referral center for families with prenatally diagnosed fetal anomalies. In December 2013, the Center for Fetal Diagnosis and Treatment at Children's Hospital of Philadelphia began offering a model of group prenatal care to women whose pregnancies are affected by a prenatal diagnosis of a fetal anomaly. The model incorporates significant adaptations of CenteringPregnancy in order to accommodate these women, who typically transition their care from community‐based settings to the Center for Fetal Diagnosis and Treatment in the late second or early third trimester. Unique challenges associated with caring for families within a referral center include a condensed visit schedule, complex social needs such as housing and psychosocial support, as well as an increased need for antenatal surveillance and frequent preterm birth. Outcomes of the program are favorable and suggest group prenatal care models can be developed to support the needs of patients with prenatally diagnosed fetal anomalies.

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Prenatal counselling for congenital anomalies: a systematic review

Abstract: Although prenatal counselling reduced parental anxiety, further research is needed to adequately assess the impact of prenatal counselling on other psychological outcomes. © 2016 John Wiley & Sons, Ltd.

Cited by 71 publications

References 38 publications

Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study

Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study

Bad news: Families’ experiences and feelings surrounding the diagnosis of Zika‐related microcephaly

A Model of Group Prenatal Care for Patients with Prenatally Diagnosed Fetal Anomalies

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