Preference-based measurement of mobility-related quality of life: developing the MobQoL-7D health state classification system

Bray, Nathan; Edwards, Rhiannon Tudor

doi:10.1080/09638288.2020.1844319

Cited by 7 publications

(3 citation statements)

References 45 publications

(73 reference statements)

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“…We first conducted Rasch analysis as recommended by Tennant and Conaghan 31 and applied by developers of CSPBIs. 15 , 16 , 32 – 62 Data that fit the Rasch model satisfy the condition for interval-level data. 31 In addition, item and person parameters are independent of the sample.…”

Section: Methodsmentioning

confidence: 99%

Developing the Breast Utility Instrument to Measure Health-Related Quality-of-Life Preferences in Patients with Breast Cancer: Selecting the Item for Each Dimension

Tsui

Trudeau

Mitsakakis

et al. 2022

MDM Policy & Practice

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Introduction. Generic preference-based instruments inadequately measure breast cancer (BrC) health-related quality-of-life preferences given advances in therapy. Our overall purpose is to develop the Breast Utility Instrument (BUI), a BrC-specific preference-based instrument. This study describes the selection of the BUI items. Methods. A total of 408 patients from diverse BrC health states completed the EORTC QLQ-C30 and BR45 (breast module). For each of 10 dimensions previously assessed with confirmatory factor analysis, we evaluated data fit to the Rasch model based on global model and item fit, including threshold ordering, item residuals, infit and outfit, differential item functioning (age), and unidimensionality. Misfitting items were removed iteratively, and the model fit was reassessed. From items fitting the Rasch model, we selected 1 item per dimension based on high patient- and clinician-rated item importance, breadth of item thresholds, and clinical relevance. Results. Global model fit was good in 7 and borderline in 3 dimensions. Separation index was acceptable in 4 dimensions. Item selection criteria were maximized for the following items: 1) physical functioning (trouble taking a long walk), 2) emotional functioning (worry), 3) social functioning (interfering with social activities), 4) pain (having pain), 5) fatigue (tired), 6) body image (dissatisfied with your body), 7) systemic therapy side effects (hair loss), 8) sexual functioning (interest in sex), 9) breast symptoms (oversensitive breast), and 10) endocrine therapy symptoms (problems with your joints). Conclusions. We propose 10 items for the BUI. Our next steps include assessing the measurement properties prior to eliciting preference weights of the BUI. Highlights A previous confirmatory factor analysis established 10 dimensions of the European Organisation for Research and Treatment of Cancer (EORTC) core quality of life questionnaire (QLQ-C30) and its breast module (BR45). In this study, we selected 1 item per dimension based on fit to the Rasch model, patient- and clinician-rated item importance, breadth of item thresholds, and clinical relevance. These items form the core of the future Breast Utility Instrument (BUI). The future BUI will be a novel breast cancer–specific preference-based instrument that potentially will better reflect women’s preferences in clinical decision making and cost utility analyses.

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Section: Methodsmentioning

confidence: 99%

Developing the Breast Utility Instrument to Measure Health-Related Quality-of-Life Preferences in Patients with Breast Cancer: Selecting the Item for Each Dimension

Tsui

Trudeau

Mitsakakis

et al. 2022

MDM Policy & Practice

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“…For instance, the preference among people with mild to severe hemiparesis after a stroke determines which lower limb is usually used for support during an upright stance. For those with more severe disabilities, the convenience field determines the supporting lower extremity [ 15 , 16 ]. Given the findings from the research listed above, rather than single-item questions, lateral preference should be evaluated using multi-item inventories (e.g., writing for handedness).…”

Section: Introductionmentioning

confidence: 99%

Cross-Cultural Adaptation of the Arabic Version of the Waterloo Footedness Questionnaire-Revised to Assess Footedness in Arabic-Speaking Adults

Aldaihan

2023

Cureus

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Purpose: The goal of this research is to translate and analyze the psychometric properties of the Arabic version of the Waterloo Footedness Questionnaire-Revised (WFQ-R). Materials and methods: Two native Arabic speakers created separate forward translations, which were then merged. Two different multilingual translators were used to translate it back into English from the synthetic version. Experts were gathered for a discussion on how to improve the localization and adaptation processes. A group of specialists was convened to analyze the localization and modification procedures. We now have the Arabic version of the WFQ-R which is "WFQ-R-Ar". Two hundred and ninety Arabic-speaking adults over the age of 18 were surveyed to evaluate the WHQ-R-Ar's characteristics (internal consistency, test-retest reliability, and construct validity). Results: The WFQ-R-Ar had no collisions with the ground or the sky. The factor analysis showed that the construct validity of the WFQ-R-Ar was dependent on a single factor. The WFQ-R-Ar also has excellent internal consistency, with a Cronbach's alpha of 0.93. The reliability of the examinations was examined, and it was found to have an intraclass correlation value of 0.94. Conclusion: The WFQ-R-Ar may be relied on to provide accurate results when used to evaluate footedness in Arabic-speaking society.

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“…Some months after receipt of the equipment, a follow-up tool, Part C, is sent to the user to complete, requesting a re-rating of their satisfaction against their chosen outcomes. Ongoing work on the quality of life of users of mobility equipment by the authors has shown that the general outcomes desired by adults are closely related [8], hence the wording of this tool was adapted for use with adults as WATCH-Ad. The tools can be used as paper based (See Supporting information 1) or can be completed electronically (see https://cheme.bangor.ac.uk/watch.php).…”

Section: Introductionmentioning

confidence: 99%

Use of patient centred outcomes measures alongside the personal wheelchair budget process in NHS England: a mixed methods approach to exploring the staff and service user experience of using the WATCh and WATCh-Ad Tools

Tuersley

Quaye

Edwards

et al. 2022

Preprint

Self Cite

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Summary Background and Objective Personal wheelchair budgets (PWBs) are offered to everyone in England eligible for an NHS wheelchair, to support their choice of equipment. The WATCh (Wheelchair outcomes Assessment Tool for Children) and related WATCh-Ad tool for adults are patient centred outcomes measures (PCOMs) developed to help individual users express their main outcome needs when obtaining a wheelchair and rate their satisfaction with subsequent outcomes after receiving their equipment. We explored their use in a real-world setting, aiming to produce guidance for use alongside the PWB process. Methods Three wheelchair service provider organisations across four sites participated. Staff and users completed surveys about their experience of the WATCh and/or WATCh-Ad tools used in the assessments. Towards the end of the study, selected patients were interviewed after receipt of their equipment, and staff were interviewed after experiencing a number of assessments. Thematic analysis was undertaken using the tool, survey and interview data. Results Information on 75 assessments by 15 staff was obtained. Over three-quarters of users or their carers rated the use of the tools in the assessment process as ‘helpful’ or ‘very helpful’. Staff reported that use of the WATCh tools had been considered ‘useful’ in developing individual care plans in around 1 in 3 cases and affected the prescription in 1 in 4 cases. Concerns were expressed around the length of time taken to administer the tools in clinic, although some staff noted this reduced with more hands-on experience, and by providing the tools to users in advance of the appointment. Conclusions The WATCh and WATCh-Ad PCOM tools are suitable for routine use by wheelchair service providers to assist the assessment process. It is recommended that tool materials are provided in advance to users/carers, and that staff are allowed time to develop their ways of working with them.

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Preference-based measurement of mobility-related quality of life: developing the MobQoL-7D health state classification system

Cited by 7 publications

References 45 publications

Developing the Breast Utility Instrument to Measure Health-Related Quality-of-Life Preferences in Patients with Breast Cancer: Selecting the Item for Each Dimension

Developing the Breast Utility Instrument to Measure Health-Related Quality-of-Life Preferences in Patients with Breast Cancer: Selecting the Item for Each Dimension

Cross-Cultural Adaptation of the Arabic Version of the Waterloo Footedness Questionnaire-Revised to Assess Footedness in Arabic-Speaking Adults

Use of patient centred outcomes measures alongside the personal wheelchair budget process in NHS England: a mixed methods approach to exploring the staff and service user experience of using the WATCh and WATCh-Ad Tools

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