Predictors of Self-Care in Adolescents With Cystic Fibrosis: A Test of Orem's Theories of Self-Care and Self-Care Deficit

Baker, Lois K.; Denyes, Mary J.

doi:10.1016/j.pedn.2007.07.008

Cited by 35 publications

(35 citation statements)

References 26 publications

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“…In a study involving 123 adolescents with cystic fibrosis, scoring higher on the sense of coherence was significantly associated with self-care agency (Baker & Denyes, 2008). With reference to Orem's theory of self-care (Orem, 1985), the authors defined self-care agency as encompassing health knowledge, decision-making capacity, valuing of and attention to health, as well as having enough energy to care for oneself (Baker & Denyes, 2008).…”

Section: Sense Of Coherence In Relation To Adherence and Self-carementioning

confidence: 99%

The Handbook of Salutogenesis

et al. 2017

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Section: Sense Of Coherence In Relation To Adherence and Self-carementioning

confidence: 99%

The Handbook of Salutogenesis

et al. 2017

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“…Self-management skills are integral to both optimal medication adherence and the achievement of independence necessary for a successful health care transition [McDonagh and Hackett, 2008;Watson, 2005]. Tools are available to assess readiness and guide progression [Baker and Denyes, 2008]. And, yes, 'there is an app for that' to appeal to the tech-savvy teen [Cummings et al 2011].…”

Section: Lung Transplantation Processmentioning

confidence: 99%

Transplanting the adolescent cystic fibrosis patient: can we do it?

Oshrine

McGrath

Goldfarb

2012

Ther Adv Respir Dis

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Bilateral lung transplantation remains a treatment for end-stage cystic fibrosis (CF) lung disease when there is no further medical or surgical treatment available. The aim of lung transplantation is to improve patient life expectancy. The consensus view that lung transplantation extends life in children has been challenged. However, challengers have faced alternative explanations of their finding and it is largely accepted that lung transplantation in the adolescent patient population is an important treatment modality. The goal of this article is to address these concerns and assist with developing creative approaches to this known challenging subset of patients. The main focus of this article will be to discuss the looming question: what existing evidence or best practice insights could improve bilateral lung transplantation outcomes for adolescent patients with end-stage CF?

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“…The identification of educational needs is crucial for nursing, especially at the time of diagnosis, in genetic counselling, in the life cycle transition periods in pre and post pulmonary transplantation, hospitalization and return home, in daily life activities, re-entry in school and in the promotion of the quality of life of adolescents with cystic fibrosis and family caregivers 9 , 11 - 13 .…”

Section: Discussionmentioning

confidence: 99%

“…Many authors study the transition to adult health services, since the developments in care for adolescents and training provided to families has helped to increase these patients' life expectancy, thus becoming a new area of knowledge to be explored 13 , 15 . Authors have reflected on the need to implement measures to help these adolescents' transition to adult health services, as well as the focus areas that nurses should consider, namely the identification of the family support and information provided, coordination of the transition and information process 13 , 15 .…”

Section: Discussionmentioning

confidence: 99%

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Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature review

Reisinho¹,

Gomes

2016

Rev. Latino-Am. Enfermagem

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Objectives:to search for nursing interventions focused on the improvement of quality of life and promotion of self-care of adolescents suffering from the Cystic Fibrosis. Method:literature review. The inclusion criteria were: primary studies and studies with interventions developed by nurses in the adolescent population with Cystic Fibrosis, using Portuguese, Spanish, French and English with no time limit, and supported by the databases Scopus, Web of Science and CINAHL. The search expressions were: nursing AND care AND adolescent AND "Cystic Fibrosis" AND ("quality of life" OR "self-care"). Results:a total of 59 articles was retrieved; 8 matched the criteria chosen. Nursing interventions targeted at adolescents with Cystic Fibrosis and their family members were identified. These interventions were organized according to the nurses' role, namely caregiver, coordinator, counsellor, researcher, trainer and care partner. Conclusions:nursing interventions targeted at following up the adolescent during the entire therapeutic process, involving the presence of parents/significant others, since both the adolescent and family have to be responsible for self-care. Healthcare professionals should be capable of identifying the specific needs of patients with chronic disease and their family, permitting a better understanding and adaptation to the health-disease transition process.

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Predictors of Self-Care in Adolescents With Cystic Fibrosis: A Test of Orem's Theories of Self-Care and Self-Care Deficit

Cited by 35 publications

References 26 publications

The Handbook of Salutogenesis

The Handbook of Salutogenesis

Transplanting the adolescent cystic fibrosis patient: can we do it?

Nursing interventions in monitoring the adolescent with Cystic Fibrosis: a literature review

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