Predictors of participation of adolescents with cerebral palsy: A European multi-centre longitudinal study

Dang, Van Mô; Colver, Allan; Dickinson, Heather O; Marcelli, Marco; Michelsen, Susan Ishøy; Parkes, Jackie; Parkinson, Kathryn; Rapp, Marion; Arnaud, Catherine; Nystrand, Malin; Fauconnier, J.

doi:10.1016/j.ridd.2014.10.043

Cited by 52 publications

(65 citation statements)

References 56 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The considerations above are even more worrisome in the case of the investigated sample, given the high levels of parental stress it exhibited, agreeing with the findings reported by Dang et al (2015) and Ribeiro et al (2014). Almost half of the participants have stress levels requiring clinical evaluation and probably need therapy assistance.…”

Section: Discussionsupporting

confidence: 85%

Parental Stress and Social Support of Caregivers of Children With Cerebral Palsy

Lima

Cardoso

Silva

2016

Paidéia (Ribeirão Preto)

View full text Add to dashboard Cite

Stress and social support are relevant variables for understanding the impact of disability on the care relationship. Thus, this study investigates the association between the parental stress index, social support indicators, and the sociodemographic variables of caregivers of children with cerebral palsy in a capital city of the Eastern Amazon. The following instruments were applied to 100 caregivers: the Sociodemographic Inventory, the Gross Motor Function Classification System, the Parenting Stress Index, and the Medical Outcomes Study Social Support Survey. For data analysis, descriptive statistics were used, in addition to techniques of multivariate analysis. It was found that most participants had high parental stress and a high perception of social support. Specific aspects of the perception of social support and sociodemographic indicators were associated with stress. This knowledge favors the design of more assertive interventions because it outlines the aspects of these variables that appear to have a more effective impact on parental stress.

show abstract

Section: Discussionsupporting

confidence: 85%

Parental Stress and Social Support of Caregivers of Children With Cerebral Palsy

Lima

Cardoso

Silva

2016

Paidéia (Ribeirão Preto)

View full text Add to dashboard Cite

show abstract

“…Contributors to pain are multifactorial and include hip subluxation, muscle spasms, dystonia and constipation . Pain has been shown to be a key barrier to participation in community life, school and recreation for children with cerebral palsy, and it can also affect sleep, having an impact on the whole family's quality of life . Assessment of pain in children with cerebral palsy can be complex, particularly in those with intellectual disability and/or communication impairments.…”

Section: Management Of Cerebral Palsymentioning

confidence: 99%

Current thinking in the health care management of children with cerebral palsy

Graham

Paget

Wimalasundera

2019

Medical Journal of Australia

View full text Add to dashboard Cite

Summary Cerebral palsy is a developmental disorder of movement and posture which is often associated with comorbidities. While there is currently a limited range of evidence‐based treatments that change the underlying pathology of cerebral palsy, there are many areas in which health care professionals can change the natural history of cerebral palsy and improve participation and quality of life for children with this condition. Early identification has become of paramount importance in the management of cerebral palsy, and it is hoped that it will allow earlier access to cerebral palsy interventions that may improve the natural history of the condition. Common challenges in the management of cerebral palsy include spasticity and dystonia, management of pain, hip surveillance, sleep and feeding, swallowing and nutrition. The six Fs framework (function, family, fitness, fun, friends and future) provides a guide to developing shared goals with families in the management of cerebral palsy.

show abstract

“…The pain children with CP experience has a negative effect on their daily activities, participation, and mental health . Children with CP reported lower quality of life than their healthy peers .…”

mentioning

confidence: 99%

Assessments of pain in children and adolescents with cerebral palsy: a retrospective population‐based registry study

Westbom

Rimstedt²,

Nordmark

2017

Develop Med Child Neuro

View full text Add to dashboard Cite

show abstract

Predictors of participation of adolescents with cerebral palsy: A European multi-centre longitudinal study

Cited by 52 publications

References 56 publications

Parental Stress and Social Support of Caregivers of Children With Cerebral Palsy

Parental Stress and Social Support of Caregivers of Children With Cerebral Palsy

Current thinking in the health care management of children with cerebral palsy

Assessments of pain in children and adolescents with cerebral palsy: a retrospective population‐based registry study

Contact Info

Product

Resources

About