Practice Nurses' views of their role in the management of Chronic Fatigue Syndrome/Myalagic Encephalitis: a qualitative study

Chew‐Graham, Carolyn; Dixon, Rebecca R.; Shaw, Jonathan W; Smyth, Nina; Lovell, Karina; Peters, Sarah

doi:10.1186/1472-6955-8-2

Cited by 28 publications

(35 citation statements)

References 18 publications

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“…The experiences of PNs resonates with other studies where lack of knowledge and insufficient training limits PNs' wishes to expand their role to incorporate ongoing management of patients with complex problems. [35] Previous research suggests many PwMS experience depressive symptoms that are undiagnosed and therefore untreated. [36,14] Our study suggests one potential reason, i.e.…”

Section: Comparisons With Previous Literaturementioning

confidence: 99%

Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Methley

Campbell

Cheraghi-Sohi

et al. 2016

Disability and Rehabilitation

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Section: Comparisons With Previous Literaturementioning

confidence: 99%

Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Methley

Campbell

Cheraghi-Sohi

et al. 2016

Disability and Rehabilitation

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“…For example, in a study of practice nurses views of chronic fatigue syndrome, some nurses described patients as lazy or illegitimate – a view that challenges the stereotype of a nursing professional as a sympathetic and caring person 15. This gives important information about the education and supervision required to enable or train general nurses to ensure that they are capable of delivering psychological interventions for these types of problems.…”

Section: Beginners Guide To Qualitative Approaches: One Size Doesn't mentioning

confidence: 99%

Qualitative Research Methods in Mental Health

Peters

2010

Evid Based Mental Health

112

106

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As the evidence base for the study of mental health problems develops, there is a need for increasingly rigorous and systematic research methodologies. Complex questions require complex methodological approaches. Recognising this, the MRC guidelines for developing and testing complex interventions place qualitative methods as integral to each stage of intervention development and implementation. However, mental health research has lagged behind many other healthcare specialities in using qualitative methods within its evidence base. Rigour in qualitative research raises many similar issues to quantitative research and also some additional challenges. This article examines the role of qualitative methods within mental heath research, describes key methodological and analytical approaches and offers guidance on how to differentiate between poor and good quality qualitative research.

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“…For example, 65% of the Action for ME members surveyed [17] report never receiving any treatment. Even when a diagnosis has been given, many primary care health professionals feel ill equipped to deliver treatments [18,19]. The need for better communication and education on the management of CFS/ME has been consistently highlighted [18,20,21].…”

Section: Introductionmentioning

confidence: 99%

Developing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME) in primary care: a qualitative study

et al. 2012

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BackgroundNICE guidelines emphasise the need for a confident, early diagnosis of Chronic Fatigue Syndrome/ Myalgic Encephalitis (CFS/ME) in Primary Care with management tailored to the needs of the patient. Research suggests that GPs are reluctant to make the diagnosis and resources for management are currently inadequate. This study aimed to develop resources for practitioners and patients to support the diagnosis and management of CFS/ME in primary care.MethodsSemi structured interviews were conducted with patients, carers, GPs, practice nurses and CFS/ME specialists in North West England. All interviews were audio recorded, transcribed and analysed qualitatively using open explorative thematic coding. Two patient involvement groups were consulted at each stage of the development of resources to ensure that the resources reflect everyday issues faced by people living with CFS/ME.ResultsPatients and carers stressed the importance of recognising CFS/ME as a legitimate condition, and the need to be believed by health care professionals. GPs and practice nurses stated that they do not always have the knowledge or skills to diagnose and manage the condition. They expressed a preference for an online training package. For patients, information on getting the most out of a consultation and the role of carers was thought to be important. Patients did not want to be overloaded with information at diagnosis, and suggested information should be given in steps. A DVD was suggested, to enable information sharing with carers and family, and also for those whose symptoms act as a barrier to reading.ConclusionRather than use a top-down approach to the development of training for health care practitioners and information for patients and carers, we have used data from key stakeholders to develop a patient DVD, patient leaflets to guide symptom management and a modular e-learning resource which should equip GPs to diagnose and manage CFS/ME effectively, meet NICE guidelines and give patients acceptable, evidence-based information.

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Practice Nurses' views of their role in the management of Chronic Fatigue Syndrome/Myalagic Encephalitis: a qualitative study

Cited by 28 publications

References 18 publications

Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Qualitative Research Methods in Mental Health

Developing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME) in primary care: a qualitative study

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