Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Methley, Abigail; Campbell, Stephen; Cheraghi-Sohi, Sudeh; Chew-Graham, Carolyn A

doi:10.1080/09638288.2016.1180547

Cited by 17 publications

(35 citation statements)

References 39 publications

(38 reference statements)

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“…Feelings of depression, losses they incurred and emotional turmoil are associated for participants to the symptoms' appearance, agreeing with previous research findings [18]. MS was conceptualized as a psychological disease and participants reflected on cognitive and emotional means of coping with the symptoms.…”

Section: Self-transformation: Focusing On the Present And Looking Beysupporting

confidence: 89%

“…Restructuring and continuity of their identity, emotions, relationships, self-efficacy have been correlated to better mental health and psychological well-being [3,11,13]. The role of psychotherapy in these processes, enhancing cognitive appraisal and coping requires further investigation [13] through systematic exploratory analysis of diverse perspectives [18]. Focusing on PwMS's accounts of their lived experience of psychotherapy, the present study aims to add to the knowledge of how psychotherapy facilitates PwMS's endeavor to acquire coherence and consolidate a new identity after the diagnosis.…”

Section: Original Articlementioning

confidence: 99%

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Patients with Multiple Sclerosis in Psychotherapy: Processes of Meaning Making and Self Transformation

Evangelia¹,

Anagnostopoulos²,

Triliva³

et al. 2020

Int J Psychol Psychoanal

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Background: Recent empirical literature on autoimmune diseases has focused extensively on the implementation and evaluation of psychosocial interventions. Psychotherapy and counselling processes for multiple sclerosis (MS) have gained special attention given the cognitive and behavioral dimensions of the symptoms as well as their unpredictable course. The current study aims to gain a deeper understanding of the meaning making processes for persons with MS (PwMS) who are in psychotherapy treatment. Method: The sample of this study consisted of ten PwMS who described their experience of the illness and of psychotherapy of choice through semi-structured interviews. Data collection and analysis adhered to Interpretative Phenomenological Analysis guidelines. Results: The results revealed that PwMS struggled with understanding the initial symptoms, contemplated taking medication, and related symptom development to psychological factors such as depression. Participants were preoccupied with disability representations and questioned the trustworthiness of their bodies. They worked towards integrating the illness into their identity and described how psychotherapy encouraged psychological agency whilst feeling supported and "accepted". Conclusions: Psychotherapy contributes to the processes of shaping participants' life worlds, offering a space to self-organize and reflect within genuine therapeutic relationships.

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Section: Self-transformation: Focusing On the Present And Looking Beysupporting

confidence: 89%

Section: Original Articlementioning

confidence: 99%

Patients with Multiple Sclerosis in Psychotherapy: Processes of Meaning Making and Self Transformation

Evangelia¹,

Anagnostopoulos²,

Triliva³

et al. 2020

Int J Psychol Psychoanal

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“…In this research, some people with MS appeared to describe this process in reverse, such that diagnosis acted as a (temporary) form of narrative repair, which overtime was replaced by abruption or a burgeoning awareness of gradual decline. One fifth of English people who kill themselves have a chronic illness (Bazalgette 2011), and it is imperative that selfmanagement of MS is a meaningful choice for people and adjunct to, rather than instead of, high quality medical treatment and social support (Methley et al 2016).…”

Section: Discussionmentioning

confidence: 99%

A qualitative investigation of lay perspectives of diagnosis and self-management strategies employed by people with progressive multiple sclerosis

2016

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Abstract:This paper explores how people with progressive Multiple Sclerosis (MS) give meaning to their experiences. It builds upon the self-management literature, which has captured the tension between the desire for retaining normalcy and the increasing burden of self-management associated with chronic disease progression. This repeat interview study is empirically grounded in twenty eight interviews with fourteen people with progressive MS. We identified gender differences in diagnosis-seeking which impacted upon subsequent sense-making. Male respondents found a diagnosis of MS difficult to come to terms with, and an enduring sense of loss or anger could inhibit further sense-making. A diagnosis of MS was more difficult to obtain for women respondents, and any sense of certainty that diagnosis provided framed their subsequent sense-making strategies. The complex sequelae of MS require that self-management strategies are both contextual and timely; although even the most accomplished selfmanagers can lose their sense of self with neurodegeneration. Disease progression can be associated with suicidal ideation, suggesting the need for greater dialogue to ensure that people with MS are adequately supported to fulfil their quality of life at all stages of neurodegeneration. These lay perspectives emphasise the articulation of affect rather than the rendering of a medical diagnosis, although diagnosis may provide a degree of certainty in the short term. The ethos of self-management ensures people attempt to retain their sense of 'normality' and existent social roles for as long as possible, but this ethos can negate both ones' ability to selfmanage and the management of self.http://mc.manuscriptcentral.com/health Health: an interdisciplinary journal for the social study of health, Illness and medicine This repeat interview study is empirically grounded in twenty eight interviews with fourteen people with progressive MS. We identified gender differences in diagnosisseeking which impacted upon subsequent sense-making. Male respondents found a diagnosis of MS difficult to come to terms with, and an enduring sense of loss or anger could inhibit further sense-making. A diagnosis of MS was more difficult to obtain for women respondents, and any sense of certainty that diagnosis provided framed their subsequent sense-making strategies. The complex sequelae of MS require that self-management strategies are both contextual and timely; although even the most accomplished self-managers can lose their sense of self with neurodegeneration. Disease progression can be associated with suicidal ideation, suggesting the need for greater dialogue to ensure that people with MS are adequately supported to fulfil their quality of life at all stages of neurodegeneration.These lay perspectives emphasise the articulation of affect rather than the rendering of a medical diagnosis, although diagnosis may provide a degree of certainty in the short term. The ethos of self-management ensures people attempt to retain their sense of 'normality' an...

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“…41 Indeed, one study found that patients and healthcare professionals view family practitioners as the healthcare provider best suited to play a central role in meeting MS patients' mental healthcare needs. 42 Psychological and pharmacological therapies have been shown to be effective in MS patients with depression. 43 Patients can also be counseled on the benefits of exercise, mindfulness, yoga, and other stress management techniques that may enable them to cope better with chronic illness.…”

Section: Health Maintenance and Promotionmentioning

confidence: 99%

“…Of particular importance in primary care is the diagnosis and management of depression and anxiety, both of which occur in >20% of patients 41 . Indeed, one study found that patients and healthcare professionals view family practitioners as the healthcare provider best suited to play a central role in meeting MS patients’ mental healthcare needs 42 . Psychological and pharmacological therapies have been shown to be effective in MS patients with depression 43 .…”

Section: Role Of the Pcp In Managing Patients Diagnosed With Rrmsmentioning

confidence: 99%

Toward a Shared-Care Model of Relapsing-Remitting Multiple Sclerosis: Role of the Primary Care Practitioner

Gagné-Brosseau

Guenette

et al. 2018

Can. J. Neurol. Sci.

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La SP est une maladie complexe et invalidante qui, à l'instar d'autres maladies chroniques, exige des soins multidisciplinaires continus afin de répondre, en lien avec un tableau clinique précis, aux besoins en constante évolution des patients. Les médecins de première ligne peuvent jouer un rôle irremplaçable à plusieurs égards : dans le maintien d'une bonne santé ; le suivi et le soulagement des symptômes et des comorbidités reliés à la SP ; le suivi des rechutes et des effets indésirables associés aux traitements. N'oublions pas non plus la coordination des services paramédicaux afin d'assurer, durant l'évolution de la SP, une continuité des soins répondant aux besoins complexes et en constante évolution des patients atteints de cette maladie.

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Meeting the mental health needs of people with multiple sclerosis: a qualitative study of patients and professionals

Cited by 17 publications

References 39 publications

Patients with Multiple Sclerosis in Psychotherapy: Processes of Meaning Making and Self Transformation

Patients with Multiple Sclerosis in Psychotherapy: Processes of Meaning Making and Self Transformation

A qualitative investigation of lay perspectives of diagnosis and self-management strategies employed by people with progressive multiple sclerosis

Toward a Shared-Care Model of Relapsing-Remitting Multiple Sclerosis: Role of the Primary Care Practitioner

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