Posttraumatic stress disorder in parents of children with chronic illnesses: A meta-analysis.

Cabizuca, Mariana; Marques‐Portella, Carla; Mendlowicz, Mauro V.; Coutinho, Evandro Silva Freire; Figueira, Ivan

doi:10.1037/a0014512

Cited by 97 publications

(86 citation statements)

References 50 publications

(67 reference statements)

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“…Quantitative studies tend to examine parental experience from a symptom-focussed perspective, with some researchers arguing for the presence of post-traumatic stress disorder and post-traumatic stress symptomatology in both the childhood survivors of cancer and their parents (Bruce, 2006;Cabizuca, Marques-Portella, Mendlowicz, Coutinho, & Figueira, 2009). For instance, in a recent study by Wijnberg-Williams, Kamps, Klip, and Hoekstra-Weebers (2006) parental psychological distress levels of distress conceived in terms of a trauma response were shown to decrease significantly over a 5 year period from the initial time of the diagnosis.…”

Section: Introductionmentioning

confidence: 99%

Parental experience of childhood cancer using Interpretative Phenomenological Analysis

Schweitzer

Griffiths

Yates

2011

Psychology & Health

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Whilst survival rates for childhood cancer have improved dramatically over the past three decades, it is still a devastating diagnosis for family members and an illness which severely disrupts the lifestyle of the family unit. Developing an understanding of the impact of the illness on the family is crucial to better support families' deal with the demands of the illness. In this study nine families in which a child was diagnosed with cancer were interviewed twice over a 12 month period, approximately 6 months apart. Using Interpretative Phenomenological Analysis, a semi-structured interview was used to explicate parent's experience of childhood cancer. The results revealed five super-ordinate themes; (1) a pivotal moment in time, (2) the experience of adaptation in relation to having a sick child, (3) the nature of support, (4) re-evaluation of values during a critical life experience and (5) the experience of optimism and altruism. Findings indicate that parents express both negative and positive experiences as they re-evaluate the meaning and purpose of life, seek to redefine themselves, often in terms of priorities, relationships, sense of community and achieve degrees of optimism and altruism. Implications for addressing the needs of parents and for further research are discussed.

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Section: Introductionmentioning

confidence: 99%

Parental experience of childhood cancer using Interpretative Phenomenological Analysis

Schweitzer

Griffiths

Yates

2011

Psychology & Health

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“…The parents of chronically ill children often show signs of post-traumatic stress (9). This study first aimed to evaluate the depression and anxiety levels in children and adolescents who were followed-up with a diagnosis of CD in comparison with a healthy control group.…”

Section: Introductionmentioning

confidence: 99%

Depression and anxiety in child and adolescents with follow-up celiac disease and in their families

Esenyel

Ünal²,

Vural³

2014

Turk J Gastroenterol

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Background/Aims: Earlier research has indicated a positive association between Celiac disease and some mental disorders in both adults and children. The aim of this study was to explore the diet compliance and depression and anxiety levels of pediatric celiac children and their families after a gluten-free diet. Materials and Methods: A total of 30 celiac pediatric patients (17 children [57%] and 13 adolescents [43%]) were enrolled in the study, and 20 healthy controls (11 children [55%] and 9 adolescents [45%]) were studied as controls. Depression was assessed with the Children's Depression Inventory (CDI) form, and anxiety was assessed with the Screen for Child Anxiety Related Disorders (SCARED) form. Diet compliance was measured with a diet compliance form, and the families were asked to complete the Beck Depression Measurement (BDI) form for depression and the State-Trait Anxiety Inventory I-II (STAI-I and STAI-II) forms for anxiety. Results: There was no significant difference in depression and anxiety between pediatric celiac patients consuming a gluten-free diet and the healthy control group. We observed no difference in depression and anxiety in the Celiac CD group patients. Diet compliance was 73.3% in the study group. Conclusion: The depression and anxiety levels of pediatric celiac patients and their parents did not differ from those in the healthy group.

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“…A recent meta-analysis 11 found that mothers of children with chronic diseases had a significantly higher PTSD prevalence than fathers. Mothers are usually more affected than fathers, presumably because they are the primary caregiver and get more personally involved in treatment.…”

Section: Discussionmentioning

confidence: 99%

“…Since then, several studies have demonstrated that posttraumatic stress symptoms (PTSS) are frequent among parents of children with severe diseases [4][5][6][7][8][9][10] . In a recent meta-analysis 11 , the pooled prevalence of PTSD in parents of children with chronic medical illnesses (cancer, diabetes mellitus type 1, epilepsy and asthma) or undergoing high-risk procedures (bone marrow or solid organ transplantation) was estimated in 22.8% (95% CI: 16.4%-29%).…”

Section: Introductionmentioning

confidence: 99%

Os pacientes invisíveis: transtorno de estresse pós-traumático em pais de pacientes com fibrose cística

Cabizuca¹,

Mendlowicz²,

Marques‐Portella³

et al. 2010

Rev. psiquiatr. clín.

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Posttraumatic stress disorder in parents of children with chronic illnesses: A meta-analysis.

Abstract: The high prevalence of PTSD found in this population highlights the importance of promptly assessing and treating post-traumatic symptoms in parents of children with chronic diseases as a key step to prevent the negative consequences of PTSD and preserve their competency as caregivers.

Cited by 97 publications

References 50 publications

Parental experience of childhood cancer using Interpretative Phenomenological Analysis

Parental experience of childhood cancer using Interpretative Phenomenological Analysis

Depression and anxiety in child and adolescents with follow-up celiac disease and in their families

Os pacientes invisíveis: transtorno de estresse pós-traumático em pais de pacientes com fibrose cística

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