Placing a spouse in a care home: the importance of keeping

Sandberg, Jonas; Lundh, Ulla; Nolan, Mike

doi:10.1046/j.1365-2702.2001.00497.x

Cited by 60 publications

(75 citation statements)

References 21 publications

(29 reference statements)

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“…Care staff's emphasis on 'doing' rather than 'reacting' to needs formed an integral component of their rehabilitative approach, an act that resonates with the wider literature on care home work (Sandberg et al 2001, Zimmerman et al 2005, Aveyard and Davies 2006. Additional study is required to develop the concept and dimensions of 'prompting' within this specific context.…”

Section: Discussionmentioning

confidence: 97%

Alcohol-related brain damage: Narrative storylines and risk constructions

Keady

Clarke

Wilkinson

et al. 2009

Health, Risk & Society

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To date, the voice and experience of people with alcohol-related brain damage has been silent in the literature. Using narrative research methodology and a focus on risk and quality of life, this paper outlines the analysis of interviews with six people with alcohol-related brain damage who were resident on a specialist care unit for the condition. Of the six participants, four were interviewed twice in line with the study protocol and separate interviews were conducted with a key worker on the unit, a social worker and a relative of one of the female participants. Analysis of the interviews revealed three dominant, narrative storylines: Five Minute Memory; Fractured Lives; and Believing in Recovery. Risk was constructed and experienced in a variety of ways under each of these narrative storylines, but each participant was particularly vulnerable to the assimilation of alcohol-related brain damage as a component and projection of self and identity. In addition, the process of 'prompting' emerged as a way that care staff constructed and discharged their rehabilitative function on the care unit and worked to minimise risk factors. A more co-ordinated, robust and transparent funding, policy, education and service structure for people with alcohol-related brain damage is called for.

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Section: Discussionmentioning

confidence: 97%

Alcohol-related brain damage: Narrative storylines and risk constructions

Keady

Clarke

Wilkinson

et al. 2009

Health, Risk & Society

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“…Lav tilfredshet med kontakten med personalet, liten innflytelse på pleien og lite meningsfull aktivisering av beboerne var funn i Berglunds studie (Berglund, 2007). Studier tyder på at flere pårørende ønsker å bidra ved å gi informasjon og sørge for kontinuitet, følge opp kvalitet i pleien og bidra til at hele gruppen beboere får det bedre (Bern-Klug & Forbes-Thompson, 2008;Davies & Nolan, 2006;Rognstad, Sagbakken & Nåden, 2015;Sandberg, Lundh & Nolan, 2001). Mange pårørende opplever likevel mangel på spesifikk og profesjonell informasjon basert på individuelle behov, og at det er pårørende selv som må ta initiativ til dette (Hertzberg et al, 2001;Norheim & Sommerseth, 2014).…”

Section: Bakgrunnunclassified

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Nakrem¹,

Hynne²

2017

TFO

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Family members often have roles as advocates and provide care for nursing home residents.Collaboration with families is an important part of a person-centred care and may increase the quality of care. The purpose of this study was to explore the experiences of long-term care residents' next-of-kin and how to encounter and support the relatives as collaborative partners and resources, in light of a person-centred care model. Qualitative method was used. Sixteen relatives were interviewed in three different focus groups. The findings indicate that the relatives had mixed feelings toward the nursing home and the role as next-of-kin. They felt a relief when the needs of their loved ones were taken care of, and had great confidence in the service when everything went well. However, they often felt insecurity when they experienced that quality of service was not good enough. This led to increased time spent in the nursing home and follow-up on care. Relatives experienced that they were either included and involved, or excluded and as outsiders. There is an interdependence between strengthening and involving families, and care that is person-centred and promotes residents' health in nursing homes.

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“…Earlier research in acute hospital settings [16, 17] and nursing homes [18, 19] has shown that genuine family involvement in the nursing team is far from a matter of course. The relationship between nurse and family often remains superficial, formal and rather forced [18, 19].…”

Section: Introductionmentioning

confidence: 99%

Nurses' Perceptions of Their Relationships with Informal Carers in Institutional Respite Care for Older People

Salin

Kaunonen

Åstedt‐Kurki

2013

Nursing Research and Practice

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The purpose of this study was to describe nurses' experiences of their collaboration and relationships with family members in institutional respite care for the elderly. The family has a particularly important role in respite care, which is an extension of care provided at home. However no published studies were found on this subject. The data were collected through qualitative interviews (N = 22). Content analysis of the nurses' descriptions of their collaboration with family members yielded four main categories as follows: (1) conscious ignoring, (2) attempting to understand the family's situation, (3) hinting at private family matters, and (4) being a friend. The results lend support to earlier findings which emphasize the complexity of relationships between nurses and family carers. A novel finding here is that these relationships may also develop into friendships. Greater emphasis must be placed on primary nursing so that the nurse and informal carer can build up a genuine relationship of trust. If periods of respite care are to help older people and their families to manage independently, it is imperative that nurses have the opportunity to visit their patients at home.

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Placing a spouse in a care home: the importance of keeping

Cited by 60 publications

References 21 publications

Alcohol-related brain damage: Narrative storylines and risk constructions

Alcohol-related brain damage: Narrative storylines and risk constructions

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Nurses' Perceptions of Their Relationships with Informal Carers in Institutional Respite Care for Older People

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