Pilot study exploring quality of life and barriers to leisure-time physical activity in persons with moderate to severe multiple sclerosis

Vanner, Elizabeth A.; Block, Pamela; Christodoulou, Christopher; Horowitz, Beverly P.; Krupp, Lauren

doi:10.1016/j.dhjo.2007.11.001

Cited by 81 publications

(46 citation statements)

References 59 publications

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“…Although the value of a knowledgeable instructor who understands how to adapt activities for people with disabilities has been previously recognized, 13,17 the present study highlights the great influence of this factor on people's continued participation in the program. Moreover, while other studies have identified instructors' lack of assistance, lack of knowledge about MS, and lack of training in disease-specific AF programs as barriers to participation of people with MS, 13,16,21 the participants in this study identified strong interpersonal skills as a central feature of AF instructor effectiveness.…”

Section: Increased Visibility Of Information Regarding Financial Subsmentioning

confidence: 56%

“…20 For people with MS, barriers to physical activity include the built environment, access to adaptive and exercise equipment, access to information about programs, fatigue, emotional and psychological factors, economic factors, knowledge and training of people working with those with disabilities, people's attitudes and perceptions about individuals with disabilities, facility and city-level policies and procedures, and transportation. 13,14,21 Because the benefits of physical activity for people with MS are well documented but participation rates among this population remain low, more investigation into how to promote participation in leisure activities by people with MS is needed. 13,14 This article describes the findings of a qualitative pilot study on the barriers and facilitators influencing participation in AF programs among people with MS in Winnipeg, Manitoba.…”

Section: Barriers and Facilitators Related To Participationmentioning

confidence: 99%

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Barriers and Facilitators Related to Participation in Aquafitness Programs for People with Multiple Sclerosis

Brown¹,

Kitchen²,

Nicoll³

2012

International Journal of MS Care

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Exercise and leisure activities provide physical and psychosocial benefits to people with multiple sclerosis (MS) and can enhance their quality of life. In Winnipeg, Manitoba, Canada, people with MS have reported barriers to their participation in local MS-specific aquafitness (AF) programs. Therefore, a formal exploration of the accessibility of local AF programs for people with MS was undertaken. The purpose of this phenomenological study was to identify factors that facilitate or impede participation in AF programs by individuals with MS living in Winnipeg. Qualitative data were collected from a total of eight participants through one focus group (n = 7) and one in-depth interview (n = 1). The sample consisted of individuals with MS who were currently participating in AF programming as well as those who were not. Data were audio-recorded and transcribed verbatim, and thematic analysis was completed. Seven themes emerged regarding factors affecting participation in local AF programs. Barriers to participation included inadequate transportation, lack of one-on-one support, environmental inaccessibility, and fears associated with participation in the programs. Facilitators of participation included a knowledgeable instructor and experiencing physical and psychosocial benefits from the program. Information from this study was used locally to advocate for people with MS in order to increase participation in local AF programming. Int J MS Care. 2012;14:132-141.A quafitness (AF) programs provide a variety of physical and psychosocial benefits to people with multiple sclerosis (MS).1-3 Aquafitness programs consist of exercises performed in water, and are sometimes classified as aquatic therapy. 4 In Winnipeg, Manitoba, Canada, AF programs tailored to people with MS are offered through the City of Winnipeg. Although this specialized program has been offered regularly for over 10 years, class sizes have remained small, and anecdotal reports from people with MS have indicated difficulty attending the programs. In order to validate the reports of people with MS in this community and further understand the difficulties associated with participation in these programs, a formal exploration of the accessibility of local AF programs was undertaken. Benefits of AF Programs for People with MSMany advantages of water-based exercise have been identified for individuals with MS. Literature suggests that it can lead to reduced muscle stress, decreased pain, less guarded movement associated with the fear of falling, and improved performance in physical activity due to the properties of water. 5,6 The water supports the body through its density and buoyancy, allowing the individual with MS to move more easily.4,7 Aquatic exercise also limits exercise-induced increases in body temperature, a factor associated with worsening MS-related fatigue symptoms. 6,7 Many physical benefits are associated with AF programs for people with MS, including increased strength,

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Section: Increased Visibility Of Information Regarding Financial Subsmentioning

confidence: 56%

Section: Barriers and Facilitators Related To Participationmentioning

confidence: 99%

Barriers and Facilitators Related to Participation in Aquafitness Programs for People with Multiple Sclerosis

Brown¹,

Kitchen²,

Nicoll³

2012

International Journal of MS Care

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“…[1][2][3][4] Low levels of physical activity can lead to other health conditions, such as cardiovascular disease, obesity, and diabetes, [5][6][7] that will only further impair mobility and function in individuals who use wheeled mobility. Structured exercise is one way to increase physical activity; however, exercise options for people who use wheeled mobility are limited.…”

mentioning

confidence: 99%

Outcomes After Functional Electrical Stimulation Cycle Training in Individuals with Multiple Sclerosis Who Are Nonambulatory

Backus¹,

Burdett²,

Hawkins³

et al. 2017

International Journal of MS Care

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Background: Exercise is safe and beneficial for people with multiple sclerosis (MS). Functional electrical stimulation (FES) cycling offers people with significant weakness and mobility challenges an option for exercise. We sought to evaluate the safety of FES cycling and its potential to improve fatigue, pain, spasticity, and quality of life in people with moderate-to-severe MS. Methods: Sixteen participants with MS who were nonambulatory cycled for 30 minutes two to three times a week for 1 month. Outcomes assessed included MS Quality of Life Inventory (MSQLI) subscales, Modified Ashworth Scale (MAS), and manual muscle test (MMT). Results: Fourteen participants (six women and eight men) with MS completed the training. All were able to maintain or increase their cycle time; half increased the resistance while cycling. Participants demonstrated a significant decrease in the Physical (P = .02) and Psychosocial (P < .01) subscales of the Modified Fatigue Impact Scale. There was no significant change in the other MSQLI subscale scores. There was no change in MAS and MMT scores. Type of MS and the use of antispasticity medications, disease-modifying therapies, or dalfampridine did not seem to influence response to training. There were no adverse events. Conclusions: Functional electrical stimulation cycling may be a viable and effective exercise option for people with moderate-to-severe MS. Further study is required to examine the parameters of FES cycling that are most effective for people with different MS symptoms and to fully explore the potential benefits of optimizing function and improving health in people with MS.

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“…The literature on disability and sport primarily focuses on human performance (e.g., Burkett, 2010), body technology (e.g., Lutgendorf, Mason, van der Woude, & GooseyTolfrey, 2009), psychological motives (e.g., Lundberg, Groff, & Zabriskie, 2010), rehabilitation (e.g., van Langeveld et al, 2011), quality of life/well-being (e.g., Vanner, Block, Christodoulou, Horowitz, & Krupp, 2008), and more recently has included performance technology in sport (e.g., Burkett, 2010). The focus of this paper is to understand conceptually how constraints affect PwD in sport, as this is still an emerging area of research (Sotiriadou & Wicker, 2014).…”

mentioning

confidence: 99%

Enabling Inclusive Sport Participation: Effects of Disability and Support Needs on Constraints to Sport Participation

2016

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Pilot study exploring quality of life and barriers to leisure-time physical activity in persons with moderate to severe multiple sclerosis

Cited by 81 publications

References 59 publications

Barriers and Facilitators Related to Participation in Aquafitness Programs for People with Multiple Sclerosis

Barriers and Facilitators Related to Participation in Aquafitness Programs for People with Multiple Sclerosis

Outcomes After Functional Electrical Stimulation Cycle Training in Individuals with Multiple Sclerosis Who Are Nonambulatory

Enabling Inclusive Sport Participation: Effects of Disability and Support Needs on Constraints to Sport Participation

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