Phantom Eye Syndrome: Types of Visual Hallucinations and Related Phenomena

Rasmussen, Marie Louise Roed; Prause, Jan Ulrik; Ocularist, Martin Johnson; Toft, Peter Bjerre

doi:10.1097/iop.0b013e3181b54b06

Cited by 23 publications

(47 citation statements)

References 13 publications

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“…The presence of phantom eye syndrome did not predict significantly poorer HRQOL or more perceived stress, except for the dimension of bodily pain (Table 5), which is to be expected, because around 44% of patients with phantom eye syndrome indicate phantom pain (Roed Roed Rasmussen et al 2009;Soros et al 2003Soros et al , 2005. In the current sample of patients, the incidence of visual hallucinations was 42% and phantom pain was 23% (Roed Roed Rasmussen et al 2009). From the interviews, we knew that many of the patients find the visual hallucinations disturbing, and most patients keep their visual hallucinations a secret (Roed Roed Rasmussen et al 2009).…”

Section: Discussionmentioning

confidence: 99%

“…In the current sample of patients, the incidence of visual hallucinations was 42% and phantom pain was 23% (Roed Roed Rasmussen et al 2009). From the interviews, we knew that many of the patients find the visual hallucinations disturbing, and most patients keep their visual hallucinations a secret (Roed Roed Rasmussen et al 2009). …”

Section: Discussionmentioning

confidence: 99%

“…The remaining 173 patients had individual interviews and clinical examinations in December 2005, including measurement of visual acuity in the remaining eye, position and configuration of eyelids and eye, motility and signs of exposure of the implant. Medical records were collected and reviewed for information about causative diagnosis (the disease process leading to the clinical condition that resulted in the EA) and the final indication for EA (Roed Roed Rasmussen et al 2009). The study was approved by the regional ethics committee (Copenhagen and Frederiksberg;No.…”

Section: Methodsmentioning

confidence: 99%

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Quality of life of eye amputated patients

Rasmussen

Ekholm

Prause

et al. 2011

Acta Ophthalmologica

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ABSTRACT.Purpose: To evaluate eye-amputated patients' health-related quality of life, perceived stress, self-rated health, job separation because of illness or disability and socioeconomic position. Methods: Patients were recruited from a tertiary referral centre situated in Copenhagen. Inclusion criteria were eye amputation, i.e. evisceration, enucleation, orbital exenteration or secondary implantation of an orbital implant during the period 1996-2003, and participation in a previous investigation (2005). In total, 159 eye-amputated patients were included, and completed a selfadministered questionnaire containing health-related quality of life (SF-36), the perceived stress scale and answered questions about self-rated health, job changes because of illness or disability and socioeconomic status. These results were compared with findings from the Danish Health Interview Survey 2005. Results: The eye-amputated patients had significantly (p < 0.05) lower scores (poorer health) on all SF-36 subscales and more perceived stress compared to the general population. In all, 43.3% of the patients rated their health as excellent or very good compared to 52.1% of the general population. In total, 25% of the study population has retired or changed to a part-time job because of eye disease. The percentage of eye amputated patients, who were divorced or separated, was twice as high as in the general population. Conclusion: The impact of an eye amputation is considerable. The quality of life, perceived stress and self-rated health of many eye-amputated patients are drastically changed. Eye amputation has a marked negative influence on job separation because of illness or disability and on socioeconomic position.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Quality of life of eye amputated patients

Rasmussen

Ekholm

Prause

et al. 2011

Acta Ophthalmologica

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“…Phantom eye syndrome includes visual hallucinations, pain and tactile sensations. Furthermore, the incidence of phantom pain has been reported to range from 23% to 28% (Nicolodi et al 1997; Phantom pain after eye amputation An interview study of 173 eye amputated patients Marie L. R. Rasmussen, 1 Jan U. Prause 1 and Peter B. Toft Soros et al 2003Soros et al , 2005Roed Rasmussen et al 2009). The impact of the pain on the patient's daily life is dependent on the quality, intensity, and frequency of the pain, and on the presence of triggers and relievers.…”

Section: Introductionmentioning

confidence: 99%

Phantom pain after eye amputation

Rasmussen¹,

Prause²,

Toft³

2010

Acta Ophthalmologica

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ABSTRACT.Purpose: To characterize the quality of phantom pain, its intensity and frequency following eye amputation. Possible triggers and relievers of phantom pain are investigated. Methods: The hospital database was searched using surgery codes for patients who received ocular evisceration, enucleation, orbital exenteration or secondary implantation of an orbital implant in the period between 1993 and 2003. A total of 267 patients were identified and invited to participate; of these, 173 agreed to participate. These patients' medical records were reviewed. A structured interview focusing on pain was conducted by a trained interviewer. Results: Of the 173 patients in the study, 39 experienced phantom pain. The median age of patients who had experienced phantom pain was 45 years (range: 19-88). Follow-up time from eye amputation to participation in the investigation was 4 years (range: 2-46). Phantom pain was reported to be of three different qualities: (i) cutting, penetrating, gnawing or oppressive (n = 19); (ii) radiating, zapping or shooting (n = 8); (iii) superficial burning or stinging (n = 5); or a mixture of these different pain qualities (n = 7). The median intensity on a visual analogue scale, ranging from 0 to 100, was 36 (range: 1-89). One-third of the patients experienced phantom pain every day. Chilliness, windy weather and psychological stress ⁄ fatigue were the most commonly reported triggers for pain. Conclusions: Phantom pain after eye amputation is relatively common. The pain appears to be similar to the phantom pain suffered by limb amputees. Patients should be informed about this potential complication before surgery.

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“…2e5 Pain in the eye or in the area around the missing eye is experienced daily by approximately one-third of patients and can be intense, although other tactile sensations are very rare. 4 Visual phenomena in the removed eye range from simple sensations that lack meaning to complex sensations, including structured scenes and objects. Some patients also have the sensation of being able to see with the enucleated eye.…”

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confidence: 99%