Personal information and public health: Design tensions in sharing and monitoring wellbeing in pregnancy

Doherty, Kevin E.; Barry, Marguerite; Belisario, José S Marcano; Morrison, Cecily; Car, Josip; Doherty, Gavin

doi:10.1016/j.ijhcs.2019.102373

Cited by 25 publications

(58 citation statements)

References 63 publications

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“…In the research papers analyzed, the subtheme of the patient‘s partner‘s involvement as an enabler of knowledge sharing was singled out. With certain chronic diseases, day-to-day healthcare decisions are inseparable not only from the patient but also from those close to them, who often not only share information about the patient’s physical environment and daily conditions to maintain the effectiveness of the treatment, strengthen patient and healthcare professional‘s therapeutic relationships, and reassure patients [ 14 ].…”

Section: Resultsmentioning

confidence: 99%

“…In other words, the digitalization of healthcare is shaping the trend of digital self-care, where patients have the opportunity to play an active role in the day-to-day management of chronic disease through interactions with digital forms of healthcare [ 60 ]. The use of digital devices increases patients’ ability to follow a medical regime and recommended lifestyle through the integration of these forms into the daily activities of the patient [ 57 ] while supporting the functions of reminder, feedback, knowledge creation, and self-care [ 14 ]. As a result, patients’ routine decision-making becomes smoother, building patients’ self-confidence [ 14 , 15 , 59 , 60 , 61 , 62 , 63 ] and highly dynamic [ 63 , 64 , 65 ].…”

Section: Resultsmentioning

confidence: 99%

“…Availability of reliable information: There is a clear consensus in the analyzed research that certified and high-quality digital health technologies provide patients with reliable information about their disease [ 14 , 59 , 64 , 65 , 68 ]. The availability of reliable information leads to the consistent development of knowledge by empowered patients and is therefore more insightful about their health, leading to more informed decisions, early diagnosis, and faster recovery.…”

Section: Resultsmentioning

confidence: 99%

“…According to Rissel (1996) provisions on continuum empowerment, it can be argued that having empowered patients through mediating structures, patient empowerment evolves from the field of psychological empowerment to the field of community Qualitative analysis of the research revealed that patient empowerment evolves through three levels of empowerment, in which the patient becomes increasingly empowered to use their knowledge in everyday decisions to pursue not only their own but also community health behaviors [14,18,51,60,74,90,91].…”

Section: Proposition 1 Patient Empowerment Through Mediating Structumentioning

confidence: 99%

“…Research on patient empowerment to date from a public health management perspective has focused on individual patient enablers without substantiating them as potential patient knowledge enablers: digital health technologies [ 14 , 15 ], availability of reliable information, digital health communities, and others. Knowledge management theory discusses knowledge sharing extensively and in detail, distinguishing preconditions that ensure knowledge sharing: supportive organizational culture [ 16 ], organizational member motivation [ 17 ], mutual trust [ 18 ], less centralized organizational culture [ 19 ], etc.…”

Section: Introductionmentioning

confidence: 99%

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Enablers of Patient Knowledge Empowerment for Self-Management of Chronic Disease: An Integrative Review

Vainauskienė

Vaitkienė

2021

IJERPH

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The non-development of the concept of patient knowledge empowerment for disease self-management and the non-development of the theory of patient knowledge empowerment in patients with chronic diseases, cause methodological inconsistency of patient empowerment theory and does not provide a methodological basis to present patient knowledge empowerment preconditions. Therefore, the aim of the present integrative review was to synthesize and critically analyze the patient knowledge enablers distinguished in the public health management theory, the knowledge sharing enablers presented in the knowledge management theory and to integrate them by providing a comprehensive framework of patient knowledge enablers. To implement the purpose of the study, in answering the study question of what patient knowledge empowerments are and across which levels of patient knowledge empowerment they operate, an integrative review approach was applied as proposed by Cronin and George. A screening process resulted in a final sample of 78 papers published in open access, peer-review journals in the fields of public health management and knowledge management theories. Based on the results of the study, the Enablers of Patient Knowledge Empowerment for Self-Management of Chronic Disease Framework was created. It revealed that it is important to look at patient knowledge empowerment as a pathway across the empowerment levels through which both knowledge enablers identified in public health management theory and knowledge sharing enablers singled out in knowledge management theory operate. The integration of these two perspectives across patient empowerment levels uncovers a holistic framework for patient knowledge empowerment.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Proposition 1 Patient Empowerment Through Mediating Structumentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Enablers of Patient Knowledge Empowerment for Self-Management of Chronic Disease: An Integrative Review

Vainauskienė

Vaitkienė

2021

IJERPH

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Foresight study on online health community: The perspective of knowledge empowerment for patients with chronic diseases

Vainauskienė

Vaitkienė

2022

Health Planning & Management

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Patient empowerment is an indispensable precondition for patients to self-manage their disease. The article takes the position that patients are empowered for disease self-management through patient knowledge empowerment when sharing knowledge. One of the most important instruments to successfully empower a patient to manage a chronic disease and maintain social relations, which are also a precondition for the prevention of chronic illnesses, is the possibility to access online health communities (OHCs) and participate in them. The aim of the article is to model possible development scenarios of OHCs as enablers of patient knowledge in relation to other digital health technologies (DHTs). A foresight methodology was used to achieve the goal, employing a technology scanning approach after selecting 10 foresight studies, which resulted in four future scenario models for the empowerment of patients wcith chronic diseases through digital health communities. They reveal options for the future interoperability of OHCs with other DHTs and highlight their importance and significance for the healthcare system as a technology for balancing patient self-efficacy and social relations as well as the need to maintain and develop them.

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Patient engagement practice within perinatal eHealth: A scoping review

et al. 2023

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Background There is a gap in knowledge about how perinatal eHealth programs function to support autonomy for new and expectant parents from pursuing wellness goals. Objectives To examine patient engagement (access, personalization, commitment and therapeutic alliance) within the practice of perinatal eHealth. Design Scoping review. Methods Five databases were searched in January 2020 and updated in April 2022. Reports were vetted by three researchers and included if they documented maternity/neonatal programs and utilized World Health Organization (WHO) person‐centred digital health intervention (DHI) categories. Data were charted using a deductive matrix containing WHO DHI categories and patient engagement attributes. A narrative synthesis was conducted utilizing qualitative content analysis. Preferred Reporting Items for Systematic Reviews and Meta‐Analyses ‘extension for scoping reviews’ guidelines were followed for reporting. Results Twelve eHealth modalities were found across 80 included articles. The analysis yielded two conceptual insights: (1) The nature of perinatal eHealth programs: (1) emergence of a complex structure of practice and (2) practising patient engagement within perinatal eHealth. Conclusion Results will be used to operationalize a model of patient engagement within perinatal eHealth.

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Personal information and public health: Design tensions in sharing and monitoring wellbeing in pregnancy

Cited by 25 publications

References 63 publications

Enablers of Patient Knowledge Empowerment for Self-Management of Chronic Disease: An Integrative Review

Enablers of Patient Knowledge Empowerment for Self-Management of Chronic Disease: An Integrative Review

Foresight study on online health community: The perspective of knowledge empowerment for patients with chronic diseases

Patient engagement practice within perinatal eHealth: A scoping review

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