Person-centered goal setting is feasible in people with Parkinson’s disease who have subjective cognitive decline: a mixed methods study

Early identification of subjective cognitive functional decline among patients with Parkinson’s disease: a longitudinal pilot study

“…The complex process of understanding each individual’s unique day-to-day functional experience is crucial for implementing interventions based on person-centered goal setting and improving physical and emotional well-being 46 , 47 . However, in their comprehensive review, Oedekoven and colleagues 48 concluded that despite evidence for the possible benefits of SCD for early identification of PD-MCI, no consensus exists for SCD research or clinical criteria.…”

Navigating (un)certainty in ‘downhill’ trajectories: An ethnographic study about rehabilitees’ and professionals’ experiences of goal-setting in Parkinson's disease rehabilitation

“…Our study relates to an emergent niche on studies about goal-setting in progressive conditions, e.g., dementia, 8 multiple sclerosis, 9 palliative care, 10 and Parkinson's disease. [11][12][13] In these studies, goal-setting does not appear obsolete. With multiple sclerosis, goal-setting can support self-management and help rehabilitees to identify their priorities regarding better functioning.…”

“…10 Goal-setting is part of guidelines on Parkinson's disease rehabilitation, 14 yet studies on how and why goals are set in Parkinson's disease rehabilitation appear scarce, and based on analyses on documented goals rather than interviews or observation. [11][12][13] At present, Parkinson's disease is not curable, but training, medication, and Deep Brain Stimulation may ease symptoms. 15 A noteworthy symptom of Parkinson's disease with regard to goal-setting is cognitive impairment (other symptoms include rigidity, tremor, apathy, dysphagia, masked face, speech impairment).…”

“…11 The same conclusion was reached in a study examining goals set by persons with Parkinson's disease with subjective cognitive decline. 12 Considering the aspect raised, whether cognitive impairment may impede goal-setting, and further that neurological disorders count as 'the leading source of disability in the world, and Parkinson's disease is the fastest growing of these disorders', 17 it appears relevant to focus on goal-setting in Parkinson's disease rehabilitation and attend to knowledge gaps: The actual practice of Parkinson's disease goal-setting, participants' experiences with goal-setting in a progressive condition, and the strategies they make use of. The aim of this study is to gain an insight into goal-setting in a context of (un) certainty with a progressive degenerative disease by examining how the (un)certainty is navigated in goal-setting and by exploring Danish rehabilitees' and professionals' reflections on and experiences with goal-setting in Parkinson's disease rehabilitation.…”

Moving goals. Goal-work in Parkinson's disease rehabilitation

“…Another gap in the goal literature concerns Parkinson's disease (PD), though studies have been published on the actual goals set in PD rehabilitation ( 10 – 12 ). Considering that neurological disorders are “the leading source of disability in the world, and PD is the fastest growing of these disorders” ( 13 ), it appears relevant to add ethnographic studies to literature on goal-setting in PD rehabilitation.…”