Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Hernández, Mercedes; Barrio, Concepción

doi:10.1007/s10597-015-9881-5

Cited by 33 publications

(38 citation statements)

References 60 publications

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“…Second, because our sample did not include other racial or ethnic groups, we were not able to compare our findings with other groups and thereby examine the unique Latino experience. However, given that Latinos are more likely to live with family compared to other groups, the caregiving experience including medication adherence may present with additional responsibilities for Latino families who often provide support with limited resources (Hernandez & Barrio, 2015; Magaña et al, 2007). Third, the majority of our sample consisted of male patients and their mothers; future studies should consider examining perceptions of medication use among female patients and other caregivers.…”

Section: Discussionmentioning

confidence: 99%

“…Thus, low adherence may lead to a more serious illness course that can complicate recovery for individuals and affect quality of life. In addition, clinical and behavioral manifestations of schizophrenia may have other consequences, such as increased financial costs of the treatment (Desai et al, 2013; Gilmer et al, 2004) and indirect costs related to family well-being (Coker et al, 2016; Hernandez & Barrio, 2015). Factors attributed to nonadherence include medication side effects, substance abuse, poor illness insight, and illness severity (Beck et al, 2011; Gilmer et al, 2004; Lacro et al, 2002; Yang et al, 2012), among others.…”

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confidence: 99%

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Families and medication use and adherence among Latinos with schizophrenia

Hernández

Barrio

2016

Journal of Mental Health

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Background Medication nonadherence among Latinos with schizophrenia represents a significant treatment obstacle. Although some studies have examined patient and family perceptions of adherence, few have examined these perceptions together. However, such knowledge can provide a deeper understanding of how family processes may contribute to or impede adherence among underserved groups such as Latinos. Aims This study explored perceptions of medication and adherence among Latinos with schizophrenia and key family members. Method Purposive sampling was used to collect data from 34 participants: 14 patients with schizophrenia receiving community-based mental health services in an urban public setting and 20 key family members. Informed by grounded theory, semistructured interviews were analyzed by bilingual–bicultural team members. Results Salient themes emerged indicating facilitators of and obstacles to medication use. Specifically, challenges centered on medication side effects, autonomy and choice, and illness insight, whereas facilitators focused on family support and holistic views of treatment and empowerment. Conclusions Because the majority of Spanish-speaking Latinos with schizophrenia live with family, it is important to examine family factors that may influence medication use. Findings suggest that patient and family perceptions of medication should be examined as part of the treatment process, particularly regarding issues of autonomy and choice.

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Section: Discussionmentioning

confidence: 99%

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confidence: 99%

Families and medication use and adherence among Latinos with schizophrenia

Hernández

Barrio

2016

Journal of Mental Health

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“…The caregivers also feel very tired, lose energy and often have sleeping disorders (Von Kardorff et al, 2016). Chest pain and increased blood pressure are also felt by the caregivers (Hernandez & Barrio, 2015). Having the responsibilities associated with being caregivers, they often suffer from chronic physical and mental fatigue (Prevo et al, 2018;Radfar et al, 2014 To explore information about relationship factors, positive effects of caregiving, and coping strategies as factors influencing the physical or mental burden that caregivers perceive…”

Section: Physical Burdenmentioning

confidence: 99%

“…We are rarely invited to public events, if invited, they (neighbor) always order us to come alone, and that my father (patient) should stay at home (discrimination) (Fitryasari et al, 2018). Negative comments and actions from the public and their extended family as well as criticism and the beliefs about the cause of the disorder adds to the family burden (Dicé et al, 2017;Hernandez & Barrio, 2015;Prevo et al, 2018).…”

Section: Social Burdenmentioning

confidence: 99%

Family Burden for the Caregivers of People with Mental Disorders: A Systematic Review

Nenobais¹,

Jatimi²,

Jufriyanto³

2019

J. Ners

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Introduction: The main caregivers of people with mental disorders are their family members. Families as the caregivers of people with mental disorders is associated with a significant burden. This systematic review aims to identify and summarize the main focus based on the scientific evidence about family burden as the caregivers of people with mental disorders.Methods: The databases used were Scopus, Science Direct and Sage Journal with the keywords ‘burden’, ‘family’, ‘caregiver’, ‘mental’, ‘health’, ‘illness’, ‘disorder’ and they were limited to 2014 – 2018 from within nursing and health science journals. One hundred and four full text articles were reviewed. The 14 articles that fulfilled the inclusion criteria were analyzed using narrative synthesis followed the Joanna Briggs Methodology model for the Qualitative Systematic Review to find the main themes of each article.Results: Seven main themes were found to be related to family burden as the caregivers of a family member with mental disorders. The 7 themes were knowledge, emotional burden, physical burden, medication, financial burden, social burden, health services and government support.Conclusion: The findings suggest that the family burden on the caregivers was diverse and that this has an effect on the ability of the family to care for patients with mental disorders. Family burden has become an important indicator for the provision of mental health services.

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“…[7] Moreover, providing care to a person with severe mental illness can adversely affect the mental health and well-being of family caregivers. [8,9] Nurses play an important role in providing a psychoeducational nursing intervention that may empower caregivers to identify their own problems and needs, further more to minimize professional input. [10,11] 1.1 Significance of the study Caregivers are often an important source of support and facilitation for mentally ill patients' treatment and rehabilitation.…”

Section: Introductionmentioning

confidence: 99%

The effectiveness of a psycho-educational nursing intervention on illness perception, knowledge and expressed emotion of caregivers of patients with first episode psychosis

Shereda

Shattla²,

Amer³

et al. 2019

JNEP

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Background: Psycho educational nursing intervention to families of patients with first-episode psychosis is highly recommended to assist families to overcome feelings of stress, guilt, stigma, loss of control and to promote recovery of patients. The aim of the study was to evaluate the effect of psych educational nursing intervention on illness perception, level of knowledge and level of expressed emotion of caregivers of patients with first episode psychosis.Methods: Research design: a quasi-experimental research design (one group pre-posttest) was used to achieve the aim of the study. The study was conducted at three psychiatric and mental health governmental outpatient clinics. A convenience sample of 50 caregivers was used. Data was collected using socio demographic data questionnaire, family questionnaire, knowledge questionnaire, and illness perception questionnaire.Results: There were clinically significant improvement among the caregivers' level of knowledge and illness perception at post test of psycho educational nursing intervention than before intervention, while level of expressed emotion was improved post the psycho educational nursing intervention but without obvious significant difference.Conclusions & Recommendation: Psycho educational nursing intervention was effective in improving caregivers' level of knowledge, illness perception and expressed emotion. The study recommended to urgently utilize psycho educational nursing intervention to all caregivers of patient with first episode psychosis in all psychiatric hospitals.

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Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Cited by 33 publications

References 60 publications

Families and medication use and adherence among Latinos with schizophrenia

Families and medication use and adherence among Latinos with schizophrenia

Family Burden for the Caregivers of People with Mental Disorders: A Systematic Review

The effectiveness of a psycho-educational nursing intervention on illness perception, knowledge and expressed emotion of caregivers of patients with first episode psychosis

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