Perceptions of self-efficacy and rehabilitation among neurologically disabled adults

Dixon, Guy; Thornton, Everard W.; Young, Carolyn A

doi:10.1177/0269215506071784

Cited by 80 publications

(67 citation statements)

References 21 publications

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“…Future research is needed to investigate the experience of patients over time because the recovery process from stroke is dynamic and unstable. 55,56 Future research should also take into consideration the lived experience of caregivers since they have an important influence on stroke survivors. 57 Implications for practice …”

Section: Resultsmentioning

confidence: 99%

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

Simeone

Savini

Cohen

et al. 2014

European Journal of Cardiovascular Nursing

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Background: Stroke is the leading cause of disability in adults, and has a significant impact on individuals, families, and society. Returning home after a stroke represents a challenging experience for patients who struggle to adapt to their new life conditions. Although many studies have been conducted on stroke survivors, few studies have focused on the lived experience of patients at three months after they came home after rehabilitation. Aims: The aim of this study was to describe the experience of stroke survivors three months after being discharged home from rehabilitation hospitals. Method: A phenomenological methodology was used to conduct the study. Participants were enrolled from rehabilitation hospitals in the cities of Rome and Naples. Interviews were conducted at the patients' house and data were analysed with a phenomenological approach Findings: Fifteen stroke survivors were interviewed (mean age 70 years; 12 males). Five themes emerged from the phenomenological analysis of the interviews and the field notes: deeply changed life, vivid memory of the acute phase of the stroke, slowed lives, relief after recovering from stroke, being a burden for family members. Conclusions:The results of this study give an overview of the experience of stroke survivors three months after being discharged home. From a clinical perspective, health care providers need to provide more interventions to help survivors to cope better with life changes and encourage them to adapt to daily life limitations caused by stroke. Also, health care providers should improve support provided to family members of stroke patients.

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Section: Resultsmentioning

confidence: 99%

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

Simeone

Savini

Cohen

et al. 2014

European Journal of Cardiovascular Nursing

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“…People with PD wanted to maintain their optimum function for as long as possible, manage symptoms, and slow further decline; these being recognised goals of neurorehabilitation [26,82]. People with stroke, in common with other studies [25,83,84], hoped to regain lost communication function to allow meaningful social participation.…”

Section: Communication Difficulties and Personal Recoverymentioning

confidence: 99%

Choral singing therapy following stroke or Parkinson’s disease: an exploration of participants’ experiences

Fogg‐Rogers

Buetow

Talmage

et al. 2015

Disability and Rehabilitation

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“…Analyzing patient interviews, Pellat 10 found that patient involvement was key to the rehabilitation process. Dixon et al 11 exploring various constructs of self-efficacy in neurological rehabilitation, discovered several recurrent themes: self-reliance and independence. Furthermore, patients recognized the magnitude of willpower, making time to take an active role and working in partnership with the multidisciplinary team; being able to recognize for themselves that they were making progress and that they valued external reassurance on this from other patients, staff, and visitors.…”

Section: Review Of the Literaturementioning

confidence: 99%

Towards personalized care for persons with spinal cord injury: a study on patients' perceptions

Garrino¹,

Curto²,

Decorte³

et al. 2011

The Journal of Spinal Cord Medicine

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Objective/background: A newly designed Spinal Cord Unit (SCU) was set up at the Orthopedic Traumatology Center (OTC), Turin, Italy, in July 2007. With the relocation of the SCU came the need to reorganize and improve the delivery of its services. The study reported here is a preliminary part of a project entitled 'Experimentation and evaluation of personalized healthcare for patients with spinal cord injury', which is a component of an overarching program of targeted research into healthcare funded by the Piedmont Region in 2006. The aim of this study was to assess the perception of care by patients with spinal cord injury (SCI) by collecting important data in order to determine whether an integrated and personalized care pathway could be effective both in hospital and in a rehabilitation setting. Design: Qualitative research study. The interview format was based on a narrative approach. Methods: Qualitative in-depth semi-structured interviews were conducted with 21 patients with SCI. Qualitative content analysis was used to identify categories and themes arising from the data. Results: Six main categories emerged from the perspectives of patients: expectations of rehabilitation care, impact and welcome, relationship with nurses and their involvement in treatment, relationship with physical therapists and participation in rehabilitation programs, relationship with physicians and their availability and attendance, and imparting of information on injury and rehabilitation outcomes. Care was the aspect new patients admitted to the SCU found most important. When closer relationships with staff formed, the healthcare professionals became an essential support. Patients with SCI commonly stated that receiving explicit information was necessary for accepting their condition. Conclusions: Analysis of the patients' perceptions revealed a wealth of details on their experience in the SCU and the need for flexible planning of care time in particular. Incorporating the patients' perceptions into a new care model could increase professionals' awareness of patients' needs and provide a useful basis for constructing a personalized care plan.

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Perceptions of self-efficacy and rehabilitation among neurologically disabled adults

Abstract: Patients consistently identified 11 factors falling in the supraordinate themes of self, others and process, and these influenced their self-efficacy to participate in neurological rehabilitation. Patients consider rehabilitation in terms of either an 'adaptation' or 'recovery' model.

Cited by 80 publications

References 21 publications

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

The experience of stroke survivors three months after being discharged home: A phenomenological investigation

Choral singing therapy following stroke or Parkinson’s disease: an exploration of participants’ experiences

Towards personalized care for persons with spinal cord injury: a study on patients' perceptions

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