Objective/background: A newly designed Spinal Cord Unit (SCU) was set up at the Orthopedic Traumatology Center (OTC), Turin, Italy, in July 2007. With the relocation of the SCU came the need to reorganize and improve the delivery of its services. The study reported here is a preliminary part of a project entitled 'Experimentation and evaluation of personalized healthcare for patients with spinal cord injury', which is a component of an overarching program of targeted research into healthcare funded by the Piedmont Region in 2006. The aim of this study was to assess the perception of care by patients with spinal cord injury (SCI) by collecting important data in order to determine whether an integrated and personalized care pathway could be effective both in hospital and in a rehabilitation setting. Design: Qualitative research study. The interview format was based on a narrative approach. Methods: Qualitative in-depth semi-structured interviews were conducted with 21 patients with SCI. Qualitative content analysis was used to identify categories and themes arising from the data. Results: Six main categories emerged from the perspectives of patients: expectations of rehabilitation care, impact and welcome, relationship with nurses and their involvement in treatment, relationship with physical therapists and participation in rehabilitation programs, relationship with physicians and their availability and attendance, and imparting of information on injury and rehabilitation outcomes. Care was the aspect new patients admitted to the SCU found most important. When closer relationships with staff formed, the healthcare professionals became an essential support. Patients with SCI commonly stated that receiving explicit information was necessary for accepting their condition. Conclusions: Analysis of the patients' perceptions revealed a wealth of details on their experience in the SCU and the need for flexible planning of care time in particular. Incorporating the patients' perceptions into a new care model could increase professionals' awareness of patients' needs and provide a useful basis for constructing a personalized care plan.

This article explores multiple aspects of the inclusion processes related to the CRPD (Convention on the Rights of persons with disabilities) implementation process carried out in Asti (NW Italy) between 2016 and 2020. For the purpose of this article, data have been collected regarding the work of social work professionals, who supported individuals and families following the methodology of “enabling co-design”. The results show the necessity to allow interventions that create a support network to achieve full and equal citizenship, rethinking the transition to adult life through new epistemological categories that make it possible to overcome, both in theory and in practice, what is currently defined as a special adulthood. This goal may be achieved by adopting approaches that are more coherent with the scenario defined by the approval of the CRPD for the rights of persons with disabilities.   Processi di inclusione per persone con disabilità intellettiva attraverso le reti negoziali multiple. Questo articolo esplora molteplici aspetti dei processi di inclusione relativi al percorso di attuazione della CRPD svolto ad Asti tra il 2016 e il 2020. Ai fini del presente articolo sono stati raccolti dati relativi al lavoro degli operatori che hanno sostenuto persone con disabilità e famiglie seguendo l’approccio della coprogettazione capacitante. I risultati mostrano la necessità di promuovere interventi che creino una rete di supporto per raggiungere una cittadinanza piena e paritaria, ripensando il passaggio alla vita adulta attraverso nuove categorie epistemologiche che permettano di superare, sia in teoria che in pratica, ciò che è attualmente definito come un adulto speciale. Questo obiettivo può essere raggiunto adottando approcci più coerenti con lo scenario definito dall'approvazione della CRPD per i diritti delle persone con disabilità.

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