Perceptions of patients, families, physicians and nurses regarding challenges in cancer disclosure: A descriptive qualitative study

Ehsani, Maryam; Taleghani, Fariba; Hematti, Simin; Abazari, Parvaneh

doi:10.1016/j.ejon.2016.09.003

Cited by 35 publications

(38 citation statements)

References 17 publications

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“…The patients who feel fatigue are very different in the way they express and describe the problems they are experiencing. Such results in our research are in concordance with the results of a qualitative study that have shown that clinical traits are highly individual and there are barely even two similar patients [13]. It is interesting to note that during earlier surveys, a connection between symptoms and antecedent activities could not be made.…”

Section: Discussionsupporting

confidence: 92%

“…The results of the study also state the fact that unlike fatigue and exhaustion in non-oncological patients, cancer patients do not feel refreshed after rest or sleep [14]. Numerous symptoms such as pain, sleeping disorders, lack of appetite or nausea tend to have a negative influence on cancer patients; however, fatigue-related symptoms are considered most pronounced [13]. Fatigue considerably diminishes the ability of cancer patients to perform physical activities.…”

Section: Discussionmentioning

confidence: 74%

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Fatigue assessment in cancer patients

et al. 2018

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Introduction. Fatigue in cancer patients is one of the most frequent symptoms present irrespectively of the kind of malignant tumor, its localization, stage and/or treatment modality. One of the most often used definition of fatigue emphasizes a disturbing, persistent, subjective feeling of physical, emotional and/or cognitive fatigue, or tiredness, connected with the carcinoma and/or its therapy, that is not proportional with the patients' activities and therefore impairs their daily functioning. The study has been undertaken with the aim of determining the levels of fatigue in cancer patients during radiotherapy. Material and Method. The study was conducted as a cross-sectional study, by interviewing 80 hospitalized patients at the Institute for Oncology of Vojvodina in Sremska Kamenica, Clinic for Radiotherapy. Perform Questionnaire with 12 item describing fatigue over the previous two weeks was used as a study instrument. For the statistical analysis of data we used method of descriptive statistics and inferential statistics. Statistical significance was determined at the level of p<0.05. Results. The highest average values of the general Perform questionnaire score were recorded in the patients diagnosed with the central nervous system carcinoma [38.9± 14.6], while the lowest were recorded in the group of patients with prostate cancer [17.0±4.6]. Simultaneous administration of radiotherapy and chemotherapy leads to major limitations of physical performances, daily life activities and patient attitudes. Conclusion. All participants included in this study experienced fatigue, although it differed in separate domains, as well as by the type of therapy, primary diagnosis and intensity over the previous two weeks; however, it was present at the moment of estimation.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 74%

Fatigue assessment in cancer patients

et al. 2018

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“…In most Eastern countries, there is still a significant percentage of cancer patients who are not informed of their cancer diagnoses. [3][4][5][6] In China, previous studies have found that diagnoses were disclosed for 35.8% to 50.3% of cancer patients. 7,8 The reason may be cultural differences.…”

Section: Introductionmentioning

confidence: 99%

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

et al. 2019

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Objective To qualitatively investigate and explore oncology nurses' perceptions of cancer diagnosis disclosure (CDD) for cancer patients. Methods Purposive sampling led to the inclusion of 25 nurses with diverse characteristics from four inpatient oncology nursing wards in two tertiary hospitals. Semistructured, one‐on‐one, in‐depth interviews were conducted. Colaizzi's analysis method was performed with NVivo software to develop categories and themes. Results Four themes were identified: (a) impact of CDD, including advantages and disadvantages for patients and nurse distress; (b) barriers to CDD, including requests from family members, patients themselves, and communication skills; (c) strategies for CDD, including communication with family members, physician‐nurse collaboration, and patient education; and (d) nurses' roles in CDD, including active participants and promoters and advocates. Conclusions More channels of information and education on cancer, cancer diagnosis, life, and death will be needed in the future. Nurses should actively participate in cancer diagnosis delivery, and more collaboration between nurses and physicians must occur.

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“…By definition, a white lie is a deception in interaction in order to prevent injury or grief or to protect feelings [7][8][9][10][11]. There is ample evidence in the history of medicine which shows that Greek physicians did not provide information to patients or provided them with inaccurate information in order to force them to accept treatments [9].…”

mentioning

confidence: 99%

“…There is ample evidence in the history of medicine which shows that Greek physicians did not provide information to patients or provided them with inaccurate information in order to force them to accept treatments [9]. Hippocrates' notes show that truth-telling or accurate information provision to patients about the outcome of illness can aggravate prognosis [10]. Studies also showed that truths are not completely told to patients.…”

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confidence: 99%

Situations of using white lie during patient care: a qualitative study into nurses’ perspectives

Nasrabadi

Joolaee

Navab

et al. 2020

Preprint

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Background: Receiving accurate and complete information about diagnosis, prognosis, and treatments is among patients’ rights in healthcare systems. Although all healthcare providers have the same viewpoint about truth-telling in the process of treatment, sometimes truths are not told to patients or they are told a “white lie”. The aim of the study was to explore nurses’ experiences of the situations of using white lie during patient care. Methods: This qualitative descriptive study was conducted in 2018. Participants were eighteen hospital nurses purposively recruited with maximum variation from ten hospitals affiliated to Tehran University of Medical Sciences, Tehran, Iran. Data were collected through semi-structured interviews. Sampling and data collection were continued up to data saturation. Data analysis was done concurrently with data collection through conventional content analysis. Results: Situations of using white-lie-telling by nurses during patient care resulted in eleven subcategories and four main categories. The main categories of the study were the crisis of hope, bad news, cultural diversity, and nurses’ limited professional competence. Conclusion: Professional knowledge, skills, and experience are needed for establishing effective communication with patients and providing them with accurate information even about bitter truths. Nurses’ communication with patients needs to be established based on adequate knowledge about the cultures of patients and healthcare organizations, and should aim to maintain patients’ hope and motivation for treatments and, should help them make accurate decisions.

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Perceptions of patients, families, physicians and nurses regarding challenges in cancer disclosure: A descriptive qualitative study

Cited by 35 publications

References 17 publications

Fatigue assessment in cancer patients

Fatigue assessment in cancer patients

Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Situations of using white lie during patient care: a qualitative study into nurses’ perspectives

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