Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Liu, Yuxiu; Jin, Yang; Song, Lei; Yang, Xiao; Yin, Yanling; Yan, Liping

doi:10.1002/pon.5273

Cited by 11 publications

(16 citation statements)

References 37 publications

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“…Moreover, patients have a clear goal to obtain disease-related information, which is conducive to identifying clinical symptoms and understanding the occurrence and development of the disease. At the same time, the diagnosis informing can alleviate the adverse emotions of patients, establish confidence in treatment, and enable patients to form an optimistic attitude [24].…”

Section: Discussionmentioning

confidence: 99%

Influence of Diagnostic Informing on Negative Emotions, Illness Perception, Self-Perceived Burden, and Posttraumatic Stress Disorder in Patients with Gastrointestinal Tumors

Tang

Chen

2021

Evidence-Based Complementary and Alternative Medicine

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Objective. To investigate the influence of diagnostic informing on negative emotions, illness perception (IP), self-perceived burden (SPB), and posttraumatic stress disorder (PTSD) in patients with gastrointestinal tumors. Methods. A total of 261 patients with gastrointestinal tumors admitted to our hospital from January 2018 to December 2020 were selected. According to whether the patients were informed of the disease diagnosis, they were divided into the informing group (n = 125) and the concealment group (n = 136). The self-rating anxiety scale (SAS), the self-rating depression scale (SDS), the brief illness perception questionnaire (BIPQ), the self-perceived burden scale (SPBS), and the PTSD checklist-civilian version (PCL-C) were used to investigate the two groups. Results. The SAS and SDS scores of the informing group were lower than those of the concealment group (t = 7.853 and 6.444, P < 0.05). The total BIPQ score of the informing group was higher than that of the concealment group (t = −4.089, P < 0.05). The total SPBS score of the informing group was lower than that in the concealment group (t = 2.443, P < 0.05). The total PCL-C score of the informing group was lower than that of the concealment group (t = 2.173, P < 0.05). Conclusion. Diagnosis informing can reduce the negative emotions, increase positive IP, and reduce the risk of SPB and PTSD in patients with gastrointestinal tumors.

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Section: Discussionmentioning

confidence: 99%

Influence of Diagnostic Informing on Negative Emotions, Illness Perception, Self-Perceived Burden, and Posttraumatic Stress Disorder in Patients with Gastrointestinal Tumors

Tang

Chen

2021

Evidence-Based Complementary and Alternative Medicine

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“…5,27 Nurses, as the most frequently contacted professionals for patients, could play active roles in truth-telling. 28 Before telling the truth, nurses can acquire the patients’ needs and willingness in truth-telling, share with the doctors, and help doctors choose appropriate strategies for truth-telling. After telling the truth, needs of emotional and informational support can be detected by nurses as early as possible, and timely support should be provided when necessary.…”

Section: Discussionmentioning

confidence: 99%

Differences in practice and preferences associated with truth-telling to cancer patients

Wu¹,

Wang²,

Jiao³

et al. 2020

Nurs Ethics

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Background: Doctors should disclose the diagnosis to patients according to the principle of autonomy. However, not disclosing the diagnosis and prognosis to cancer patients remains common in mainland China. Objective: The study explored the experiences and attitudes of patients with cancer, family members, and the medical staff in truth-telling. Research design: A quantitative survey with three closed-ended questionnaires was conducted. Participants: In all, 137 patients with cancer, 134 family members caring for cancer cases, and 54 medical staff were surveyed. Descriptive statistics were used to summarize all characteristics, and the chi-square test was performed to analyze group differences in attitudes toward cancer disclosure. Ethical considerations: This study was approved by the Committee on Ethics of Biomedicine Research, at the Second Military Medical University (HJEC-2018-YF-001). Informed consent was obtained from all participants prior to study commencement. Findings: A total of 59.8% of patients were informed about their diagnosis within 1 week, and 19.7% inferred theirs. The medical staff preferred to prioritize family members in informing about patient diagnosis while 77.4% of patients preferred to be told the whole truth at the time of initial diagnosis. More patients than family members and medical staff wanted the patients to be informed about the diagnosis ( p < 0.001). A significant difference was found between the patients and family members regarding who should tell the patients. Discussion: The willingness of patients in knowing the truth was underestimated by their family members as well as the medical staff. Guessing the truth indirectly may exert negative effects on the patients, and not telling the truth is inappropriate in patients who want to be informed. Conclusion: Disclosure of a cancer diagnosis is a complex process involving medical practice, as well as a range of cultural, ethical, and legal factors. The medical staff should first assess each patient’s willingness in truth-telling and inform about disease diagnosis with respect. Emotional support and comfort from family members are encouraged. Anyone in the patient’s care team, especially nurses, could be integrated in the process of truth-telling.

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“…However, psychological support from doctors and nurses always depends on personal experience. An integrated cancer notification requires not only the collaboration of doctors, nurses, and family members (Liu et al, 2018;Liu et al, 2019) but also the involvement of psychologists (Gan et al, 2018). It is important to develop a multidisciplinary team, including doctors, nurses, and psychologists, for cancer disclosure.…”

Section: Multidisciplinary Teams Including Doctors Nurses and Psychologists Can Improve The Quality Of Cancer Informationmentioning

confidence: 99%

“…In most Western countries, doctors always inform patients with cancer diagnoses directly (Liu et al, 2019;Temraz et al, 2019;Yang et al, 2018). However, withholding information on cancer diagnosis or prognosis from patients is a common practice in Asian and Middle Eastern countries (Ehsani et al, 2016;Ni & Alraek, 2017).…”

Section: Introductionmentioning

confidence: 99%

The Perceptions of Patients, Families, Doctors, and Nurses Regarding Malignant Bone Tumor Disclosure in China: A Qualitative Study

Luo

Lei

et al. 2021

J Transcult Nurs

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Introduction Withholding the malignant bone tumors disclosure from patients is common in China. The purpose of the study was to explore the perceptions of patients, families, doctors, and nurses regarding the disclosure of malignant bone tumors in China. Method Semistructured interviews were conducted with 25 cases, consisting of 69 participants (14 patients, 25 family members, 17 doctors, and 13 nurses), and the transcripts were analysed using Colaizzi’s (1978) descriptive phenomenological analysis process. Results Five themes were identified: (1) doctors preferred to inform the family members first, (2) family members’ decisions depended on different situations, (3) the patients agreed that disclosure should be different for each person/personally, (4) care from nurses reduced the overreaction of patients, and (5) key points improve the informing quality. Discussion Family participatory cancer disclosure and multidisciplinary teams could improve the quality of cancer disclosure. Culturally congruent health care and culturally sensitive interventions in cancer disclosure are suggested.

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Nurses' experiences and attitudes toward diagnosis disclosure for cancer patients in China: A qualitative study

Cited by 11 publications

References 37 publications

Influence of Diagnostic Informing on Negative Emotions, Illness Perception, Self-Perceived Burden, and Posttraumatic Stress Disorder in Patients with Gastrointestinal Tumors

Influence of Diagnostic Informing on Negative Emotions, Illness Perception, Self-Perceived Burden, and Posttraumatic Stress Disorder in Patients with Gastrointestinal Tumors

Differences in practice and preferences associated with truth-telling to cancer patients

The Perceptions of Patients, Families, Doctors, and Nurses Regarding Malignant Bone Tumor Disclosure in China: A Qualitative Study

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