Perceptions and Management of Change by People with Dementia and Their Carers                Living at Home

Norman, Ian; Redfern, Sally; Briggs, Kate; Askham, Janet

doi:10.1177/1471301204032614

Cited by 16 publications

(15 citation statements)

References 42 publications

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“…Previous research has suggested that caregivers' ability to view caregiving as rewarding and providing a sense of meaning and joy in life has been linked to caregivers' adjustment and led to more positive experiences (Ayres, 2000a, Ayres, 2000b, Norman et al, 2004, Shim et al, 2012. Indeed, a positive appraisal of one's situation and positive cognitions have both been linked to greater resilience and better health outcomes (Fortune et al, 2005, Zauszniewski et al, 2009.…”

Section: Discussionmentioning

confidence: 99%

Resilience from the Perspectives of Caregivers of Persons with Dementia

Bekhet

Avery

2018

Archives of Psychiatric Nursing

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Section: Discussionmentioning

confidence: 99%

Resilience from the Perspectives of Caregivers of Persons with Dementia

Bekhet

Avery

2018

Archives of Psychiatric Nursing

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“…(2004), findings on the experience of living with dementia were not well elaborated (limitations concerned heuristic relevance and theoretical connectedness). Norman et al. (2004) included people with moderate to severe dementia, whose perspective was scarcely represented in the study, and Proctor's (2001) and Reid et al.…”

Section: Search Methodsmentioning

confidence: 99%

“…In the papers by Aggarwal et al (2003) and Beattie et al (2004), findings on the experience of living with dementia were not well elaborated (limitations concerned heuristic relevance and theoretical connectedness). Norman et al (2004) included people with moderate to severe dementia, whose perspective was scarcely represented in the study, and Proctor's (2001) and Reid et al's (2001) studies focused mainly on service evaluation from the perspective of people with dementia.…”

Section: Search Methodsmentioning

confidence: 99%

Living with early‐stage dementia: a review of qualitative studies

Steeman¹,

Casterlé²,

Godderis³

et al. 2006

Journal of Advanced Nursing

203

197

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( 2 0 0 6 ) ( 2 0 0 6 ) Journal of Advanced Nursing 54(6), 722-738 Living with early-stage dementia: a review of qualitative studies Aim. This paper presents a literature review whose aim was to provide better understanding of living with early-stage dementia. Background. Even in the early stages, dementia may challenge quality of life. Research on early-stage dementia is mainly in the domain of biomedical aetiology and pathology, providing little understanding of what it means to live with dementia. Knowledge of the lived experience of having dementia is important in order to focus pro-active care towards enhancing quality of life. Qualitative research is fundamentally well suited to obtaining an insider's view of living with early-stage dementia. Method. We performed a meta-synthesis of qualitative research findings. We searched MEDLINE, CINAHL, and PsycINFO and reviewed the papers cited in the references of pertinent articles, the references cited in a recently published book on the subjective experience of dementia, one thesis, and the journal Dementia. Thirty-three pertinent articles were identified, representing 28 separate studies and 21 different research samples. Findings were coded, grouped, compared and integrated. Findings. Living with dementia is described from the stage a person discovers the memory impairment, through the stage of being diagnosed with dementia, to that of the person's attempts to integrate the impairment into everyday life. Memory loss often threatens perceptions of security, autonomy and being a meaningful member of society. At early stages of memory loss, individuals use self-protecting and self-adjusting strategies to deal with perceived changes and threats. However, the memory impairment itself may make it difficult for an individual to deal with these changes, thereby causing frustration, uncertainty and fear. Conclusions. Our analysis supports the integration of proactive care into the diagnostic process, because even early-stage dementia may challenge quality of life. Moreover, this care should actively involve both the individual with dementia and their family so that both parties can adjust positively to living with dementia.

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“…People with dementia often describe their experiences as being unsure about the world they live in and become distressed because they rely on another's memory to compensate their own memory loss 25,26 . These people have also expressed difficulties in maintaining the subtle balance between being independent and being dependent on others 27,28 . To compensate for poor memory, people often make notes, keep diaries and put up signs to orient themselves to their environment 26,29 .…”

Section: Discussionmentioning

confidence: 99%

“…25,26 These people have also expressed difficulties in maintaining the subtle balance between being independent and being dependent on others. 27,28 To compensate for poor memory, people often make notes, keep diaries and put up signs to orient themselves to their environment. 26,29 When people with dementia are hospitalized, maintaining orientation to an unfamiliar and rapidly changing environment in acute care settings is extremely difficult though an important aspect of care.…”

Section: Discussion the Clinical Usefulness Of Formal Ro In Acute Carmentioning

confidence: 99%

Clinical usefulness and feasibility of using Reality Orientation with patients who have dementia in acute care settings

O’Connell

Gardner

Takase

et al. 2007

Int J of Nursing Practice

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Reality Orientation (RO) was developed as a strategy to assist people with dementia to improve their orientation and everyday function. Although its efficacy has been extensively studied in long-term care facilities, its effectiveness has rarely been examined in acute care settings. The aim of this review was to examine the studies cited in systematic reviews of RO to determine the potential clinical usefulness and the feasibility of using RO in acute care settings. Based on this information, the authors make recommendations for future research in this area. The feasibility of implementing RO in acute care poses challenges because of the short time a patient is in hospital and their ability to participate given their acute medical condition. Although the efficacy and feasibility of using RO in acute care settings have not been sufficiently examined, its potential to improve care should not be ignored. A comprehensive and rigorous study is necessary to investigate the usefulness of RO in the acute care setting and to help establish clinical guidelines for dementia care in the context of acute care nursing.

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Perceptions and Management of Change by People with Dementia and Their Carers Living at Home

Cited by 16 publications

References 42 publications

Resilience from the Perspectives of Caregivers of Persons with Dementia

Resilience from the Perspectives of Caregivers of Persons with Dementia

Living with early‐stage dementia: a review of qualitative studies

Clinical usefulness and feasibility of using Reality Orientation with patients who have dementia in acute care settings

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