Resilience from the Perspectives of Caregivers of Persons with Dementia

Bekhet, Abir K.; Avery, Jennifer

doi:10.1016/j.apnu.2017.09.008

Cited by 38 publications

(51 citation statements)

References 42 publications

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“…Most caregivers were women (wives or mothers), with a mean age of 68 years. In the 3 qualitative studies, 27,38,41 the samples included mostly caregivers of patients with a chronic disease, patients in a vegetative state, 30 and patients with Alzheimer disease. 41…”

Section: Resultsmentioning

confidence: 99%

“…Recent studies have shown that resilience can reduce anxiety, depression, perception of pain, and emotional distress as well as it enables adaptation promoting effective coping strategies and positive affect in the context of oncological illness. 5,31,33,40,41,43 -49…”

Section: Discussionmentioning

confidence: 99%

“…On other hand, a qualitative study that explored the impact of resilience in dementia caregivers showed the important role that social support has in developing resilience and protecting from emotional distress. 41 Also, Rosenberg et al 49 explored the benefits of a resilient coping style as perceived by informal caregivers of children with advanced cancer; they mostly refer to the identification of benefits during the illness experience, increased hope and better coping strategies, strengthening of social support networks, perception of more emotional support, and ascribing meaning and purpose in the grieving process after the child’s death. 49,51 Informal caregivers in the context of illness have identifiable needs in relation to resilience as a central aspect for coping with situations of high emotional impact and promoting communication skills with their patients.…”

Section: Discussionmentioning

confidence: 99%

“…49,51 Informal caregivers in the context of illness have identifiable needs in relation to resilience as a central aspect for coping with situations of high emotional impact and promoting communication skills with their patients. 23,25,27,35,39,41…”

Section: Discussionmentioning

confidence: 99%

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Resilience in Caregivers: A Systematic Review

Palacio

Krikorian

Gómez-Romero

et al. 2019

Am J Hosp Palliat Care

147

107

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Background: Resilience is a multidimensional construct that explains why people facing the consequences of adversity and stress can have a positive outcome, emphasizing adjustment to experiences that are perceived as threatening. Objective: The aim of this study is to review the construct of resilience and associated variables in caregivers of patients with chronic, advanced illness and at the end of life. Methods: The review included studies published between January 2009 and January 2019, using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guide reporting. The Medline, ScienceDirect, HINARI, PsychINFO, and SciELO databases were used for bibliographic exploration to identify research studies that examined the impact of resilience on adaptation and overall well-being in caregivers of patients with chronic and advanced illness. Results: A total of 23 quantitative and qualitative studies were identified whose aim was to describe the role of resilience in adaptation and coping in caregivers. In these studies, resilience was associated with a positive impact on the quality of life and emotional distress. Communication and social support increase resilient coping strategies. In most selected articles, the sampling strategy used was convenience sampling. Data collection used evaluation scales related to resilience and associated variables for quantitative studies, and semistructured interviews were used for qualitative studies. Conclusion: Promoting a resilient coping style in caregivers reduces the distress that normally results from illness-related changes in the biopsychosocial and spiritual dimensions. A resilient coping style can diminish the risk of stress and burden, and promote adaptation in the caregiver.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 2 more Smart Citations

Resilience in Caregivers: A Systematic Review

Palacio

Krikorian

Gómez-Romero

et al. 2019

Am J Hosp Palliat Care

147

107

View full text Add to dashboard Cite

show abstract

“…Also, caregivers describe feelings of confusion, uncertainty, sense of isolation, and disbelief [6][7][8]. Sense of loss, fear, and anger have also been reported by caregivers [6,9]. In addition, previous research has shown that almost half of dementia caregivers meet the diagnostic criteria for clinical depression and the spouses of persons with dementia are four time more liable to develop depression as compared to spouses of persons without dementia [2,10,11].…”

mentioning

confidence: 99%

Factor Structure and Psychometric Properties of Cognitive-Behavioral Scales in Caregivers of Persons with Dementia

Bekhet¹,

Garnier‐Villarreal²

2018

Int J Psychol Psychoanal

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Background/Purpose: Caregiving can be costly to dementia caregivers' well-being. Assessing the factor structure and psychometric properties of Cognitive-Behavioral Scales in dementia caregivers is an essential step in addressing the gap in the current state of research. Specifically, it is essential to determine first whether the factorial structure of the three measures used in this study namely, the Positive Thinking Skills Scale, the Revised Memory and Behavior Problems Checklist, and the Zarit Burden Interview are good representation of the data by studying the good model fit. Next, evaluating the reliability of each factor of the three measures used are essential to learn about the precision of the factors. Lastly, it is vital to study the factor correlation and its relevance to the theory used to determine the validity of the factors. Methods: A descriptive, correlational, cross-sectional design in a convenience sample of 100 caregivers. Results: Results indicated that the factorial structure of the three scales is a good representation of the data; an acceptable reliability of each factor of the three measures; and the factors correlated as expected and showed their relevance to the underlying theory. Conclusions: Future studies might consider studying the mediating/moderating effects of positive thinking on carerecipients challenging behavior problems. The findings can be used as a guide to provide a positive thinking training intervention among caregivers.

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A predictive model of carer resilience in dementia family caregiving: A structural equation modelling approach

Leung

Orrell

Yates

et al. 2023

Int J Geriat Psychiatry

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Objectives This study aimed to investigate the mediating effects of quality of the caregiving relationship and other carer and person with dementia variables in predicting carer resilience over time. Method Carers of people with mild and moderate dementia in community settings completed baseline (n = 176 dyads) and six‐month follow‐up assessments (n = 139 dyads). Causal mediation analysis was conducted using Pearson Correlation and Structural Equation Modelling (SEM) to examine longitudinal predictors of carer resilience, and the effect of several mediating person with dementia, and carer factors on carer resilience over time. Results At 6‐month follow‐up, higher levels of carer resilience were longitudinally correlated with higher ratings of perceived relationship quality by people with dementia (r = 0.53 p ≤ 0.01), and lower levels of emotional distress symptoms by carer's (r = −0.59 p ≤ 0.01). Mediation analyses showed that people with dementia perspectives of the quality of the caregiving relationship mediated the relationship between carer distress specific to neuropsychiatric symptoms (β = −0.32, p ≤ 0.001) and carer resilience (β = 0.53, p ≤ 0.001) over time. The final SEM provided a good fit for the data (X 2 = 0.12, p = 0.72, CFI = 1.00, NFI = 0.99, and Root Mean Square Error of Approximation = 0.001). Conclusion Higher ratings of perceived relationship quality by people with dementia, and lower levels of carer emotional distress predicted higher carer resilience at follow‐up. People with dementia perspectives of the quality of the caregiving relationship mediated the relationship between carer distress specific to neuropsychiatric symptoms and carer resilience over time. Our findings indicate that interventions aimed at strengthening the caregiving relationship might have a protective long‐term effect for carer resilience in dementia caregiving.

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Resilience from the Perspectives of Caregivers of Persons with Dementia

Abstract: This paper is NOT THE PUBLISHED VERSION; but the author's final, peer-reviewed manuscript. The published version may be accessed by following the link in the citation below.

Cited by 38 publications

References 42 publications

Resilience in Caregivers: A Systematic Review

Resilience in Caregivers: A Systematic Review

Factor Structure and Psychometric Properties of Cognitive-Behavioral Scales in Caregivers of Persons with Dementia

A predictive model of carer resilience in dementia family caregiving: A structural equation modelling approach

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