Perception par les proches aidants de leurs rôles et fonctions face aux douleurs cancéreuses en situation palliative spécifique ou symptomatique au domicile

Jarrossay, Étienne; Paternostre, Bernard

doi:10.1016/j.medpal.2019.12.001

Médecine Palliative

2020

DOI: 10.1016/j.medpal.2019.12.001

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Perception par les proches aidants de leurs rôles et fonctions face aux douleurs cancéreuses en situation palliative spécifique ou symptomatique au domicile

Étienne Jarrossay

Bernard Paternostre

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Cited by 3 publications

References 21 publications

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Couples Coping With the Serious Illness of One of the Partners

Riazuelo

2021

Front. Psychol.

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Chronic kidney failure is a serious somatic disease. Addressing the issue of living with a chronic disease means fully considering the patients’ entourage, their families, and those close to them, especially their children and spouses.Objectives: The present paper focuses on the couple’s psychological experience when one of them suffers from a chronic disease, in this instance kidney disease. In particular, how is the spouse affected by the treatment provided? The aim is not only to see how care for sick people can be improved, but also, more specifically, how relatives and especially partners can receive attention.Methodology: A qualitative approach is not only adopted, being based on the psychotherapeutic follow-up of the partners of patients with chronic kidney disease, but also of the patients themselves, addressing the matter of their life as a couple. Three couples were considered, and two case studies are presented here. The issues that cut across these different situations are examined.Results and Discussion: Some couples show considerable resourcefulness. However, over the years, that capacity for adaptation and inventiveness can also be interrupted by the periods of greater suffering and even despair, especially when the somatic pathology becomes chronic. Many spouses talk about how living with a sick partner weighs down on them, causing severe fatigue. Some aspects of the illness can also become traumatic. The disease regularly disrupts the daily life of the couple and the family. This leads to a reworking of family relations. Each couple has its own history with the condition. As it emerges, it can disrupt the bonds of filiation, especially when the illness is hereditary. Making psychological care more accessible to the partners involved constitutes a major challenge for our hospital care systems.

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Couples Coping With the Serious Illness of One of the Partners

Riazuelo

2021

Front. Psychol.

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Les proches aidants et la fin de vie

Kiledjian¹

2023

Jusqu’à La Mort Accompagner La Vie

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Le proche aidant se trouve engagé dans une transition vers un rapport aidant-aidé et ceci reconfigure la relation. La vie dans l’ambiance de la proche-aidance contient des univers d’amour et de douleur, de compassion et de contradictions. Les proches montrent parfois des trésors d’adaptation dans leur lien à la personne vulnérable et plus généralement à la vulnérabilité partagée avec elle. Il est important d’écouter leurs incertitudes et leurs inquiétudes.

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Exploring Factors Influencing the Physical and Mental Quality of Life of Caregivers of Cancer Patients: A Cross-Sectional Study at Hassan II University Hospital Center

Bourissi,

Bourkhime,

El Rhazi

et al. 2024

Cureus

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Perception par les proches aidants de leurs rôles et fonctions face aux douleurs cancéreuses en situation palliative spécifique ou symptomatique au domicile

Cited by 3 publications

References 21 publications

Couples Coping With the Serious Illness of One of the Partners

Couples Coping With the Serious Illness of One of the Partners

Les proches aidants et la fin de vie

Exploring Factors Influencing the Physical and Mental Quality of Life of Caregivers of Cancer Patients: A Cross-Sectional Study at Hassan II University Hospital Center

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