Percepción sobre biobancos con fines de investigación: ¿Qué piensan diferentes actores sociales en Colombia?

Serrano, Norma C.; Guío-Mahecha, Elizabeth; Becerra-Bayona, Silvia; Luna-Gonzalez, Maria; Quintero-Lesmes, Doris Cristina

doi:10.7705/biomedica.v38i4.4327

Cited by 3 publications

(1 citation statement)

References 17 publications

(15 reference statements)

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“…Thus, our research confirms that there is an urgent need to broaden MS’ knowledge about biobanks, since limited awareness of biobanks, their role and their activity was also found among practising HCPs. In fact, irrespectively from the country, previous studies demonstrated that HCPs in Australia, Colombia, Côte d’Ivoire, Morocco, Saud Arabia, Egypt, Pakistan either had never heard about biobanks and did not know the existence of biobanks in their countries, or did not understand properly their role and the purpose of biobanks, and were unfamiliar with biobanking Standard Operating Procedures (SOPs) [ 37 , 39 , 43 , 44 , 63 – 65 ].…”

Section: Discussionmentioning

confidence: 99%

To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes

Domaradzki¹,

Czekajewska²,

Walkowiak³

2023

BMC Med Ethics

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Background Over the last few decades biobanks have been recognised as institutions that may revolutionise biomedical research and the development of personalised medicine. Poland, however, still lacks clear regulations regarding the running of biobanks and the conducting of biomedical research. While the awareness of the general public regarding biobanks is low, healthcare professions and medical students also lack basic knowledge regarding biobanks, and such ignorance may affect their support for biobanks. Methods This study is aimed at assessing the knowledge and attitudes of future healthcare professionals towards the donation of human biological material for research purposes and is based on a sample of 865 Polish medical students at Poznań University of Medical Sciences. Results This research has shown that the awareness of medical students’ regarding biobanks is low. It has also shown that while the majority of future healthcare professionals enrolled in this study supported the idea of biobank research and declared themselves willing to donate, still many students felt ambivalent about the biobanking of human biological material for research purposes and expressed concerns over biobanking research. While the primarily motivation to participate in biobank research was the desire to help advance science and to develop innovative therapies, the most common reason for a refusal was the fear that the government, insurance companies or employers, might have access to the samples. Concerns over unethical use of samples and data safety were also prevalent. More than half of students opted for a study-specific model of consent and only a few opted for broad consent. Conclusions This research suggests that a lack of knowledge about biobanks, their role and activities may affect medical students’ support for biobanks and their active participation in the collection and management of biospecimens for research purposes. Since in the future medical, nursing and pharmacy students will be involved in the collection, storage, testing and analysis of biospecimens from their patients, medical students in all professional fields should be trained regarding the concept, purposes and operational procedures of biobanks, as well as the ethical, legal and social implications of biobank research.

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Section: Discussionmentioning

confidence: 99%

To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes

Domaradzki¹,

Czekajewska²,

Walkowiak³

2023

BMC Med Ethics

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Study of laboratory staff’ knowledge of biobanking in Côte d’Ivoire

et al. 2020

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Background A biobank is a structure which collects and manages biological samples and their associated data. The collected samples will then be made available for various uses. The sharing of those samples raised ethical questions which have been answered through specific rules. Thus, a Biobank functioning under tight ethical rules would be immensely valuable from a scientific and an economic view point. In 2009, Côte d’Ivoire established a biobank, which has been chosen to house the regional biobank of Economic Community of West African States (ECOWAS) countries in 2018. To ensure optimal and efficient use of this biobank, the scientific community must be aware of its existence and its role. It was therefore necessary to evaluate the knowledge of laboratories staff on the role and activities of a biobank. Methods This descriptive study was done by questioning staff from laboratories working on human’s health, animals or plants. The laboratories were located in southern Côte d’Ivoire. Results A total of 205 people completed the questionnaire. Of these 205 people, 34.63% were biologists, 7.32% engineers, 48.78% technicians and 9.27% PhD students. The average length of work experience was 10.11 ± 7.83 years. In this study, 43.41% of the participants had never heard of biobanking. Only 48.78% of participants had a good understanding of the role of a biobank. Technicians and PhD students were less educated on the notion of biobank (p < 0.000001). Although biologists were more educated on this issue, 21.13% of them had a misconception of biobank. Good knowledge of the role of a biobank was not significantly related to the work experience’s length (p > 0.88). Conclusion The level of knowledge of laboratory staff about biobanking needs to be improved. Training on the role, activities and interests of the biobank is important.

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Sostenibilidad financiera de los biobancos en Colombia: alternativas jurídicas y éticas

Santamaría Echeverría,

Gunturiz Albarracín,

Castro Osorio

2024

derpri

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El objetivo de este artículo es presentar posibles estrategias jurídicas para la sostenibilidad financiera de los biobancos en Colombia. Para tal propósito, critica la posibilidad de comercializar muestras biológicas humanas mediante contratos onerosos y estudia algunas alternativas de sostenimiento basadas, por ejemplo, en la compensación económica por los costos asociados al mantenimiento, el servicio de colección de muestras a terceros o el compromiso político por parte del Estado.

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Percepción sobre biobancos con fines de investigación: ¿Qué piensan diferentes actores sociales en Colombia?

Cited by 3 publications

References 17 publications

To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes

To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes

Study of laboratory staff’ knowledge of biobanking in Côte d’Ivoire

Sostenibilidad financiera de los biobancos en Colombia: alternativas jurídicas y éticas

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