Perceived stigma in Korean adolescents with epilepsy: Effects of knowledge about epilepsy and maternal perception of stigma

Ryu, Han Uk; Lee, Sang‐Ahm; Eom, Soyong; Kim, Heung Dong

doi:10.1016/j.seizure.2014.11.010

Cited by 45 publications

(17 citation statements)

References 26 publications

(50 reference statements)

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“…In Thailand, survey participants from an urban area had better knowledge, attitudes, and practices toward people with epilepsy than those from a nonurban area . Related to the perception of stigma in adolescents with epilepsy, a Korean survey showed that low knowledge level and maternal concealment behavior were important predictors of higher stigma perception …”

Section: Psychosocial Diagnostic and Treatment Challengesmentioning

confidence: 99%

“…74 Related to the perception of stigma in adolescents with epilepsy, a Korean survey showed that low knowledge level and maternal concealment behavior were important predictors of higher stigma perception. 75 Despite different attitudes between Asian and Western countries, stigmatization still occurs in the West. In a European survey, 10% of participants had negative attitudes toward epilepsy, which mostly occurred in people with low socioeconomic background, low theoretical knowledge of epilepsy, misconceptions of epilepsy as a form of insanity, and no personal contact with a person with epilepsy.…”

Section: Stigmatizationmentioning

confidence: 99%

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Epilepsy in Asia: Disease burden, management barriers, and challenges

et al. 2018

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This article reviews the burden of epilepsy in Asia, the challenges faced by people with epilepsy, and the management of epilepsy. Comparison is made with other parts of the world. For this narrative review, data were collected using specified search criteria. Articles investigating the epidemiology of epilepsy, diagnosis, comorbidities and associated mortality, stigmatization, and treatment were included. Epilepsy is a global health care issue affecting up to 70 million people worldwide. Nearly 80% of people with epilepsy live in low- and middle-income countries with limited resources. People with epilepsy are prone to physical and psychological comorbidities, including anxiety and depression, which can negatively impact their quality of life. Furthermore, people with epilepsy are at higher risk of premature death than people without epilepsy. Discrimination or stigmatization of people with epilepsy is common in Asia and can affect their education, work, and marriage opportunities. Access to epilepsy treatment varies throughout Asia. Although highly advanced treatment is available in some countries, up to 90% of people with epilepsy are not adequately treated or are not treated with conventional antiepileptic therapy in resource-limited countries. People in remote areas often do not receive any epilepsy care. First-generation antiepileptic drugs (AEDs) are available, but usually only in urban areas, and second-generation AEDs are not available in all countries. Newer AEDs tend to have more favorable safety profiles than first-generation AEDs and provide options to tailor therapy for individual patients, especially those with comorbidities. Active epilepsy surgery centers are present in some countries, although epilepsy surgery is often underutilized given the number of patients who could benefit. Further epidemiologic research is needed to provide accurate epilepsy data across the Asian region. Coordinated action is warranted to improve access to treatment and care.

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Section: Psychosocial Diagnostic and Treatment Challengesmentioning

confidence: 99%

Section: Stigmatizationmentioning

confidence: 99%

Epilepsy in Asia: Disease burden, management barriers, and challenges

et al. 2018

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“…Furthermore, negative attitudes on the part of family and friends, in addition to difficulties in interpersonal relationships, are factors that perpetuate stigma in society. The are asmost affected by epilepsy observed in this study relate to difficulties at work, at school, and in social interactions, activity restriction and negative feelings by patients (18).…”

Section: Discussionmentioning

confidence: 64%

Validation and Reliability Study of the Turkish Version of the Stigma Scale of Epilepsy

Aydın

et al. 2017

Arch Neuropsychiatr

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Introduction: We aimed to validate the Turkish version of the Stigma Scale of Epilepsy (SSE) (from Brazil) and present the results. Method:The SSE was completed by 33 patients with epilepsy (PWE), 25 of the patients' family members, and 23 people from the community. Subjects were interviewed on an individual basis; a physician read the questions and the subjects wrote the answers on a sheet. The form was the same for all subjects. In addition, the Beck Depression Inventory (BDI) and the Hamilton Anxiety Inventory (HAI), Short Form-36 (SF-36) were completed by the subjects. Results:We interviewed 81 subjects. The internal consistency of the SSE showed Cronbach' s α coefficients of 0.785 for the PWE, 0.733 for the family members and 0.798 for the people in community. The mean scores on the SSE were 57 for patients, 66 for family members and 65 for the community where a score of 0 would suggest no stigma and 100would indicate maximum stigma. The SSE scores of patients, family members and the community who believed that patients with epilepsy are stigmatized or rejected were higher than the SSE scores of who did not believe it. Although there were strong correlation between high SSE scores and poor functionality and BDI; there were not any correlation between with SSE and HAI, age of epilepsy onset, time of epilepsy, education, and social class. Conclusion:The SSE has satisfactory content validity and high internal consistency. It allows for the quantification of the real perception of the epilepsy associated stigma. Prejudice and discrimination are often worse than the seizures themselves in terms of the impact on the daily lives of people with epilepsy and their families. Understanding this aspect of epilepsy is important for reducing the burden of epilepsy, and the SSE can be used for cross cultural, media, and social campaigns aimed at minimizing the negative influences of stigma.

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“…As a result, knowledge of epilepsy can minimize the impact of perceived stigma, depressive feelings, and anxiety. This trial indicated also that correlation between the level of the maternal concealment behavior and adolescent with epilepsy's perception of stigma was more significant than maternal knowledge of epilepsy or maternal perception of stigma [67].…”

Section: Stigmamentioning

confidence: 82%

Psychiatric Comorbidities and Quality of Life in Epilepsy

Kutlu¹,

Mülayim²

2016

Epileptology - The Modern State of Science

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Epilepsy is a chronic disorder characterized by a spontaneous tendency to recurrent seizures which affects patients' cognitive, behavioral, psychological, and social functioning. Epileptic patients face various problems that result in a lower quality of life. Seizure frequency, drug side effects, psychological comorbidity, and stigma are the major factors affecting the quality of lives of patients with epilepsy. Depression, anxiety, psychosis, and cognitive impairment are some of the comorbid psychiatric problems accompanying the clinical picture in epilepsy. Also the role of antiepileptic drugs (AEDs) in psychopathology of epilepsy should not be underestimated. One of the most important reasons why health-related quality of life (HRQOL) has become important for epileptic patients is related with well-known characteristics of this disorder. Its chronic nature, presence of unexpected, intractable and frequent seizures, and stigma are some of these characteristics among others. With the review of the current literature, it can be concluded that there is still a need for further scientific research to find out more clear relation between epilepsy, comorbidities, and HRQOL.

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Perceived stigma in Korean adolescents with epilepsy: Effects of knowledge about epilepsy and maternal perception of stigma

Abstract: The knowledge that the AWE had about their epilepsy, maternal concealment behavior, and receiving polytherapy were significantly related to the AWE's perception of stigma.

Cited by 45 publications

References 26 publications

Epilepsy in Asia: Disease burden, management barriers, and challenges

Epilepsy in Asia: Disease burden, management barriers, and challenges

Validation and Reliability Study of the Turkish Version of the Stigma Scale of Epilepsy

Psychiatric Comorbidities and Quality of Life in Epilepsy

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