Perceived burden of dementia care, clinical, psychological and demographic characteristics of patients and primary caregivers in Iran

Kamalzadeh, Leila; Salehi, Mahdiyeh; Rashedi, Vahid; Ahmadzad-Asl, Masoud; Malakouti, Seyed Kazem; Seddigh, Ruohollah; Almasi-Doghaee, Mostafa; Shariati, Behnam

doi:10.1080/23279095.2020.1798960

Cited by 11 publications

(13 citation statements)

References 60 publications

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“…Our findings support the hypothesis of the importance of behavioral symptoms as predictors of burden, even for caregivers who use community-based services. As other studies state, the demographics of participants did not have a notable impact on burden [31]. We cannot rule out an indirect effect of caregivers' age on burden, due partially to more health problems, less financial resources or different coping strategies in the older caregivers [32][33][34].…”

Section: Discussionmentioning

confidence: 55%

Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres

Gómez-Gallego

Gómez‐Gallego

2021

IJERPH

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Nowadays, there are plenty of programs and resources to prevent caregiver burden of patients with Alzheimer’s disease. In spite of that, many caregivers suffer high levels of burden and stress, which leads to an earlier institutionalization of patients. This study aimed to explore the predictors of burden in relative caregivers of patients attending day-care centers and the moderating role of caregiver kinship in these associations. A sample of a hundred and two patient–caregiver dyads was recruited. Burden was measured with a Zarit Burden Interview. Measures of patients’ cognition, insight, depression, behavioral disturbances, functional ability and overall physical health were considered as predictors. We found that apathy, irritability and delusions and, patients’ mobility are the main determinants of caregivers’ burden. The strength of relationship between delusions and irritability was higher in spouse caregivers. Interventions to reduce burden should be adapted to the specific needs of a particular type caregiver.

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Section: Discussionmentioning

confidence: 55%

Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres

Gómez-Gallego

Gómez‐Gallego

2021

IJERPH

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“…The Middle Eastern culture has a differing perception of health and the causes of mental and physical illness than in the West [7]. In the Middle East, a more spiritual and deterministic view of health and illness is used [13,14]. This attitude potentially contributes to stigmatization and reduces help-seeking behaviors [8].…”

Section: Barriers To Accessing Dementia Carementioning

confidence: 99%

“…There are approximately 60 different languages spoken in the Middle East. Reaching out to living with dementia and their carers who speak different languages produces communication challenges that can result in a limited ability to provide support [14].…”

Section: Barriers To Accessing Dementia Carementioning

confidence: 99%

“…The diversity of the Middle East makes a unified and coordinated strategy for addressing these barriers particularly difficult [14]. This article pertains to the Middle East in general, and no primary data were collected regarding the socio-cultural context with which dementia exists.…”

Section: Challenges In Dealing With the Problemmentioning

confidence: 99%

“…A critical step, therefore, in the advancement of knowledge and care related to dementia in the future is to align traditional deterministic and spiritual and religious perspectives of mental health with more Western, scientific and evidence-based ones so that treatments can be applied to older Middle Eastern population members in accordance with their views on health care [16,17]. An abundance of recent research has already begun to demonstrate ways in which this can be done effectively [14][15][16][17]. Arabic language is rich with metaphors.…”

Section: Challenges In Dealing With the Problemmentioning

confidence: 99%

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Carer Empowerment Is Key to Reduce Dementia Care Inequalities in the Middle East

Javaid

Al-Zahmi

Abbas

2021

IJERPH

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Dementia represents a significant problem in the Middle East. Sociocultural and political factors that shape conceptions of health and care tend to stifle research and the dissemination of knowledge throughout the Middle East. These socio-political challenges concerning engagement with individuals living with dementia and their carers include language barriers, stigmatization, logistical constraints, lack of informal support outside of hospitals, and over-dependence on clinicians for dementia information. There is an urgent need in the Middle East to increase care and support for adults with dementia and their carers, enhance research efforts and improve the dissemination of information related to dementia in the region. One possible way to do so is to begin to promote a knowledge-based culture throughout the Middle East. This can be achieved by aligning traditional deterministic and spiritual perspectives of mental health with more Western, scientific, and evidence-based models. We suggest employing practical, multidimensional approaches to deal with the stated challenges, both at individual and societal levels. Doing so will improve knowledge of dementia and allow health and social care systems in the Middle East to begin to address a growing problem.

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Diagnostic accuracy of cognitive screening tools validated for older adults in Iran: a systematic review and meta-analysis

Kamalzadeh,

Tayyebi,

Shariati

et al. 2024

BMC Geriatr

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Background This systematic review aims to comprehensively assess the diagnostic accuracy of cognitive screening tools validated for older adults in Iran, providing evidence-based recommendations for clinicians and researchers. Methods A comprehensive search in March 2023 across Web of Science, PubMed, Scopus, ScienceDirect, SID, IranMedex, and IranDoc, enhanced by hand-searching references and Google Scholar, identified cross-sectional studies on cognitive screening in Iranian seniors. We assessed diagnostic accuracy, cognitive domains, and test strengths and weaknesses. A bivariate random-effects meta-analysis provided summary estimates and 95% confidence intervals, illustrated in forest plots. Results Our review, derived from an initial screening of 38 articles, focused on 17 studies involving 14 cognitive screening tools and participant counts from 60 to 350, mostly from specialized clinics. The MMSE was the only tool examined in at least three studies, prompting a meta-analysis revealing its sensitivity at 0.89 and specificity at 0.77 for dementia detection, albeit amidst significant heterogeneity (I^2 > 80%). ACE-III demonstrated the highest diagnostic accuracy for MCI and dementia, while MoCA’s performance was deemed adequate for MCI and excellent for dementia. High bias risk in studies limits interpretation. Conclusion This review identifies key cognitive tools for dementia and MCI in Iranian older adults, tailored to educational levels for use in primary and specialized care. It emphasizes the need for further validation to enhance diagnostic precision across diverse settings, within a concise framework prioritizing brevity and accuracy for clinical applicability.

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Perceived burden of dementia care, clinical, psychological and demographic characteristics of patients and primary caregivers in Iran

Cited by 11 publications

References 60 publications

Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres

Predictors of Caregiver Burden of Patients with Alzheimer Disease Attending Day-Care Centres

Carer Empowerment Is Key to Reduce Dementia Care Inequalities in the Middle East

Diagnostic accuracy of cognitive screening tools validated for older adults in Iran: a systematic review and meta-analysis

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